I don't respond to private messages.
12 May 13:21
Although my body is fairly clear after the UV, I have a little at the sides of my nose and behind my ears. I got some cream from my doc. I just noticed the info sheet says not for use on the face. Where does she think the sides of my nose are?
29 Apr 14:32
Between two and three months finished UV and still good. However, I have an outbreak at the sides of my nose, behind my ears and downstairs. Going to the doc on Friday.
01 Apr 09:10
Out of curiosity, when you finish a successful course of treatment, how long does the fear factor last, the fear that now it’s finished, the P is coming straight back, or maybe you had no fear factor. Right now I’m bricking it.
26 Mar 15:10
Anyone else not getting to their activity page? I have a bunch of them but for three days now I can't open that page on either the app or website.
18 Mar 11:40
I've been persuaded to move to a whole food plant based diet (slightly different from a vegan diet I've been told). Anyways, I was also advised to watch a Netflix show called What the Health. I in turn, pass that advice to you.
14 Mar 21:26
Given the goggles and clear visor they make us wear during a UV session, has anyone felt like they have had too much sun on their face later in the day?
12 Mar 14:07
Given that like psoriasis, ibs is also an autoimmune condition, I'm guessing some here are also dealing with that?
01 Mar 11:36
A quick question for iPhone users, is there a Flaym app for iPhone, I'm thinking of trading in my current Android phone.
28 Feb 17:28
John's latest post has me wondering. He mentioned scarring. Anyone else have scars or maybe left overmarks. They told me at the UV clinic that some of the discolouration might never go away.
07 Feb 17:11
For the record, good skin care products made from all natural ingredients, Burt's Bees. I had cause to get some lip balm this week, the pharmacist recommended Burt's Bees. Best one I've ever used. Turns out, they do lots of products.
28 Jan 21:34
Anyone use avocado oil? I just bought a bottle because of its high smoke point, but I'm now reading it has a lot of nutritional qualities plus is good for both P and arthritis.
06 Jan 01:09
A quick UV update.
20 Dec 22:54
A while back someone spoke of an all natural antiperspirant / deodorant. Can anyone recall the name?
18 Dec 19:14
I noticed that although my P is fading all over, it's going faster higher up, chest, arms etc, and slower on my legs. I mentioned this to the clinic nurse and she said that's the way it usually goes.
18 Dec 15:42
Still no links allowed so check the BBC news site today (18th). A story about the dangers of inflammable skin creams.
13 Dec 22:19
Not been on for a while, work has been brutal then sick. Still managing the UV though (apart from this week) I'm at 2 minutes 36 seconds now. It's working superbly well, no plaque and skin down from red to pink.
20 Nov 03:35
Anyone tried supplementing L-Glutamine, Tamanu Oil and Vitamin D3 into their diet?
10 Nov 00:02
Not sure UV is going to work for me. It won't penetrate plaque so they gave me all sorts to get rid of it but it's reforming faster.
26 Oct 10:06
First UV session yesterday, just my arms to see how I tolerate it. Then they sent me home with buckets of gunge and mummy wrappings. I need to get the plaque off first, about a week they said. Not looking forward to this bit.
25 Oct 09:56
If anyone is taking green tea supplements, not necessarily for P, maybe take a look at the BBC News site today.
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