Mrsjonesjnr
...feeling insecure Mrsjonesjnr @Yendell

Treatment, friends & family, strangers

Hi, I'm new to psoriasis and this group-I'm covered head to toe.....started uvb light treatment yesterday so hoping this works for me ๐Ÿ™๐Ÿผ what's everyone's best tips for keeping sane?! ๐Ÿ˜ณ๐Ÿ˜ฌ

21

Theme Light Therapy for Psoriasis

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21 responses

Heatherlou
Heatherlou @heatherlou

Joining groups like this and learning you are not alone or on your own.



Mrsjonesjnr
Mrsjonesjnr @Yendell

Thanks heatherlou ๐Ÿ˜˜
Josh I'm pressuming the beers help numb the itching and blur the vision?!๐Ÿ™ˆ


Psoriatic4good
Psoriatic4good @psoriatic4good

Josh,

You Sir are correct!

:)


Adam
Adam @ads666

Keep positive and take control of the things that you can (diet / exercise / plenty of water / talk about it). I've found my Psoriasis is always worse when I don't look after myself, stop talking about it and put myself in stressful situations. A good balance of the above will help and exercise is great for stress relief!! I joined this group a few weeks ago and it helps massively to know I'm not alone (as sad as it is that others suffer).


Martin
Martin @maz

The treatment definitely works, I'm afraid you are only allowed a certain amount of treatments because of radiation!


Psoriatic4good
Psoriatic4good @psoriatic4good

Adam is also correct :)

Hide & seek is not the game here, You need to "embrace" what You are couping with, and then You can fine-tune it with foods, drinks and generally way of life.

I'll bet a bag of money that 1 hour of open talk to somebody about Your feelings, couping, stress and 1000 things that You do just so others are not "disturbed" can get Your psor better than 1 month of any that-will-instantly-heal-You substances.


 john,Hulk
john,Hulk @chewbacca

hobbies,interests help take the mind away from it ,for a while anyway :)


Janet
Janet @steadnz

Find what triggers your out breaks. remember its just fast skin.


maria
maria @inez

You are not alone. Uvb light treatment helped for a very short while, but it all came back again with a big bang! Was very disappointed


Claire
Claire @Jacko711

Beer really makes my psoriasis flare up... really any alcohol! Damn it!! I love to exercise and sadly having a partner who doesn't care really helps... it took me awhile to find him though!


 john,Hulk
john,Hulk @chewbacca

why i dont do light treatment, i gone natural route :)i have heard so many people clearing up from ubv and then it coming back worse,habit changes,eating habits, cut down alcahol . smoking it drys the skin out ,its a choice ,2 litres bottled water a day is a good one and cheap to do, it hydrates the skin, its a choice for all, if one wants to :)


 john,Hulk
john,Hulk @chewbacca

hello hoping,just beware of ubv treatment,i know it works for a lot of people and i seen them come here and say my skin is cleared then come back few weeks later and say its come back and got even worse.i dont want to put a downer on it as its a choice, i hope it works well for you and it keeps clear i really do, if i was religious i would pray for us all, i wish this was a magic wand in my hand. i will try using the force for you :)


Mrsjonesjnr
Mrsjonesjnr @Yendell

Yes John I've heard both ways that's it's cleared and come back and cleared and stayed away, so it's worth a try. Feel like I'm doing everything I can ๐Ÿ™๐Ÿผ


 john,Hulk
john,Hulk @chewbacca

thats great hoping, good one knows these things, i really hope it works for you.i am hoping like you :)


Lorraine
Lorraine @WillowL589

There are more then 1 type of light treatments. Some work better then others. The 1 that helped me in the past is where you have a psoralen bath first then go under the uv lights. It kept it away for quite a few years. Good luck hope it works for you.


susie
susie @martha

Hi I had the light treatment and it worked and completely cleared up. I was also warned that it can come back even worse. I had my light treatment over three years ago now and although my P has come back it is nowhere near as bad as it was before the light treatment.... so hold on in there ... there is hope


Mrsjonesjnr
Mrsjonesjnr @Yendell

That's great Susie, hoping it goes away and stay away.....looking at booking a trip to abroad for some real sun and sea โ˜€๏ธ


Stacymason
Stacymason @stacymason

Is it working u want tablets it didn't work for me sent my skin into bright red had to stop


MARTA
MARTA @marta

Dr. Pagano's diet helped me tremendously. I also did Food Intolerance Test and I am 99% symptoms free.


Harold
Harold @harold

Hi again. One of the best tips is follw the comments & posts on Flaym. there's lots of laughter, good advice and a sense of belonging. All the best with your treatment



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Mrsjonesjnr
Mrsjonesjnr @Yendell
Dover, Kent, United Kingdom





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