06 Feb 11:59
Coping, treatment, healthcare system
Would you take a prescribed pill every day to avoid flare-ups? Even when you don’t have any symptoms?
Please don't include specific medical product brand names or external links.
06 Feb 12:05
Yes I would ...............
06 Feb 12:06
Yes, provided there's no side effects.
06 Feb 12:16
06 Feb 12:17
Already take 4 supplements, in a heartbeat!
06 Feb 12:26
06 Feb 12:27
06 Feb 12:33
Mmmmmm....that fence post has given me a splinter!
06 Feb 12:42
The problem is. If you don’t take your pill everyday it flares up. And is worse.
06 Feb 12:51
06 Feb 12:55
06 Feb 13:38
Yes I don't mind
06 Feb 13:39
No, I would not. Now that I am 70 years old, over the years I have learnt that taking long term prescribed tablets or ointments have caused me to have other unrelated health problems that I am now stuck with and still have the original problems that I took these drugs for.
06 Feb 13:40
Oh yes definitely. Imagine that. I can have peri peri chicken, steak with onion and avo atop, macaroni and cheese. Maybe 5 glasses of wine instead of my 4 on a Friday. lol. I would love to have a pill like that.
06 Feb 13:45
I take 10 once a week .And do it even when my skin is clear.
06 Feb 13:53
Depending on the side effects
06 Feb 13:56
It would depend on the ingredients and side effects for me as well.
Should there be any side effects then I won't take the pill, but otherwise, I'm open to try it.
06 Feb 14:10
06 Feb 14:59
06 Feb 15:09
No pills...I am VERY chemically sensitive...Everything I eat or drink or breathe has to be natural...
06 Feb 15:48
Definitely although I'm having some good success with a pill that contains a combination of turmeric and cayenne
06 Feb 16:00
Oh...I guess when I think of pills, I think of drugs...lol...I take lots of supplements...I would never survive without my supplements...
06 Feb 16:58
06 Feb 17:32
Well, since I am in remission now, I wouldn't start taking another drug as an extra insurance process against it coming back. It would have to come back for me to start a new drug. But I will continue drinking my pineapple, ginger, galangal, turmeric elixir daily with no concerns.
06 Feb 17:35
Without a doubt
06 Feb 17:39
06 Feb 17:45
No I would not, as I don't think there is one.
06 Feb 17:47
06 Feb 17:52
It would depend on any possible side effects
06 Feb 17:54
If there was one with no side effects and it cleared it all up with no worries, i be silly not to, its my daily thing to spot,flake watch and keep on top of my areas that can annoy me,i would want an easier life though i dont have it bad, its a nuisance and always has been, it could be worse though so, i am lucky to a degree :)
06 Feb 18:03
Only if I have symptoms or expecting a flare up. I take enough medication for other things as it is.
06 Feb 18:12
I have just been given a prescription for one. We will see how it goes!
06 Feb 18:15
No. LI have decided to ignore it.i think [...] might be giving me other problems. I wll let you know when i have consultecd my dr. Aveno is ok.
06 Feb 18:18
I did that for about 8 months it was wonderful but the dermatologist said I could not stay on it and it did have side effects. So I stopped it and cycle on for a short duration as required.
06 Feb 18:23
06 Feb 18:35
I think that's hard because then I'd never know if / when it had cleared up and I didn't need the pills anymore...
06 Feb 18:41
Yh what isit
06 Feb 18:53
It would depend on side effects. I have issues with medications and supplements, so am pretty careful. After being up half the night with the itchiness, I often wish there was something that would take care of it without the nasty side effects.
06 Feb 18:56
No side effects, hum...... what will it be called? Miracle pill? To my knowledge there’s side effects in everything. 🧐
06 Feb 19:21
No, mainly due to the fact that there are usually more possible adverse side effects than benefits to most tablets. Just my view.
06 Feb 19:31
06 Feb 19:38
definitely! meds to avoid high blood pressure, depression, pain, so why not psoriasis
06 Feb 19:56
maybe. depending on the side effects. I mainly struggle with my scalp so I know I am fortunate compared with so many.
