Just getting into the elder class and becoming comfy with my infirmities. My mother who died at age 95, used to say quite often “old age isn’t for sissies, ya gotta be strong to put up with it!” She was right!
You know maybe try working from the inside out. What I did to get healing is cut out sugar, bread/pasta, dairy, alcohol, eat very little fruit. I'm pretty much just a vegetable/protein girl along with my husband. I also did tons of stuff like meditation, got my Faith on track, forgave everyone, listen to great tunes, let go of all stresses including my family and friends... Basically I did a 360 degree turn in life. I'm 57 now, newly remarried and love my life. If I was in full blown psoriasis, then I would know to start from the inside out. If you are recommended steroid cream, please use carefully and rarely. I used it for 2 decades and the effects are very thin skin. Seriously, it can tear like paper but seems to be getting better somewhat...
I'm in UK and been using Bio for 5+ years and been steady on one in particular for 3+ years, Its been absolutely amazing, Had an infusion every 6 weeks, within 2 days I feel the benefit, then I got 4 weeks of complete relief from PSA and PS absolutely amazing, BUT ! gotta admit by the time my next infusion is due the effects have totally worn off and I generally in terrible joint pain across my whole body and skin in a mess.... BUT due to a heart condition they have stopped my treatment, I'm at week 3 just now and the effects of the drug will begin to wear off in the next week or so, with no treatment I'm gonna be back in a really bad mess, My consultant is not going to prescribe anything so its back to relying on my GP who at best is gonna give me MST which works but I really really don't want ....
Sorry if I was reactive Michelle. I am sensitive to drug shaming. I understand avoiding them as I always have also. It was a tough decision to make putting a 14 yr old on a bio. I do think that my son’s P stems from the extreme stress and anxiety he has always had. I refused to medicate him and thought it would work it self out with time, love (and some therapy) but I see now how badly he has needed help beyond what I could give him.
Hello Tom,I just tell people if they ask and like as Michelle has said, that is an auto immune disease, A lot of people are interested when you explain about this and you look confident and i just say , i was born with it ,a gift from my mother and that anyone could end up with this and that its on the increase worldwide,I used to get embarrassed years ago and now i dont care as its not my fault as i see it, Theres worse out there so i see it this way ,Welcome to Flaym Tom, Thank you :)
Children will ask me straight up “what is that?” and I can comfortably answer but it’s those people who stare or even whisper who really get to me ... I try to remain calm and not bothered by it ... I like the idea of starting the conversation but that can be hard for me sometimes ... however if I’m asked, I feel more at ease.
Ask them politely if they will feel better if you tell them what you have and what it is about. Tell them you are more afraid of what they have that the eye can't see. When my P was bad I actually considered printing out a short summary of what it is about and just handing it out to those who stare. On the other hand if it is someone making YOU uncomfortable tell them hey don't stand too close you might catch what I have... Seriously you will always have people that doesn't know what it is about, best is to learn to not let it bother you too much.
Well if they ask, you just tell them what it is, how/where did you get it like you know explain them how it is not contagious. And if they're just staring at you just say don't worry it's not contagious and smile. 😂 I did that to my seatmate and now she's my friend who always slaps my hand everytime i scratch my itchy psoriasis. 😂 But then again it depends on person's stare sometimes they gave you disgusting look and that made me sad.
Hi Tom. Being honest and forthright is the best way to go. Don't be embarrassed but rather confident when people stare at you. Having an autoimmune disorder is not easy which is why you need to up your game with people who do not understand what you have. Be prepared for a variety of emotions but don't let it get you down. Start the conversation by telling them about the body's immune system and how it protects you from disease and infection but in our case our body attacks healthy cells etc etc. We need to explain to people or else they won't be as understanding as we want them to be. Good luck :)