09 Dec 20:34
So reading all your comments about ‘normal’ coloured skin mine is fluorescent red and every over day is scaly can’t seem to control this beast!! So also starred photo therapy3 weeks ago it’s now been halted as know have psl and being treated
04 Dec 21:26
So I’m to the point of tears tonight refused photo therapy due to prickly heat. In so much pain and infected elbows.. feeling so low
04 Dec 20:43
I hate this seriously hate the flake!
19 Nov 07:46
So I’ve been trying a new cream, it’s called emu oil has anyone else tried it? I’m trying it on a little patch in case does the opposite. I get funny trying new cream in case it makes it worse
19 Nov 07:40
Hey how’s everyone’s weekend going?
15 Nov 21:54
I feel like I’m being really negative at the mo but I’m so glad I found this group so I can be negative and fine support and ‘normal’ people I think don’t get it! Whoever found this group thankyou and I’m glad I found it x
15 Nov 21:49
Sorry all but negativity tonight 2 nights no sleeps feel like a wreck very emotional and so sore tonight don’t know what to do... husband doesn’t know what to say except go to doctors for more cream... feel wrecked 🙈☹️
14 Nov 17:16
Yawn... so tired long day lol hope you’ve all had a good day 👍
14 Nov 01:01
Has anyone had UVB narrowband treatment? I start next week and a bit nervous?
14 Nov 00:57
Been in bed for 4 hours why does this damm p have to get insanely itchy and prickly at??? Only have 5 hours till the alarm goes off 🙈
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