Psoriasis since Oct 2017. Learning fast! Also have Trigeminal and Occipital Neuralgia and severe nerve damage in my leg. Mostly bed bound and only leave the house for hospital appointments. My partner and my Son keep me going.
James, does she have P?? I can easily get that cream from the local chemist! I’ve decided not to stress about the tattoo and the healing/P but I want to get the aftercare right.
I’m certain the guy doing my tattoo will have answers, but until my hands decided to join the P party, I hadn’t considered the aftercare question 🙄
I’ve been reading lots of information, on here and all over the Internet. On the whole, most people report that the new tattoo heals well without causing a flare in the area you’ve had your new tattoo! The only criticism I’ve found is the aftercare cream that’s provided, not being the best for us with P. This has something to do with the way our skin heals compared to people without P.
I’m only have a small tattoo...which will look like a delicate bracelet. It’s unfortunate that in the last few days I’ve started getting P on my hands! 🙄
Inverse P often gets a fungal infection, which is that nasty smell. Steroid creams and antifungal creams on their own don’t help, but there is a cream available on prescription that has a mild dose of both in it. If I use it a couple of times a week, it stops the fungal infection reoccurring. The cream has been a godsend and can be used in ANY area of the body...under breasts, genitals, bum cracks, armpits, belly button etc etc.
Believe me, both me and my GP never thought we’d see this day as it’s been so long. I had a number of iron infusions and WOW! Obviously my GP wants to check it for a while, as when I had a blood transfusion several years ago, it didn’t stay up long. But now that my iron is within range, it’s pushed my Hb up too!
At the minute I’m scared to change my diet, purely because I live on jelly (jello to those over the pond), rice pudding, chicken soup, yoghurt, bananas, potatoes mashed and all things very soft and I rely on my carer to get that for me. Already my care plan takes into account extra washing time to apply creams, but not to prepare different food!
I’ll look into it and see what could work for me.
After all my blood and iron transfusions in the past 6 weeks, I’m no longer severely anaemic! In fact, my blood levels are perfect! It means that the original choice of meds is now an option. Lotions and potions until I see the Dermatologist and a Bp med until my Bp comes down. My kidney function had deteriorated more since last week and Bp is higher. No more of that particular autoimmune medication! Trying to be positive 😊
I understand that there’ll always be side effects and that changing my diet might help. My situation is difficult as I’m mostly bed bound with severe chronic pain. I have a brain injury following major brain surgery and I can only eat very soft food that doesn’t need chewing. When I shower, I need morphine just to cope with the pain in my head and face and while I have a carer, I’m needing showers more often, which means more morphine. As a result I sleep a lot more and I have a child who is 12 my life. I can’t spend my life sleeping. My P is severe on my scalp and all my intimate areas, with plaques on my legs and elbows too. I’ve tried dozens of natural and pharmaceutical options, with no results. When I saw the Dermatologist he said this isn’t a case where we can use topical treatments or light therapy and saw just how unwell I am.
I just wanted to know if there are other options after this autoimmune capsule, because the headache and extra pain is beyond unbearable, let alone the worry of my kidneys and my Bp.
I’m not making excuses, but systemic treatment is physically my only option 😔
My GP is concerned, because my Bp is really high and my kidney function has deteriorated. I had another load of blood tests today, if things are any worse I’ll be coming off it. But I have no idea what other options are available to me. I haven’t had my head shaved again as things were improving, but I think I’m going to be back to square one.
Adding to my long list of medications, they now want me on Bp medication and possibly a diuretic. I’ve already had to start another anti sickness med. I do appreciate that many people have to make this decision, but my liver and kidneys already deal with a lot of toxic medications. But I feel so ill.
I’ll see my GP on Friday and while I’m hoping she’ll agree to me stopping it, I don’t see the Dermatologist until May 23rd and just don’t know if he’ll recommend another systemic treatment, rather than lotions and potions. I just can’t go back to that 😔
They tested my blood pressure and kidney function, the week before I started the meds. My blood pressure was within my normal range 126/72 - it was up last week so they made an appointment with the practice nurse for today. My Bp is now 184/96 and my blood test shows my kidney function has deteriorated. Everything was perfectly in range before. I’ve only been on the meds for 18 days, so it’s not a good sign at all. I’m on a lot of medication for my chronic pain, so the last thing I need is even more chemicals for my body to cope with. If I take Bp medication, I’ll have to go on a diuretic (water tablet), to help my heart and kidneys.
If I needed Bp meds that’s one thing, but needing them because of a side effect just doesn’t feel ok given how hard my liver and kidneys are having to work already.
Maybe I’m being neurotic. But, in my defence, I was a renal nurse before I became ill and I’ve done dialysis on a number of people whose kidneys failed due to immunosuppressants.
If your skin was his reason for not seeing you again, he’s shallow and ignorant!
I’m sorry that happened, it must be very hard and you must feel rejected.
The reason my ex is my ex, is because the Neurologist thought I had MS and my ex saw it as a great way to pay the mortgage off!
My partner now, is very, very different. But I was physically disabled when we met, so I know there are people out there who see past health problems. I’m just sorry that one turned out to be so shallow.
Meeting that person turned my life around and since it happened for me, I truly believe there’s someone out there for everyone. I hope you find your someone soon x
I did the same thing Chris! I had hoped to be able to start growing it, but as yet there’s no improvement, despite being bald and getting the lotions and potions on really well. I’ve recently started an autoimmune med, which so far is helping other areas, but not my scalp yet. But it’s early days yet, so I might be bald a little bit longer.
I’m really glad it’s helping you.
Life would be really boring if we always followed the rules, even if they’re our own rules! I find it easier, to forgive yourself and remind yourself that you have to be kind to yourself. It helps with the guilt and that relieves the stress :) Stress isn’t good for P so you’ll feel better all round!
I’m not sure if I made sense, I’ve had to take morphine!