06 Feb 19:59
It is a corticosteroid
06 Feb 20:14
every cream we use has side effects, the stronger the cream
the stronger the side effect. Most pill side effects are mainly at the start of taking them, so thats why I said yes.
Anyway, if there was a miracle pill, it would, miraculously, not have any side effects🤣🤣
06 Feb 20:36
This is a good question. I think for me it would depend on the side effects of the medication.
06 Feb 20:54
Bloody right I would
06 Feb 21:19
06 Feb 21:21
I most certainly would of depending on the side effects
06 Feb 22:21
It is interesting that many will readily take a pill. I believe I was cured through juicing and consuming natural fruits and roots. But few are interested in trying what worked for me. I guess it's due to the effort involved. It's too bad as many could be well on their way to remission by now. I can't even find anyone locally to just try it for a returnable bottle deposit for a month. I was tossed from a FB group because I think they considered that selling it.
06 Feb 22:38
sure but you have to describe it if you think you have one
06 Feb 22:47
Steve, I would be very interested in more exact information on how you used juicing, etc. I am retired and would certainly be able to put forth the effort. And I have a fantastic Omega slow juicer already...just haven't used it for a couple of years.
06 Feb 22:48
Yes I would, provided there are no side effects
06 Feb 23:13
If anyone is interested, go to my profile page, scroll down to the first post and read all the comments. It's all there. There are videos on youtube that give good demos on how to make your own kombucha and jun. I like the ones by Kendra Lee. After you brew it, you add one part juice mixture to three parts brewed kombucha then second ferment in the bottle for a week before refrigerating. I use swing top bottles. For the juice mixture use fresh pineapple, ginger, and turmeric, not powders. I juice the whole pineapple including the skin. I don't peel the turmeric or ginger either. I just wash the surface of all with a brush. Mix either 3/1/1 or 6/2/1 pineapple/ginger/turmeric. Go with the heavier turmeric if you are cool with the taste. Drink 32 oz a day and in a month you could see significant improvement in your psoriasis with it even disappearing in three months. If you can find it, also juice some galangal, but you probably won't find it.
I would only willing to try the pill if I needed it and nothing else was working. Steve, not everyone reacts the same to meds so how do you know everyone would react the same to your kombuchka (spelling wrong)/juicing?
06 Feb 23:24
I would love it, but first I need to get my under control, onto 4 th bio and still not workung.
06 Feb 23:31
Lynn, I don't know, but I do know there is a lot of evidence supporting turmeric, ginger, and galangal all have anti-inflammatory properties and auto-immune preventive properties. There are hard scientific studies that show turmeric and galangal to inhibit NF-kB in your cells, which is believed to be a factor in inflammation, auto-immune diseases, and cancer. There are studies that show turmeric and galangal may be more effective in treating some cancers than chemo and other cancer drugs. So all I can tell you is their is evidence their if you look. It may not work for you, but you will never know until you try. You could be a month away from drinking a refreshing beverage that may cure you of psoriasis and keep you cancer free for life. It's up to you if you want to invest the time in finding out.
07 Feb 00:09
Steve@beachbum, sound good, my only problem in trying it is the expense required, and then, lack of space
07 Feb 00:12
Susan, I also use an Omega. Mine may be a bit newer, but they are tough and will handle galangal and lemongrass which caused failure of my prior unit from a different company. All juicers tend to clog a bit with pineapple, but the Omegas I have experience with clean in a few seconds to resume quickly.
07 Feb 00:27
Absolutely, been on Biologics for 10+ yrs. what do I have to lose :)
07 Feb 00:55
Yep Xtrashot, space and equipment costs are issues. Understand. If you make Jun, you can do it in half less space as it brews in a week versus two. But it is more expensive to make. But heck, I can't even find someone in Houston to give it away to. As I said, I got booted from a FB page because I told a woman wanting to try that I would only need a refundable bottle deposit.
07 Feb 01:37
I'm not sure!!
07 Feb 02:56
Yes without a shadow of a doubt if there was good scientific facts that it was reasonably effective and safe I actually dream and pray for such a pill
07 Feb 03:23
All meds have side-effects and I'm looking for a natural cure.
