Rachael
...feeling sad Rachael @rachael21

Looks, coping, treatment

This is my first post here and don't know where else to turn. I'm 21 and have psoriasis on my scalp, in my ears, my nails, all over every part of my body, even my face. I don't know what to do any more ☹☹

24

Theme Psoriasis in the Ears Psoriasis on the Face Nail Psoriasis Scalp Psoriasis

Please don't include specific medical product brand names or external links.

24 responses

steve
steve @beachbum

Hi Rachael, very sorry to hear about your struggles. I had psoriasis for many years. I had patches on my legs torso and arms. My knees and elbows wee always a mess. It was in my ears and both toe and finger nails were a terrible mess. Last summer I started making my own kombucha adding pineapple, ginger, and turmeric juice in the second ferment and I believe it cured me. Other people are also reporting improvement consuming turmeric. If you lived in Houston, I'd supply you with some of my kombucha, but I'm guessing you don't. It's not hard to make and it you try it for three months, you may find yourself psoriasis free.


Geraldine
Geraldine @geri18

Hi Rachael im quite new to group too Sad another young person has to battle! I have ear and nail psoriasis its crap, do try Steve's suggestion as it is great stuff if I lived in Houston I would be buying his mix! Sounds great!
I'm sure now you are reaching out
You will find comfort within the group for support and idea's and make your journey not such a lonely frustrating one, so it's trial and error kind of decease.😀


Cherie
Cherie @cherie2

Welcome Rachel what products or diet have you tried.?


Rachael
Rachael @rachael21

Hi Steve, I've never tried anything like that, do you think that's really worth a shot? I could always make my own...


Rachael
Rachael @rachael21

Cherie, I've never really tried a diet but I think I've had about every steroid cream, body wash, shampoo, scalp application, ear drop, ointment and lotion my doctor can think to give me but nothing seems to work. The only effective thing has been steroid creams when applied regularly but I don't want to rely on that, I want something a little better for my skin and that I won't become that dependent on and can work into my life instead of spending 2 and a half hours a day applying creams ☹


Cherie
Cherie @cherie2

Moo Goo range of skin products?


Ruben
Ruben @ruben

Hey Rachael, welcome to Flaym!
I started taking some supplements containing Vitamine D and curcumin (active ingredient in trumeric) after reading some posts here. I've been taking a small amount on daily basis and after little over a month I still see improvement. Will check to up the daily dosis and also want to try Steve's recipe for kombucha. As I banned alcohol completely (one of my triggers next to sugar) it would even be great to have something extra as a refreshing drink.


Rachael
Rachael @rachael21

I've never tried that Cherie! I'll have a look into them, thank you.

And Ruben I don't think I've worked out what my triggers are yet... I think the main one is stress as that's the only time I've noticed it flare up. I've been looking into vitamin D supplements a bit lately so will see if I can get one with curcumin included! Thank you so much


Ruben
Ruben @ruben

I found the combination of both on the myprotein website.


steve
steve @beachbum

Hey Ruben, just FYI, but kombucha contains both alcohol and sugar. The SCOBY is a symbiotic colony of bacteria and yeast. You are brewing sugared tea same as sugar is used to make alcohol. Store bought kombucha is limited to 0.5% alcohol in the US, but home brew tends to be higher. The US Food and Drug administration forced the removal of kombucha from grocery store shelve several years ago because they were finding alcohol ranges 2% or higher. Now all the manufacturers work to precisely control the alcohol content. If you make it yourself, you will likely exceed 0.5%. How much sugar and how much alcohol is in the final brew depends on fermentation time, but there is definitely some of both. However, I would not discourage you from trying it for a month. The fermented turmeric, ginger and pineapple may cure you where sugar and alcohol are no longer is a problem. You can also make kombucha with honey, it's called Jun. It uses green tea and the SCOBYs are different as well.


steve
steve @beachbum

Hi Rachael, I think it is definitely worth a shot as I'm pretty sure it is what cured me. The downside is there will be a bit of an initial investment if some juicing and brewing equipment. The upside is you may be psoriasis free for life. Let me know if you want to try it and I can help you more with the equipment and process. Which country are you in?


