After 2 weeks on immunosuppressive meds my kidney function has deteriorated slightly, but my blood pressure is very high. Seeing my GP tomorrow to discuss my options 😔 I’m absolutely devastated.

I’m exactly one week into treatment with an immunosuppressant and I think I can see a slight improvement. Derm said I would see results quickly with this particular medication. He wasn’t kidding! Holding onto hope that things are improving! 😊

I’m really sorry this is for the female flaymers!
I’ve been suffering with genital P -splits and sores in some very intimate areas. I’m new to P and haven’t found anything that helps. How do you cope with your period? What sanitary items are best?

Has anyone had any autoimmune medications and have they had any success? I’ve been prescribed one today, though not the one I was expecting!

I used to love a nice scented shower gel/cream. I always used sensitive skin products. But I really miss having any nice smelly scent. Is there anything we can use that is scented and gentle enough for us with P?

Before P I occasionally had small sore areas under my tummy and breasts if I’d been sweaty. GP has tried antifungal, antibiotic and steroid creams but no luck. Powder and nappy cream used to work but they just burn my skin now. Any suggestions?

Has anyone gone to the extreme of having their head shaved? I was in so much pain and areas were infected. The infection is clear, but my scalp isn’t. I want to grow my hair back, but right now that’s not an option.

Does anyone take immune suppressant tablets for their P? I’m just having the pre screening blood tests. I have chronic anaemia, so I’m really hoping that isn’t a problem. Anyway, do the tablets helps? I’ve only had P since late October.