I hate pills.
07 Feb 04:46
Steve the thing is, it really isn't costly. I think I spent about $15.00 on my glass container. Got the scoby for free from a friend by posting me need on facebook for a scoby. The rest of the stuff was under about $10.00. Doesn't take up any room really. I will bottle it in glass canning jars that I already have.
07 Feb 05:23
Yes, I am on one now, but only minor abdominal side effects. Works like a charm. So wonderful to walk without my feet splitting. Helps my psoriatic arthritis, too.
07 Feb 05:31
There is a prescription pill that you take 2 x a day, and it takes a full 4 months to get the full results. I have been on it for 5 1/2 months, and if I take it with food, I get almost NO side effects. It can cause diarrhea, nausea and headaches, but I hung in and I do not get them anymore. My feet are like normal, and they were awful before. No more cracks, bleeding and scuzzy looking feet, and it helps my psoriatic arthritis, too. It’s not a biological, and it feels like a miracle.
07 Feb 07:57
07 Feb 11:48
What’s it called??
07 Feb 12:39
Chances are that if a pill like that existed, there would be a TON of side effects, so no thanks.
07 Feb 13:09
And there are several cases where serious side effects were not discovered until years after the drug was FDA approved and in wide spread use. So how would you know when you started taking it. Look at the one Dorothy Hamill used to advertise.
07 Feb 13:20
Only point I'd make Susan is you are doing it very differently than me and if I were a betting man, I would bet you wouldn't get the same results. The main reason I think that is the form of turmeric you are using. From what I've read, the bio availability of curcumin in turmeric powder can be quite low and vary brand to brand and batch to batch. With health fresh juiced turmeric, you know you are getting a good dose and it's been fermented and preserved in kombucha to help. I also don't know how much bromelain you get from your canned pineapple. To replicate what I do, you need a juicer and they aren't cheap. The Omega I use now to process galangal was close to $400.
But as you are in remission anyway, you won't really know how effective it is for you. Same as me with galangal. I will hopefully never know the impact, But from what I've read it should be positive.
07 Feb 13:56
Noooooooo. I hate taking any “developed drugs”, and if I didn’t have PsA I would not take anything for the Psoriasis. I am on new med and have a half a dozen side affects going on😉. I got the epidemic flu bug right aft
07 Feb 14:03
After Christmas and was prescribed a well known flu med. I only had a high fever, headache and body ache , but 3 days into take the meds I developed a bad bloody nose, vomiting, diarrhea, and I thought I needed to go to the hospital, which I didn’t because the hospitals were overrun with sick people. About 3 weeks later (which is how long I felt sick) I looked up the side affects of the flu meds and it was all there: bloody nose, vomiting, diarrhea, etc. I couldn’t believe that something that was supposed to make me better made it so much worse.
07 Feb 14:11
No. That's one thing I realized not good to take pills ! Its better to try to relive stress in your life then to take meds for it.
07 Feb 14:22
I agree Geri. I have never taken any pills or biologics for my P apart from the ointment I use. I try to live a healthy life although the food is boring at times but hey...that's why there's a nice restaurant around the corner where I go to every 2 months. I need some bad food in my body too. lol.
07 Feb 15:05
I got ya !! It’s hard to eat better when hubby is a meat and potatoes kind of guy but trying to do what I can ! If I can walk more I know my stress will be better ! I do want my hair to grow in the front thou. I would feel better if that happens.
07 Feb 16:05
Steve thanks for the advice
07 Feb 17:12
I sure would with no question. Providing no side effects.
07 Feb 17:31
Hello gail , sorry to hear this about your illness, i been very ill also,i dont have the jab as what they do, they give you the virus to build up your immune defences against flu etc, seems ironic that you take the medication ie injection to avoid getting ill and it makes you ill,dont know if it has an affect more with us psoriatics?, i had a flu jab years ago and i did not feel well either so, i rather not have it
07 Feb 18:19
Yes anything that works
07 Feb 19:35
Yes I definitely would!
