I don’t have P but my 13 yr old son does. I’m so grateful to have found this site in my quest to help him!
tbh. I've tried a lot of different approaches and whilst I didn't think it affected me that much mentally, it must have done as my confidence has increased so much since I started on my course. It took me a very long time to come round to even agreeing to take drugs of any sort in order to try to combat this condition because I'm very aware of the damage that could be done in addition to the positive element.
@Rosey, I'm very glad to hear that you are making big improvements with your condition...it's onwards and upwards from here!
Yes true psomom. I apologize if what I said was wrong and insensitive. I did not mean it that way. I don't know much about biologics which is why I ask questions. The reason for my questions is because maybe I might need it sometime in my life. My view might be different from yours and some others because of my lifestyle change. I was covered in Psoriasis for many years and I know what it feels like so yes I do understand very well. I was mentally unstable because of that. I forced myself to change my diet and eventually I became a clear skin for years until something happened to my daughter. Then, I got all covered again. I don't think there was anything else that made me more happy than to be a clear skin. I do wish your son a wonderful clear skin life. I would've felt the same if one of my daughters had P. :)
@Michelle - most systemic treatment for psoriasis (tablet or injection) work by reducing the immune system as it is known that the condition is caused by an overactive immune system. The lower tier stuff, especially the one beginning with M, are cross-platform drugs which mean they are also used for treating cancer or can potentially cause damage to organs like the liver. This is why they take so many regular bloods from you - to monitor and confirm that there are no long term effects from taking these drugs. These lower tier drugs are not for everyone and their effectiveness will depend on the severity of the condition and what state the immune system is in.
When you move into bio-land, these drugs are known to clear psoriasis to a higher extent, in some cases completely clearing it. There are a couple of drugs used for this - an established one has a longer period to run in whereas the newer one requires fewer doses and 'guarantees' a higher percentage of clear skin.
As far as I know, it doesn't shut off the immune system, but reduces the effectiveness of your immune system. You do have to take more care when dealing with people who have colds, coughs and flu so you are legible, in the UK at least, to receive free flu and chest infection jabs as a consequence of this.
It's perhaps something that could be discussed in a thread where we can name the various drugs....is that going to be allowed? Rather than highjacking psomom's deserved joy at something that is working for her son...
Hi Sid, by saying there is a downside with a suppressed immune system, does that mean your body can only mount a diminished level of immunity in response to invading organisms? Meaning it can make you more susceptible to cancer, diabetes and eventually when you stop it, worsens our autoimmune disease? Or do I have it wrong? I'm sorry I don't really know much about the different types of drugs we get for our disease. :)