Hi Taz. I'm from SA too. I've tried Dovobet but with no success. I use the LPC cream from Dischem Pharmacy. You can get it on the shelves. The tar cream slows the skin growth and I've been using it as in forever but remember what works for me might not work for you. You can try it and see from there :) Good luck!
Ah that evil voice we have but as long as we just enjoy life and do whatever we can do to make it better for ourselves then good.
Steve, I'm glad the bio's are working for you. We know we can flare up anytime but we do not have to sit and wait for it to happen. Instead, try to enjoy life right?
Lindakay, I'm very happy for you. You've come a long way and the diet changes are the best one can do and try stick with it. Its more a lifestyle change than diet. I still cheat but my skin doesn't flare because of the changes I've made in what I eat. You sound more happy and positive too and it warms my heart to see that. Thank you for your contribution as well. You have helped a lot of Flaymers with giving advice and staying positive. :)
Rosey, oh I remember how happy you were when your skin cleared up. It was wonderful to see you like that but one thing I can say about you, is that your wonderful sense of humour and honesty towards your P and outlook on life has really touched my heart. It doesn't matter how covered we are, we are still human and loves to laugh and make jokes even about our P.
My short term P is clearing but the P on my lower legs (long term) is still there. I think it will stay forever but I dont mind, its not as if I'm parading like a model in a bikini.
Thank you Sid. Ah I see about the blood tests and tablets. Not good I'd say. So you were one of the first guinea pigs in the UK lol. I hope you don't mind me saying that. Not meaning anything bad by it. You had guts to do that Sid and I take my hat off for you. I don't think I would've done that to be honest. Thanks to you and others, many can use it even though there are side effects. I guess one will try whatever you can to get better right? I'm glad you're happy. you sound positive and that's a good thing. :)
Hi Sid. Thank you for that. I'm glad you're happy with the biologics and that it helps you. I'm still very weary but also its understandable from my side. You are keeping healthy and that's good. no need to check what will happen once you stop drinking the organic juice. It helps and thats it. :) May I ask why you go for so many blood tests if you know you have P? how does it help? I'm sure you're happy to have smooth skin Sid, that's basically the only thing we wish for right? we don't care about beauty or riches, more about having a clear skin. no money can buy you that. well, my opinion of course ;). My P is not severe at all and I can't say I'm suffering but it will be nice to have clear skin. :)
Hey Alex. I'm from South Africa. Went once to donate blood and they refused me because of my P. Now...would they rather let the person die than accepting the blood from a P sufferer if nothing else is available? I understand that a HIV person can't donate blood but P is different. Ridiculous if you ask me.
Have you noticed that only ignorant shallow people do not understand others with conditions? It's because they only look at the surface. They have no idea how to use their brain by expanding their views. We live in a society in which considerable importance is attached to an attractive, healthy appearance. Beauty ideals in all cultures include an even skin tone that is free from blemishes. Yet skin conditions are very prevalent. Negative emotional impacts include enduring states of anxiety, depression, and social anxiety, as well as more transitory states of shame and embarrassment from the stigma of feeling different, negative body image, anger, guilt, and self-consciousness. WHY SHOULD WE FEEL LIKE THIS? We need to stay focus and have a healthy strong mind to put these people in their place or not to let them make us feel this way. It's difficult and we face a lot of challenges every day. Remember, when you start accepting your condition, then only will you start becoming more positive and laid back where your condition is concerned. You'll start seeing things more in perspective and ignore the shallow people whom is trying to bring you down. I work with accountants, Executives, MD's and CEO's and let me tell you, they all know about my P. They are understanding and not one has ever looked down on me because of it. Why? because they are not shallow. they are intelligent and open minded and accept the unaccepted. Do not social with idiots. stay away from toxic people or you will lose yourself. Good luck and I do hope everything will turn out well for you. Like Phil said, God does help. He helped me and others and He will help you to get through the difficult times. We all have choices we need to make and we have to choose wisely. :)
I've just read up on Trymfya. Problem is that it weakens your immune system and which can lead to infection more easily. Which means you have to always make sure you keep your immune system strong and try not to get ill. It sounds great though but I'll pass this one. After the strep throat my immune system was so weak that I got bronghitis straight after and I struggled for 3 weeks to get rid of it. I got spots where I never had before. Debbie and Sid, how do you keep your immune system up while taking this product? and how does your skin react when you stop using it?