07 Feb 19:56
Injection once a fortnight is easier Flaym
07 Feb 21:02
I have been prescribed an anti inflammatory for 30 years. I recently had to go off them because my blood pressure was extremely high, I had ECG st changes, and 3 small ulcers in my stomach, my hgb was 91. I wish I had taken a different approach.
07 Feb 22:42
yup..In a heartbeat
08 Feb 02:32
Hi again, all supplements are medications—even if they are over the counter. They have side effects, too. I am an RN, and as someone with psoriasis, I am aware of side effects from prescribed meds and supplements. They are NOT ALL HARMLESS. Before you take them, check with a doctor and/or pharmacist and make sure they are safe for you — especially considering other ailments you have and remember, they have to be okay with any other meds you take for anything. Not everyone gets side effects from every medicine — it is VERY individual.
08 Feb 02:47
I guess you could say everything you eat or put on your body is a supplement and therefore a medication. If I eat a lot of fish to get Omega 3, is that a supplement? If I put pepper on my food for pepperine, is that a a supplement? If I juice turmeric is that a supplement? If I juice oranges, is that a supplement? I eat chocolate for the cacao benefits, is that a supplement?
08 Feb 03:20
I would try anything to help mines
08 Feb 10:36
Hi Geri .. Im in the same boat ...also wish my hair could grow back in the front ...seems as though that's the common place for hair loss with scalp P ...although some people say P does not cause hair loss.. once again it affects everyone differently ..I suppose the chemo meds add to or is the cause of the hair loss ..
08 Feb 13:48
Ellen I'm betting the chemo meds are more the culprit. I do know I had hair loss when I was really young but that was because I would pick these literally scabs off my head and hair would always come out. It was just something I did as I was a "picker"....
08 Feb 13:52
Sounds so like me. I try not to do that on my hair line. It’s a very bad habit for sure
08 Feb 18:17
Steve, technically, spices and herbs are supplements, whether you cook with them or just juice them, and YES, they can help OR cause problems. We usually do not run into trouble with normal food recipes, because of the amounts used to season as opposed to when you take a larger and more concentrated amount. You can mock what I say — I don’t care — I was just trying to be helpful. Ignore me if it makes you feel superior...
09 Feb 03:24
Crap Steve! Can you just make a trip up here and do my Kombucha for me!!! LOL. Not sure how it's going to turn out but It sure does smell good. You can smell the fermenting as soon as I walk in the door.
09 Feb 06:48
Susan I am also a picker...guess that's the main reason .. every opportunity my hands are in my hair ...very baddddd... when there's an itch I find a scab .. so out it comes....
09 Feb 15:04
Ellen what is it with picking... LOL. My daughter is as are many of my friends even if it they don't have psoriasis. My son NEVER picks.
09 Feb 18:22
I have trouble with picking, scraping. I have to tell myself to stop. I have an area in my hair line I pick at all the time.
09 Feb 18:25
I do and it is a tremendous weight off my shoulders.
10 Feb 04:00
Yes if there were no horrible side effects and I could afford it.
10 Feb 18:00
Yes I would.
11 Feb 20:28
I definitely would, I don’t want to experience this anymore...
12 Feb 10:29
12 Feb 11:32
12 Feb 17:05
12 Feb 18:47
In a heart beat! And pray for no side effects!
12 Feb 19:56
13 Feb 05:10
Sure if there is no side effect.
14 Feb 02:56
No way... Healing my immune system first....Gotta try...
14 Feb 06:18
Clean eating vitamin c plenty of water. One spoon of black seed lol with honey everyday has stopped my flare ups. Just a matter of time my skin goes flat and stays smooth. Try it guys x
14 Feb 09:31
Hi Monuhor. I will definitely try the black seed. Wonderful to hear about the skin smoothness. Thank you!
14 Feb 13:50
Monuhor, I've heard about health benefits of black cumin seeds. I read somewhere that they should be heated for maximum benefit. Do you heat them or just eat them plain? I've also heard of people taking black seed oil daily too.
17 Feb 07:13
what kind of black seed ?
10 Mar 07:58
10 Mar 08:15
I would do almost ANYTHING to get rid of this S****T!!!!
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