I am 74 and was gifted with this crazy skin problem at age 14. It has been a long and challenging road but at least some things are happening now with treatment options. I have been through most of them and found some helpful and some intolerable.
Well Michelle I live in another world. Western Wisconsin 5 miles from the closest teeny town. My husband and I and one little dog and one cat and we are retired and have been for several years. I wish they were a little stricter here cause lots of people still won't wear masks and our useless president doesn't care that 170,000 people are dead. Thanks for asking and yes we are OK but pretty tired of this crazy virus. So you are moving to the UK. Hope it goes well for you. It will be quite a change.
I do think that I am pretty safe. As I said I am quite rural so not much contact just to the store once a week or more. On the other side of the coin I am 76 and continue taking ilumya and med controlled high bp and cholesterol. I hope that all of you stay safe and that someday soon we will start seeing our new reality whatever that may look like.
I am not sure that anyone is safe but there are 2 cases in my area and they are at home. I live 7 miles from a small town and go out to get groceries once or twice a wk and that is the only traveling that I do. I may start wearing a mask when I am near people but msks are very difficult when you wear glasses. Glasses steam up when you breath. Not much else I can do to stay safe.
Oh yes. 3 types of P on me. Scalp is special. Hands and feet P is different and torso placques are a different type also. The biologics bring different results for the different types at least for me. I know I cannot generalize because P is different for each of us. I think I have plaque guttate and inverse. Erythrodermic comes with flares and is very scary.
I have been on and off biologics for about 15 years and the only side effects that I have been bothered by were stomach issues with stelara (stomach issues translated is diarrhea). I have had some problems with this issue for many years and I was doing a 8 wk stelara shot rather than the normal 12 wk due to my derm orders. He was trying to get me clear. I think that the heavy dosage may have made my already jumpy stomach worse so I don't think everyone would have the same reaction. My experience with bios in general has been good.
I actually do better in cooler weather. Had heat stroke once and cannot tolerate sun or heat. I thank God everyday for air conditioning. I never really knew anyone with P when I was younger and I guess I only know people from these websites now. Hope you find a way to deal with your P. I have been on biologics off and on for about 15 years and I am pretty good. Still lots of patches and itchiness but I am 76 so I hope I can slide into the home stretch without too many flares. Find a good derm if you can. That helps.
I have to agree. Noone really understands unless they have lived it and it is that way with every disease or condition. I think that the commercials for many of the new meds that are being used these days really minimize what P is all about. It seems that they have the idea that P is a cosmetic problem. The fact that it is dangerous to subject your organs to the inflammation that P involves doesn't get talked about as much as the looks of P. It is a painful and frightening condition that takes up a good portion of your time and the stress just makes it worse. I just wish everyone could find a way to get their particular brand of misery under control.
Sadly either condition can pop up at anytime and the inflammation resulting from either or both can affect many organs, Heart eyes brain liver pancreas can all be affected which is why the inflammation needs to be taken very seriously. Many people do not realize this but sadly many studies have led to this conclusion.