Definitely the best thing I could have done, especially as I hadn't realised exactly how down I was about the condition until after it started to disappear. It's incredible how depressed you can get without realising as such! Guinea pig, test pilot, I've been all of them at some point in my life and not just for medication! haha!
@Michelle, the blood tests were required when I was on the tablets. Those were also cancer-treating drugs and known to affect the kidneys and liver so there were more frequent blood tests required. Now, it's just when I go to a follow-up appointment which was once every 3 months and has now moved to 6 months. Again, because the biologic is fairly new to the UK market - I believe I was in a batch of about 10 people who were 'among the first in the UK to try it' so they're being cautious more than anything. But yes, clear skin is all everyone wants...I'm happy with that in any case! :D
I understand your caution as well...having had so many different treatments with less than stellar results can have an effect on how far forward you go with anything but I'm glad your condition is not so severe. :)
@Michelle, luckily in the UK, I now qualify for a free flu jab and for a vaccination for coughs and chest infections due to taking Trymfya so I'm due to go to the GP to get those administered. In terms of keeping the immune system topped up, I've been lucky enough that it is fairly robust anyway but have caught colds more easily over the last year but no more frequently than normal - which tends to be once a year. It does depend on how active I've been and how run down I might be but, touch wood, I've been healthy so far. I drink natural juices - beets, celery, etc mixed with apple and/or orange and a dash of cider vinegar on a weekly basis.
So far, I'm still on the medication road so I have to take the injections every 2 months so I've not been in the position to take note of how my skin reacts if I stop using it. I've varied the time I've taken the injection by about a week or so later as I have the injection delivered to my parents who set up strict reminders for me to make sure I don't forget but so far so good.
So, in short, yes it does weaken the immune system. You should be provided with some decent support if you're recommended to go this way in order to support that weakening. You also don't have to do so many regular bloodtests - once a month or so is the norm now. In fact, my next blood test will be in March next year when I go back to the consultant for the next follow up. The effect on the skin is, to me, nothing short of miraculous. To go from vividly redmarked and flaky skin to 90% clear (just the brown mottling on the skin is left) but smooth skin within the first couple of injections, theoretically, should be enough to convince you that you should consider trying it. It doesn't reduce your immune system to the same extent as the multi-purpose tablets did but I do understand your concerns as it was one of my main concerns as well.
Well not sure about you but have had infected bellybutton before, it was full of psrioasis at one stage. Boy did it smell!! Ended up (after many home remedies) going to Dr, was infection from psrioasis, gave me a cream was fixed in a week. Sometimes we just got to seek help no matter how embarrassing, the Dr's have seen it all.
Well, in Romania you are not allowed to donate blood if you suffer from skin diseases (psoriasis included) that are contagious. I don’t get the point of it. I’ve donated over thirty times before 😁 and I didn’t check on their sheet that I have skin disease because I didn’t think it’s contagious. Afterwards, I’ve learned that psoriasis is includ on the skin diseases list. So, if in other countries you are eligible to donate blood, even though you have P, than I will donate blood like I did it before 🤫
I have to agree. Noone really understands unless they have lived it and it is that way with every disease or condition. I think that the commercials for many of the new meds that are being used these days really minimize what P is all about. It seems that they have the idea that P is a cosmetic problem. The fact that it is dangerous to subject your organs to the inflammation that P involves doesn't get talked about as much as the looks of P. It is a painful and frightening condition that takes up a good portion of your time and the stress just makes it worse. I just wish everyone could find a way to get their particular brand of misery under control.
Most of the people don’t understand. Only a few people understand and those who suffer from P. I suffer from an “easier” form of P. I have it on my elbows (not a big surface) and on my right calf (very small) where I was bit by a mosquito. Even though my P is not itchy nor painful I understand you. Sometimes I think that maybe if I burn my skin I will get rid of it 🙈 nothing grows on a burned skin. Some cells are missing 😁 Maybe one day the scientists will find a cure and I hope we’ll live to see that day.