Beth
...feeling frustrated Beth @jvbs

Coping, treatment

I'm fairly lucky, as far as skin psoriasis gets, it's on one foot, my knees, elbows, and scalp, but it's the psoriatic arthritis that gets me! I am so tired of the pain, stiffness, and the constant necessity of medication for the rest of my life.

11

Theme Psoriatic Arthritis Scalp Psoriasis

Please don't include specific medical product brand names or external links.

11 responses

 john,Hulk
john,Hulk @chewbacca

hello beth,i made mine better with diet/lifestyle changes , it does help, i have never taken medications for my arthritis,i changed my diet 10 months ago and my joints were the first i notice get better,it is a choice though a choice for everyone, i wish you well thanks


Beth
Beth @jvbs

I am glad you found something to help with out medication. I wasn't diagnosed until there had already been some joint damage. I tried changing my diet for 6 months to a Mediterranean diet, but neither my dr nor myself noticed any change. I've tried a couple other alternative treatments, but nothing has made noticeable change.


Laura
Laura @laura1973

Some things that helped me prior to the medication now... tanning once a week, especially in the cold months. Also I found a very basic coconut lotion. I put it on 2. Times a day, without fail. I practiced yoga and meditation. No chemicals or scents on as much as I could. I ate a calm low fat diet. These types of things helped me for over 20 years. I think you try till you find what works.


Lynn
Lynn @lynnb366

I hear ya and feel the same way. Sometimes it feels like the meds aren’t even helping but according to my bloodwork they are? I don’t get it and it’s frustrating. Hoping and praying that a cure is found one day soon, until then I guess we just keep doing the best we can.


Lynn
Lynn @lynnb366

Hi Laura, I also will not use perfumes or anything scented unless it is all natural, organic (no chemicals). My skin has been clear for about 4-5 years but it’s the psoriatic arthritis that I have a problem with, I believe Brth has the same.


Laura
Laura @laura1973

Psoriatic arthritis is very challenging. A few years back I had to move to medicine because my feet and hands started to deform. After using the medication, my arthritis is significantly under control. The spasms from the strained and tightened tendons is the worse for me. However depending on where the arthritis is effecting that day, my answer can waiver. I’m am glad that we all have each other to bounce ideas around.


Lynn
Lynn @lynnb366

Absolutely, I’m happy to have everyone here to chat with as well. Hoping I can help any one as much as they’ve helped me. I’ve tried so many different meds, creams, injections, exercises, diets, therapy, tanning, it’s just never ending.


Laura
Laura @laura1973

I know how frustrating this journey is. I am so sorry it’s hurting you so much.


Susan
Susan @godcares

Beth sorry to hear that. If you want to try the elimination diet send me a message. Believe me, I was in so much pain in my 20's and am now drug free. Thank God.!


Diane
Diane @diane1968

Well I started the meds yesterday, a little nausea but nothing too significant. However, today I’ve been totally out of it, slept right through the night till midday, awake for two hours then asleep for another hour. Hope it’s not going to be like that every week.


Beth
Beth @jvbs

My biologics are every 6 weeks, but I don't have symptoms like that. I hope it improves for you.



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Beth
Beth @jvbs
Cortland, NY, United States

I am a daughter, wife, mother, grandmother, and great grandmother. I do a multitude of arts and crafts, everything except scrap booking and quilting, and I'm going to try quilting soon.




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