My pso started to get serious about 5 years ago but ive never been this itchy and sore from it.
I hope I’m wrong but I wonder. This site / forum was set up by one of the drug companies, that’s why we weren’t allowed to mention brand name drugs. I assume their main purpose was to gather information from us as people affected by P. That’s okay with me, a fair trade. However, could it be they have all the data they want and as you say Kay, have simply walked away.
Hi Roxy. I mostly eat veggies, green salad with fish or chicken. I love red meat, but don't eat it often. Any junk food is out. I do cheat sometimes but I don't make a habit of it. Some people can eat nuts and berries but with me, I itch from nuts. Not all of us are the same which is why we need to experiment with our food and see what works for us. One thing I know for sure is that I can't eat dairy, apart from having milk in my coffee, Pasta, bread, gluten etc is a big NO NO as well as nightshades. Fizzy drinks are out as well as spirits (I do drink spirit occasionally but are very bad inflamed afterwards which is why I stick to my red dry wine. I do drink my turmeric powder often to prevent inflammation and it does work for me, especially for my PsA. :)
Oh and I have to add that what works for me, might not work for you, but there is nothing wrong with trying it for a couple of weeks and see how it goes. Ointments alone won't help. You need to change your diet as well by eliminating all the unhealthy food. It's not easy believe me, but when you see results, you'll realize its more of a lifestyle than a diet :)
Mary, a lot of us here have felt like that. I’ve had it longer than you and had a lot of ups and downs. Pleas know that no ones psoriasis stays the same, over time it will flare up and die down. Also, no two peoples psoriasis is the same. Treatments that work for some don’t for others. Thing is, initially, read through old posts, randomly or search for key words pertaining to you. You will most likely find a few things to try. A lot of doctors don’t fully understand psoriasis and just hand out creams.
I’m off on holiday at the end of next week so I’m doing hunky dory. The shine was partly taken off last years holiday due to the amount of plaques I had. The course of UV I did later in the year got rid of almost all of it but barely three months later some has came back. However, nowhere near as much as during last years holiday so I’m taking it as a win.
Thank you all, and im diabetic in addition i have lactose intolerance....im already dairy free somehow and my sugar supply isn’t much. But I’ll try my best just like all of you, I AM GAINING MY WILL TO FIGHT THIS FROM ALL OF YOU, Knowing im not alone gives me strength maybe some of you will think im being dramatic or something but believe me having people answring my concerns and comforting me is blessful as it is, and bless whoever made this app srsly its the best.
Tammy let it all hang out here, believe you me, the people here are great and any questions you have, just ask, so many treatments works for one and not others, so many have this problem yet I knew no one that did and no one understands what we go through unless they have it themselves, and here on flaym we all have it and you will get great support like I do and get great advice. You are not alone!
No i cant say it made a big difference for me but i am a bit put off with dairy to be honest as i gave it up over 2 years ago aswell as a lot of other stuff, i do let my hair down from time to time though, Odd i used to eat lots of cheese, milk anything ,I dont worry though when away on holiday,then i eat anything as its a pain , at home its easy not to have dairy, I do have calcium pills because i dont want to lose the rest of my teeth :),I dont know what my triggers are, winter i think is it ? :)
Hi Julie .. I also have scalp P ... when it was at its worst I also coated my scalp with oil ... I currently use a mix of coconut , tea tree , olive oil & grape seed .....I path my hair & rub the oil on my scalp ... I leave it on for the day & wash out the next morning ...make sure to cover your head at night so that the oils do not go on your pillows or alternately you can wash your hair & re-apply in the morning...hope this helps ....I also wash my hair with a TAR shampoo....& I use a shampoo/ conditioner with no SULPHATE in it ....
I've had it for over 45 years now and experienced pretty much every reaction you could think of. I gave up trying to educate people, or caring what they think, a long time ago. I live my life the way I see fit and developed a thick skin (pun intended) a long time ago. If a person reacts badly, or doesn't want to interact with me, then my attitude is simply, fuck them, and I move on. If they know about P, or are willing to listen, then good, if they want to be friendly, then double good. The desire to be friendly is my default start position. I truly don't believe there will ever be a cure, big pharma have zero interest in finding cures, so once I accept that, I simply learned to live with it.