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05 Jan 20:09
A quick UV update.
20 Dec 22:54
A while back someone spoke of an all natural antiperspirant / deodorant. Can anyone recall the name?
18 Dec 19:14
I noticed that although my P is fading all over, it's going faster higher up, chest, arms etc, and slower on my legs. I mentioned this to the clinic nurse and she said that's the way it usually goes.
18 Dec 15:42
Still no links allowed so check the BBC news site today (18th). A story about the dangers of inflammable skin creams.
13 Dec 22:19
Not been on for a while, work has been brutal then sick. Still managing the UV though (apart from this week) I'm at 2 minutes 36 seconds now. It's working superbly well, no plaque and skin down from red to pink.
20 Nov 03:35
Anyone tried supplementing L-Glutamine, Tamanu Oil and Vitamin D3 into their diet?
10 Nov 00:02
Not sure UV is going to work for me. It won't penetrate plaque so they gave me all sorts to get rid of it but it's reforming faster.
26 Oct 10:06
First UV session yesterday, just my arms to see how I tolerate it. Then they sent me home with buckets of gunge and mummy wrappings. I need to get the plaque off first, about a week they said. Not looking forward to this bit.
25 Oct 09:56
If anyone is taking green tea supplements, not necessarily for P, maybe take a look at the BBC News site today.
15 Oct 17:33
For some reason I have very little in the way of plaque right now, on my large areas of actual plaque P, or my many many guttae spots. The red raised look still persists though, along with the itch and burn. First derm appointment Wednesday.
07 Oct 12:15
Anyone having eliminated nightshades, how long before you either saw a positive effect or concluded they weren't causing you problems?
25 Sep 15:48
P's driving me crazy today, itching like mad then feeling like I've rubbed it in acid soaked steel. I cannot wait to start the uv treatment. I'm feeling pretty miserable right now.
19 Sep 22:11
Apologies for not posting much, I have second degree burns over my right hand so I'm writing left handed and it takes much longer, 15 minutes for this post.
08 Sep 14:30
Any recommendations for something I could add to bathwater that might reduce night time itching?
07 Sep 15:19
Well I've arrived in North Yorkshire and as I was told, no mobile signal here. However my digs have some WiFi so I'll be on okay.
03 Sep 21:04
Nothing to do with P, I just need to vent. I just accidentally ripped one of my big toenails off, blood everywhere and it hurts like a you know what. Note to self - don't rip your toenails off again, ever.
03 Sep 18:16
I'm officially on holiday now and go away mid week. I'm hoping the rest and being away from stress will help some. There's only very patchy 4g cover and I know there's no WiFi so no dramas can reach me.
01 Sep 11:44
For years my plaques were a biegey browny colour, then a few months ago the turned pure white. In the last couple of days, my guttae has followed suit. I now look like the incredible polka dot man.
24 Aug 12:10
People who have had successful UV treatment, how long till you noticed improvement? I have both plaque, chest and back, and guttae, top to toe.
18 Aug 22:28
I put a can of the aerosol moisturiser in the fridge today. If the night time itching gets bad, hopefully spraying with it will calm it down for a bit, let me get some sleep.
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