Emma

Emma @emma1814

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Emma
...feeling okay Emma @emma1814

So reading all your comments about ‘normal’ coloured skin mine is fluorescent red and every over day is scaly can’t seem to control this beast!! So also starred photo therapy3 weeks ago it’s now been halted as know have psl and being treated
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Otto_M_Moon
Deleted account - whew as what i googled showed Primary lateral sclerosis is a type of motor neuron disease that ca... More »
Emma
Emma - No it’s doesn’t hurt just more itchy bits to add to the current lol
Emma
Emma - Sorry for lack of responses my phone is rubbish at keeping upx
Emma
...feeling sad Emma @emma1814

So I’m to the point of tears tonight refused photo therapy due to prickly heat. In so much pain and infected elbows.. feeling so low

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Emma
Emma - Hey I didn’t refuse it I was refused by the dermatology staff due to a reaction from the machin... More »
Emma
Emma - I am so at breaking long I can’t cope with this and so much lack of sleep and constant pain... fe... More »
john,Chewweeeeee
john,Chewweeeeee - sorry about this,thats part reason this site is for emma to vent it out aswell as to get some... More »
Emma
...feeling frustrated Emma @emma1814

I hate this seriously hate the flake!
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Emma
Emma - It’s the burning I’ve had a shit excuse my language day at work seriously can’t cope with this ☹️
Chris
Chris - Its a pain in e bum literally but never stop talking about it
Susan
Susan - Emma hate might just be the catalyst to get going with a change. Possibly diet. I hated all the... More »
Emma
...feeling hopeful Emma @emma1814

So I’ve been trying a new cream, it’s called emu oil has anyone else tried it? I’m trying it on a little patch in case does the opposite. I get funny trying new cream in case it makes it worse

Sarah
Sarah - Hi Emma, I've heard people talk about using emu oil but I haven't used it. I think some are put o... More »
Emma
...feeling okay Emma @emma1814

Hey how’s everyone’s weekend going?

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Susan
Susan - James today is a lazy day to for me. However, I am doing laundry. Probably the only chore I'll ... More »
Don
Don - good...having a guest over we haven't had in for a very long time. a close family relative...he ... More »
James
James - Susan, I work more weekends than I get off, so when I do I plan ahead, chores, grocery shopping e... More »
Emma
...feeling sad Emma @emma1814

I feel like I’m being really negative at the mo but I’m so glad I found this group so I can be negative and fine support and ‘normal’ people I think don’t get it! Whoever found this group thankyou and I’m glad I found it x
Michelle
Michelle - Not to worry Emma :) You are being human. It can be so hard to get out of a negative spiral at ti... More »
Sarah
Sarah - Hey Emma, vent away! Our Flaym friends will try to turn that frown upside down, with compassion a... More »
Emma
...feeling sad Emma @emma1814

Sorry all but negativity tonight 2 nights no sleeps feel like a wreck very emotional and so sore tonight don’t know what to do... husband doesn’t know what to say except go to doctors for more cream... feel wrecked 🙈☹️
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Susan
Susan - Emma my suggestion is to start with cutting out all sugar. Hard to do as most processed food has... More »
john,Chewweeeeee
john,Chewweeeeee - hello emma,yesdiet or lifestyle changes will help in the long term and you may notice the itch w... More »
Sarah
Sarah - Sleep deprivation is just the worst, bring every emotion out and enhances the dread. Try to see i... More »
Emma
...feeling okay Emma @emma1814

Yawn... so tired long day lol hope you’ve all had a good day 👍
Michelle
Michelle - Thanks Emma! I hope you have as well! Hope you can get a better sleep tonight!!
Emma
...feeling okay Emma @emma1814

Has anyone had UVB narrowband treatment? I start next week and a bit nervous?
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john,Chewweeeeee
john,Chewweeeeee - hello emma, changing diet/lifestyle is safer, you start these things with ubv then you have to co... More »
Sarah
Sarah - Hi Emma, I haven't but have been on waiting list for it for 7 months. My consultation appointment... More »
Sarah
Sarah - Hi Emma, I did about 18 years ago. The psoriasis went completely for a few weeks, but then I reac... More »
Emma
...feeling frustrated Emma @emma1814

Been in bed for 4 hours why does this damm p have to get insanely itchy and prickly at??? Only have 5 hours till the alarm goes off 🙈
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Emma
Emma - I was still awake at 3... and my alarms just gone off. Long day ahead. I’ve got antihistamine the... More »
Sarah
Sarah - Welcome to Flaym, Emma. Yeowchh that itch is the worst. So distracting. I find that using oil soa... More »
Michelle
Michelle - Sarah, I am going to buy some grapeseed oil tomorrow to experiment with :) Thanks for your sugges... More »
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