Psoriasis is horrible in old age..wondering what Pharmaceutical company will ever help me buy the meds that would help me attain some form of quality of life??
Ray the biggest problem with have P is that we fork over our hard earned money just for a small term fix..sure do wish there was a cure or even something I could use for interludes of relief by interludes I mean at least three years...at least without subtle reminders of P's Presnse in small patch plaques...but what I do do is helpful Epsom salts soaks for about an hour every Sunday showers in between of course and tons of coconut oils and a CBD product called Goddess hahha which I am not Hugs anything is worth a try so good on everyone we are True Seekers
I went on a Cancer treatment believe it or not for P and they figured out that I will never..sadly be some one who can use biologics..so when I flare up its pretty much one oral med I can take and sadly it doesn't hold back any flares I also use steroids occasionally that's it baby cakes...so no biologics are out
The Bleeding began last weekend what a bummer especially around my heels hurts as it splits right up the back of the foot on both sides..my hands are numb..it happens that way sometimes and the itch is other worldly this isn't the worse episode so I am so grateful I have Flaym I thnk God for having you all to bounce stuff around with when I felt alone before I found you guys I really did think Life 1 A was over Bless you all and so many Great ideas..Thank you we must have the same fatty steroid lotion :>) Saran wrapped feet and wear hospital latex gloves at night
Vickie currently loads of Bone Broth as I began a Fast to remove foods until I find what causes my flares...Kombacha and Macha teas...drink them daily..turmeric has helped...I use lots of coconut based oils on my skin ..and Epsom salts bath soaks...some of us have found using lemon on our skin works..however let me remind you as I do myself..P is Forever there is no cure for it Hugs Darling
Brenda welcome to old age I am 70yrs young...I have the same problem you never have to apologise to me...especially when all I actually want to do is garner what is working for everyone else..does this med or that food help or hinder...really limits shares for me but I love this group very much so I live or try to with what the Moderators have requested Hugs new friend and bless you
Hang in there James..me too, by the way, I am barely walking AGAIN...you know the part of Poltigiest movie where the little girl says" their back"...for me that's the Pustular P ..ITS Back...even though I am on my Miracle drugs...P hates me today...and its harder for me to Love P Hugs Dear Friend...wish I could slip out of this skin right now...
Until I get this latest Flare up gone I hesitate adding anything but bone broth I have to travel to my Butcher 29 miles east of where I live and I know its all wholesomely butchered and naturally fed beef and lamb and chicken are always free ranged...so I buy up the bone and I make a small poltice bag of my spices..turmeric celery hearts..and onion-garlic and boil them all nicely down together..strain it and throw out the bag of spices...and that's all I have floating around in my chunk..period...no fruit..no vegies..plain jane broth from decent meat that has NO Additives..I got lazy and was buying store bought everything..no more xoxoxo everyone
Winter I shiver at the thought of Winter b/c I do get worse...its getting cooler here on the High Plains desert of Nevada. The high plains are located in North Central Nevada not Las Vegas or Reno...I am at 5500 ft above sea level and I get a thing called a Haboob where the sand itself lifts off the floor of the desert and makes a cyclone everywhere..yes P is not the worse thing we all could have..ALS comes to my mind after years of Nursing everyone else 30 + . I am again on Diet watch and slathering coconut oil everywhere and the cracks on my feet seem to be improving, I want to wish you and everyone here a very Blessed day..:>)
Thank you my Darling The pain of this is indescribable...there is an old song that says I don't get around much anymore :>) I am sure the tide will turn...back on probiotics and doing a Fast...for several days..going back to slow additions I seem to do better when I align my diet..honestly processed foods with hidden sugars and additives Is what I think happened..I just got lazy and it built up and here I am in Pain again..proof positive you can't be stupid about food ever,I may actually try the Kombacha teas everyone raves about
James~I have been where you are at it was all I could do to stay alive...and it made me feel sooooo hopeless...Hang on,Hang in...the right treatment will arrive..I was on hold for a year and a half...I was so depressed I told my Husband good bye one day and I had stuff stashed to go into the deep 6...real story..I was misdiagnosed with what the were calling a severe Fungus infection and the treatment for that was awful and my P only got worse,I could barely walk..Blood everywhere top to bottom and over 80% body coverage..Pustular feet and hands..cracks,flakes...blood...I hated walking to our Loo..or bathroom...I couldn't stand up for showers the water would hit my skin and I would scream...so James..hang on...UV didn't help me...steroids didn't help me..however the Tar Soap gave me an element of relief...and then the right Med's have not cleared every area..but make my day tolerable to a level I can handle...and I say to hell with the flakes..I can survive without the bloodletting cracks,itch Take care everybody and May the worse of it ease a bit do what you feel comfortable with and then come back and let us all know how its going Hugs James