03 Dec 12:59
Working on an idea for a comic strip about having P. Wanting it to be funny to those with P, as they can see the humour of the situation, but also educational for those who don't understand it. Any funny stories would be a great inspiration.
30 Oct 10:57
Now that it's legal in Canada I have been asked by a friend to try her cannabis cream on my P. It is working miracles!! I've gotten rid of all of my steroid creams and my P looks better than it has in many years. Surprised? You bet!
05 Oct 22:16
Hi everyone, hope you're all well. Haven't checked in in a bit. Not much has changed with me although I've finally gotten off the gluten and my P is much less angry looking for the best part. Still 70% coverage, but not glowing in the dark LOL.
19 Aug 20:44
On top of having a very painful week, now I have my IBS acting up. Spontaneous activity. Pooh with no warning. Not a moment. Went gluten free 2 weeks ago. Thinking this should improve things. NOT I guess.
19 Aug 20:17
Been away mostly for a couple of weeks. P in my spine has been acting up horribly. Not able to move much. Feeling a bit better today, but then it flared up all over my skin if you call it that. I'm 70% cover at the best of times for 5 yrs now. Ugh.
03 Aug 17:12
On the radio this morning, while driving to work... warning about Phytophotodermatitis and putting lemon or lime on your skin then going into the sun. Couldn't wait to get back and warn my Flaym Fam. Google it and be careful with your lemon folks.
24 Jul 15:29
The humidity and heat is high right now. I've had my heart rate monitor go off constantly ( my heart rate goes up). And I ripped major skin off myself while driving to see a client. Now I look like a war zone. Ugh! Humidity bother anyone else?
13 Jul 19:58
I was beautiful and sexy once. Let's go folks.... when did you last feel sexy? Has P changed that? How do you still keep it? Let's talk about how P has changed your 'self' thoughts. Looking for positive comments.
10 Jul 16:12
How do you know when 'something' causes your P to flare up? I find the initial action and the later reaction SO far apart. I've done a thousand (possibly bad) things in the meantime! So more correlational than causal from what I can tell. Save me lol
10 Jul 11:31
I'm a bit chatty today, as I have another day off! Imagine, after having 2 days off in a row only 2 weeks ago!! I am requesting some feedback however.. I have p not only on my ears, but deep down inside. Dr says I'm losing my hearing... anyone else?
10 Jul 14:35
Went to the store with short (er) pants on today. One person glanced down at my legs, but no one chased me down the isle!! Hehe... success!
08 Jul 19:28
Today, SO itchy, I'd responded recently in a post saying that I don't get that itchy..... must have started something 'cause I've been VERY itchy of late.... humidity... I think that's it.
30 Jun 13:12
This is the first two days in a row I've had off in a couple of years! I'm feeling good about it. I plan to do very little :) I'm feeling very tired and I needed to take a break. My P has been acting up big time. Holiday weekend here in Canada.
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