Sarah
Sarah @sarahuk

Hi Rachael! Welcome to Flaym, so glad you found us here! I joined Flaym last year when I was 80% coverage of guttate and plaque p and was prescribed immunosurpressant drugs. I didn't want to use them and came here looking for advice and tips, and found so much info and support here! Don't know what my coverage is now as I haven't been to see the dermy in a while but I know it's much lower than that now! I've done vitamin d analogue creams (non-steroidal) for only a couple of weeks, introduced oil soaks for my scalp, found the Aveeno moisturiser range, and changed my diet. It has all come together in combo to help me out massively! I am no longer flakey, and my itch is right down to low, along with my coverage of active p. What type of p do you have?


Rachael
Rachael @rachael21

Hi Sarah! I also have guttate p EVERYWHERE. I'm not sure what % I'm covered as I've yet to actually be referred to a derm... I may give the Aveeno range a try, I've always been wary of off the shelf in case there's a little thing in there that irritates!


RedSpotEliminator
RedSpotEliminator @redspoteliminator

HI Rachael - I agree w/Ruben - Vitamin D and Curcumin are good supplements to take. But you also need to add more fruits and veggies to your diet. Try kale, spinach, watercress, strawberries, kiwis, broccolli. Also, if you drink, stop. If you smoke, quit. And if you eat a lot food with excess sugar, cut that out too. And do you exercise regularly - studies show for women that it can be one of the best things to do for reducing psoriasis.


Kathy
Kathy @kathy9150

Sorry to hear your P is so bad right now. If you had insurance see you family doctor and insist on see a dermatologist. But, for starters take Vitamin D 5000 units. Stop drinking, quit smoking. I have found shell fish cause me trouble as well.


Smitty
Smitty @smitty

Hi Rachael, Definitely cut out alcohol and smokes before anything else. The thing that turned everything around for me was UVB light treatment. It’s a bit time consuming but if you can make a trip to the doctor 2-3 times a week for 15 minutes, it is perfect for guttate.


Rachael
Rachael @rachael21

Thanks every one, I appreciate all the advise! I'll definitely take it on board but if I'm honest I think I'm just going to have to put up with any flare ups caused by diet, I'm way too fussy an eater and set in my ways to do that kind of thing!

Kathy, I'm in Scotland so thankfully we have the NHS and I think I'm definitely going to insist on seeing a derm and asking about UVB treatment!


Mark
Mark @Mustang

Hi Rachael: I had it on my scalp (and other places). I was prescribed a scalp shampoo and a scalp oil [...] I think it was called. It did help after a month or so... but Dr. said not to use over long periods of time. My scalp psoriasis cleared up completely, although I now have it on my palms so can't play tennis, etc. It comes and goes, don't loose hope. Best of luck.


 john,Hulk
john,Hulk @chewbacca

hello rachael,iknow the feelings being a lifer since birth, i changed my diet/lifestyle and my finger nails are normal, my joints are better, scaling has reduced, try if you can and want to, drink 2 to 3 litres of bottled or filtered water a day, look at your skin over time ,worth a shot , i wish you well


Michele
Michele @michele2819

First and foremost find a great Rhematologist. You may have to go to a few before you finally a good fit for you.


Shreekant
Shreekant @shreekant

I never drunk, never smoke.
I am unable to find out the reason of P.
suffering since childhood.
Excess formation of skin on all the parts of body along with on nails and scalp.
I am vegetarian and from India 47 yrs old.
Could anyone suggest any thing to cure it...

Shreekant
[...]


steve
steve @beachbum

Being from India, is there a lot of turmeric in you diet?


Cheryl
Cheryl @cheryl92169

Definitely try the dietary suggestions even some of them - for me reducing bread and nightshades helps and I don’t use any prescribed meds so I know the diet is what is working.


steve
steve @beachbum

I still eat my homemade sourdough bread.



Sign in to view all responses

By signing up, I agree to the terms of use, privacy & cookie policy, community guidelines and subscribe to email newsletters from Flaym.

Signup with Facebook


Why do I need to sign in?

Flaym is a supportive psoriasis community that depends on everyone being able to pitch in when they got something to share.





Rachael Never miss a post from Rachael, when you
sign up for Flaym. Learn more
Join our community