They’ll start off small, maybe 15 seconds then increase it over time? That’s what they did with me. I noticed it working above my waist before it started below my waist. The nurse said that’s common. Try not to miss any more than two sessions though or they’ll start you back thirty seconds, it’s what they did with me. The treatment I had took place over three months and they said it could lasts anywhere between two months and four years so fingers crossed you get four years (you can do it again if you need to, it’s not a one shot deal).
I hope I’m wrong but I wonder. This site / forum was set up by one of the drug companies, that’s why we weren’t allowed to mention brand name drugs. I assume their main purpose was to gather information from us as people affected by P. That’s okay with me, a fair trade. However, could it be they have all the data they want and as you say Kay, have simply walked away.
I think the app is an ongoing project which hopefully will get better over time. The notifications are a big one but there are other faults. If you’re in the middle of tapping in a comment and you get interrupted by an incoming call, you lose everything you’ve tapped in. Also, this is the only place I’ve had the “Hold on, you’re posting too fast” message. I also Fee they could do with either more choices at the end of a post. You know the, I’m feeling happy, sad etc bit, then what the message is about, treatment, blah blah. A few social chitchat categories would be good too.
Soft white parafin will soften plaques asap but you might need a steroid for the underlaying redness. Caution with both though. Soft parafin is flammable so if it seeps into clothes and bedding, well, just be aware, especially if you’re a smoker. The caution with steroid cream is overuse. That can cause weakness in the skin structure so it cuts easily. I had to give up shaving.
One of the best life tools you can have is the ability to not give a f&@k what other people think of you. It’s very very useful if you have P. I never had that ability way back, but I learned quickly to develope it. But yes, back in the day, I had down days. I still have them but I just keep moving forward.
I’m off on holiday at the end of next week so I’m doing hunky dory. The shine was partly taken off last years holiday due to the amount of plaques I had. The course of UV I did later in the year got rid of almost all of it but barely three months later some has came back. However, nowhere near as much as during last years holiday so I’m taking it as a win.
Mary, a lot of us here have felt like that. I’ve had it longer than you and had a lot of ups and downs. Pleas know that no ones psoriasis stays the same, over time it will flare up and die down. Also, no two peoples psoriasis is the same. Treatments that work for some don’t for others. Thing is, initially, read through old posts, randomly or search for key words pertaining to you. You will most likely find a few things to try. A lot of doctors don’t fully understand psoriasis and just hand out creams.
I finished a three month course two months ago. I was head to toe mostly little patches around two inches in diameter. I went twice a week, starting at just 25 seconds and increasing by 15 seconds after each session. It worked very well for me and I was plaque free by the end. They should tell you it’s not a cure and different people are free for different amounts of time, several years to a couple of months. I kind of fall into the latter, I have some back, just on my elbows and thighs and compared with before, that’s a win for me. I do have the slightly darker skin tone where the plaque was but it doesn’t bother me. If you’re younger though it might. It is a commitment of time but worth it in my opinion. Three last things, commonly, the plaques start disappearing from the bottom up. The nurse said they have no idea why. It’s not a once only treatment. If you have it and the plaques come back at some point, you can go again. And finally, UV light can’t penetrate plaques so either the hospital or your doctor should give you some kind of cream to soften the plaques so they fall off in the shower. My doctor gave me a simple soft paraffin gel which worked well and really fast. I bought a big sponge which was soft on one side but had a rough exfoliating surface on the other. That worked really well. Oh, and a bonus tip. Something like the paraffin gel is flammable and can soak into your bedding and PJs so if you’re a smoker, best take precautions.
Exactly what Peter said. Some people try an elimination diet as a way to find foods that cause or exacerbate their P. As Peter said, the nightshade plants can have a big effect, however not in everyone. I eliminated them but found no difference. You may be different, and there are other possible causes. We can’t post links here but just google Psoriasis elimination diet. There’s plenty of detailed info out there.