22 Feb 11:54
Rheumatology appointment today. He shook his head at me when I mentioned diet and offered me drugs instead, which I refused. Next step: all joints checked with ultrasound.
Please don't include specific medical product brand names or external links.
22 Feb 14:03
It’s disappointing when they don’t even want to work with you to see if diet would help out first. Ugh. Hang in there
22 Feb 14:13
Good for you Kim. Hope everything heals up nicely and quickly for you. Rheumatologist do not think diet has anything to do with autoimmune dis-eases.
22 Feb 17:27
Hello kim, yes it was the same for one of my friends gilrfriend,she has psoriatic arthritis in one knee,she just flakes from the scalp though i have never seen it flaking , i said to my friend about diet changes and he mentioned it to the guy giving her an injection in the knee,he dismissed it of course and when i saw my friend a few days after he did look at me very odd as if to say, what do you know ?whilst i was sipping on my inflammatory beer , she hasnt changed on what she eats and drink etc and i know thats a choice, i hope all is not bad kim, i got offered drugs years ago, i did for a while then stopped them as they made me sick, i have managed well without them thankfully, be good to know the results of the ultrasound , take care kim
22 Feb 17:50
Thank you for your comments. The consultant who performed my injection thinks it's wear and tear but the rheumatologist assumes it's Psoriactic arthritis and barely glanced at my X-ray results from last week. Will let you know how the ultra sound goes. I am not taking drugs, I would sooner cope with the pain.
22 Feb 20:15
Wow, thanks for reminding me why I have zero faith in the medical profession.
22 Feb 22:19
I havnt seen a derm or doctor regarding my psoriasis since 1985 as i knew there was nothing they can do for me as there is no cure, healing it for better yes its possible and i have seen some good results though i wish in certain places it
would leave there and go on other parts of my body but, i know no different as its always been there but not severe since childhood so, no i dont have faith in them either to help me but they can help severe cases if they want to meds for it , possible side effests though that is a choice a choice for everyone and i can understand that as none of us wants this
23 Feb 03:24
john me too. Not even my regular visits to my GP have anything to do with any autoimmune dis-ease. Had to figure out for myself how to get healing. Oh well.
RSE I agree. We have to take our health into our own hands, and work with the doctors vs for them.
23 Feb 04:11
Yeah I've had enough of these so called health professionals who work for the pharmaceutical industry. I refuse to take any medication now. There's plenty of anti inflammatory foods just takes a bit more effort than swallowing a pill or getting a needle that only give you side effects and don't do anything because as soon as you stop taking them you're back to square one.
Let's just help eachother here and advise and try natural things that give relief.
23 Feb 05:13
It is quite sad when the most natural thing we can do for our bodies gets overlooked. Good luck with your next appointment Kim!
26 Feb 02:54
When i went to see my rheumatologist he told me I would wind up in a wheelchair in 5 years if I did not take biologics. I almost broke down. However at the second appointment, the nurse told me that at the last conference she went to there was a specialist who told them that eating less gluten and more vegetables were the answer. She told me that it was my choice. I chose the latter. 😊. Best decision
26 Feb 04:33
What a b#*>"*d agb! Imagine a healthprofessional saying that to anyone. Makes me furious. I.s.o. going through the alternatives.
Yeah that's why I don't believe in them. Bloody so called 'specialists'!
Yep lots of fresh fruits and vegetables. and whatever diet works for you. Well done agb! 😊
26 Feb 08:14
yes. well they want you using meds a lot of them, keeps them in jobs, healthy people are no good to them :) doctors are happy to dismiss diet/lifestyle changes though one doctor did say, if it helps keep doing what you are doing, plenty of sick people to go to him so, he wont run out of those ,wont make much difference if myself as one extra cant make it to him :)
26 Feb 14:03
agb many of us are steering away from the medical community. Vegetables are actually way more important to me than fruits. That being said, we are all different. Whatever choice we make has to be our own decision. If I had not chanced into the elimination diet in my 20's I have no idea what I would have done. I too was almost in a wheelchair. Tons of medications for inflammation and severe pain. I worked full time and had a baby girl. Very busy time. I am grateful that there were medications to survive. I have received on messenger some pictures of some on the Flaym site where I get to see their psoriasis. Mine was bad to me, however it is really bad on the ones I have seen. If I ever had it like that I think I would try biologics to get it under control and then move into the gut health/diet. How to live when your leg skin is coming off in strips? Horrible and painful. My worst autoimmune dis-ease was lupus. Your entire body attacks itself so that was my biggest concern. Just happy to be done that chapter.
Signup with Facebook
Why do I need to sign in?
Flaym is a supportive psoriasis community that depends on everyone being able to pitch in when they got something to share.
I have a Flaym account · Sign up with email
Have been a flaker for 48 years. I'm happy in my skin.
Please don't message me, I will report you.
Forgive me, for I have skinned.
Anyone who have tried listening...
- feeling hopeful
Hello all,I am pleased to say s...
john,Flakes to beam up
- feeling happy
Given the goggles and clear vis...
- feeling okay
Get support and advice on life with Psoriasis from our friendly Community Forum.
Already a member? Log in