Kim
...feeling okay Kim @Foody

Treatment

Without mentioning Brand names. What treatments have you tried in your fight with the P? I have had steroid creams and shampoos, PUVA and now diet control.

26

Theme Diet and Psoriasis

Please don't include specific medical product brand names or external links.

26 responses

James
James @ferns

I'm just embarking on diet change, since joining Flaym. No one had ever told me it was a thing till I joined. Other than that, various concoctions of soft parafin and salicyclic acid plus steroid cream. Overusing steroid cream leaves the skin weak though so should be used with caution. There's also a shampoo obtainable over the counter in the UK but I found it less than useless.


Kim
Kim @Foody

Thanks James. Good luck with the diet.


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

i have tried so many ointments and creams,shampoos,uv lighting when i was a child,tried fish nettle tea,not nice,chinese creams,now diet, pretty much same as you kim :)diet/lifestyle changes work, all the other stuff dosnt for me :)


Susan
Susan @godcares

Back in the day Kim I think I tried it all... Loads of tar, used to sleep with a shower cap on my head with this grease crap on my scalp all night. Never could wash it all out. Pretty much all kinds of steroids and creams too. Diet/lifestyle/brain rethinking all helped me to get where I am... cream and drug free.


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

haha, takes me back susan, i used to becovered in crap and hadto wear gauze dressings all over me and try sleep with allthis crap on,i had the gauze on my head aswell,stunk coaltar,i dont know how i managed to sleep, i did look like a mummy,when i watched horror films with egytion mummys,that was me :)


Susan
Susan @godcares

John, yeah a mummy. That's what they did in the hospital when I went decades ago. Cover you up with crap and wrap you up. We all sat in a room all day watching TV looking ridiculous. LOL


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

haha susan,yes, i know been there, unfortunately i was bed ridden for a month each time i went into hospital,probably didnt want me to do damage to myself by walking . i did get wheel chaired around though which was ok, that was 1979 and 1980 it was bad :)


Nan195
Nan195 @lynnie

For me one Ointment has worked wonders on my P as well as cutting out the triggers that cause a fare up.
Diet has been a bonus...thanks John 🌹😀


Phil
Phil @padavis

Try biologics. They work wonders


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

your welcome nah 195, not just me though putting out the word but, i thankyou very much :)


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

hello phil , i know they work wonders and i understand people wanting to take them but,if you have to stop them,your old friends come back,it is a choice though :) do you need to eat properly with these biologics or can you eat crap and they still work? i did ask this a while ago, someone said you have to eat sensibly ? thanks


James
James @ferns

For the record, for anyone using scalp creams or ointments, I too tried shower caps, plastic pillow covers etc. I just couldn't get along with them so I just went to one of those Pound Stretcher type shops (Dollar General if you're in the US) and bought a pair of cheap pillows, used them for the time it took then binned them.


Sarah
Sarah @sarahuk

For me, all manner of creams, lotions, ointments, acupuncture, and now diet changes


Kim
Kim @Foody

I'm guessing not one dr said.. Why not try diet before we give you these disgusting smelly creams!!!!
Thanks all!!


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

nope, they dont kim,i remember diet was dismissed from doctors when i was child,i remember my stepmother said that to me also, different time and they still dont like it when you mention diet changes to them,i was border line of arguing with a doc(not like me ) not too long ago as he didnt want to accept it though,he was ok after and said,if it helps you then thats good , he was after my money for scripts :(hes the one who put me in for my gluten intolorance test,funny just realised,they give me a different doctor now for anything,i wonder why :)


Kim
Kim @Foody

I don't understand John why Drs dismiss diets. I don't think it's just about money, I'm sure a lot is to do with old literature on our condition.


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

hello kim,i joke about that side of it with money with doctors,its because of their lack of knowledge of diet/lifestyle as they are not trained in this area,a lot of people go to nutritionists to help with diet etc as they should have knowledge of route causes to some problems, i would think anyway?we psoriatics are difficult in a nice way because whats good eating for most isnt for us and we are all different on what may effect us,


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

i looked on thenet a long time ago for diet for psoriasis and there was a lot of things that came up ok for diet with p and i questioned it here,seems why we have to give up near everyting for the perfect p diet,some sites said oranges weregood for us, we know they are citrus and mushrooms aswell though some say they are good with these :)


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

we know citrus fruits are not good for us,some sites say they are and some are ok with mushrooms, been told they are a no no, why i gave them up


Kim
Kim @Foody

I know what you mean John. One diet I saw recommended all fruits including citrus in abundance.
It's funny you mentioned mushrooms: I was looking at my hands this morning wondering why they are so bad when I haven't had any wine for almost a week and then I saw your post about mushrooms. I have had them three times in the past week although I don't normally have them on a regular basis. As you know I react very quickly to what I eat so it look like I have found another trigger!!! Thank you John!!


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

hello kim, i never thought they would be aproblem in the begining,then a lot of people mentioned about them i was eating a lot in salads etc,i havnt had them in months,be interested to know if it makes a difference to you in time cutting them out?have a good day, nice and warm today kim, i am off for the beer festival, my last for 2 months, i will milk it today(not drink milk thats bad for p),i have had my 3 litres of water and my vegaterian meal so,i am ready to have a good eve with friends, have agood evening all,see you all tomorrow :)


Susan
Susan @godcares

Kim and John I do think the reason doctors don't tell us stuff abut diet is that they know a little about alot of things, but not alot about everything. Hence the need for specialists. However, I think we forget that really, they work for us. It is our responsibility to be the boss of our temple. Ask questions, get referals, do our own research, join sites like this... yada yada. They don't get a ton of education in school. My own doctor, whom I think is terrific eats and exercises very healthy and it has nothing to do with his schooling. Just his own research and he, himself, has referred me to thee healthfood store in the past. For example he recommended a probiotic from our local healthfood store as the one that his own family takes.


Susan
Susan @godcares

James good for you. Our skin really shows alot about what is going on in our bodies. Look up restoration of gut health. Also look up Moringa. My suggestion because my psoriasis is pretty much gone. Steroid creams of 45+ years have destroyed the thickness of my skin and have no idea if that will ever repair itself. I've often wondered what's going on with my organs inside. Hmmm. I don't eat sugar, bread, pasta, potatoes, and eat any fruit I want but only a bit each morning. Today I have 1/2 and orange with my protein powder whey shake. Sugar for me is like poison.


Kim
Kim @Foody

Have a great time John.


 john,Chewweeeeee
john,Chewweeeeee @chewbacca

thank you kim, was a great day :) susan, yes, you are right , why you do have so many specialists out there for different things,when i saw this new doc about my hurnia, i had a chat about psoriasis to him,he was impressed on what i was doing, i said you treat symptoms and not route cause of this disease, he agreed,i am trying to treat the route cause to help my joints and my skin with improvements now and that i am a healthy weight,you have a very good doctor susan and he listenened to you and uses that to help heal people which is great,my friends girlfriends doctor dismissed any connection with diet not too long ago and said,she needs the injection in her knee and diet will not help,she has psoriatic arthritis , my mate came back to me looked at me odd and questioned what i was saying i said, he treats symptoms and not route cause,thats his job what he knows by the way,shedidnt stick to the diet, i know she hasnt,her choice,she wants injections every 2 years and have problems,its her choice, i know what works :)


Harold
Harold @harold

I've found an inexpensive coal tar cream which has a very low odour works best for me. I've been using it successfully for a few years now.



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Kim
Kim @Foody
London, United Kingdom

Have been a flaker for 48 years. I'm happy in my skin. Please don't message me, I will report you.



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