04 Dec 21:26
So I’m to the point of tears tonight refused photo therapy due to prickly heat. In so much pain and infected elbows.. feeling so low
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04 Dec 21:29
sorry to hear this emma, have you thought of diet ifestyle changes?this can help in the long term but, its a choice though a choice for everyone, i hope you get better sorry about this
04 Dec 21:32
04 Dec 22:17
So much pain... hate thus freaky disease.... #why me? Or any of us
04 Dec 22:53
I’m so sorry for your pain. Sorry for all of our pain. I only work so this terrible disease would have some kind of cure. Waited n for diet change to kick in can be an impossible wait. Some days I feel ok, most I feel just lousy lousy lousy.
05 Dec 01:55
Aw Emma :( I am sorry to hear that. It is not an easy journey. Try and reach for those better feeling thoughts--those things for which you are grateful. It can be hard, but try doing something for *you* that feels good. Have you been to your gp or derm. lately? Perhaps it may be time to switch up meds? Highly recommend a 6-8 week elimination diet to get relief. I was at my breaking point when I first did it and by day 2 the pain was reduced. Hope you feel better soon!!
09 Dec 21:57
Hi Emma, I’m so sorry for your pain. Have you ever looked into natural/holistic treatments? I truly believe they work, it’s just trial and error.
09 Dec 22:00
Hey I didn’t refuse it I was refused by the dermatology
staff due to a reaction from the machine causing more pain x
09 Dec 22:05
I am so at breaking long I can’t cope with this and so much lack of sleep and constant pain... feeling sorry for myself. Sorry to moan 🙁
09 Dec 22:13
sorry about this,thats part reason this site is for emma to vent it out aswell as to get some help/support etc with this ,i hope things will get better for you
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