12 Mar 10:00
Treatment, healthcare system
Do you have confidence in the abilities of your doctor or derm to treat psoriasis? If not - why?
Please don't include specific medical product brand names or external links.
12 Mar 06:12
I went to my dermatologist beginning of January we was talking about treatments I had to get undressed embarrassing! Anyway he told me it’s not that bad for a certain type of treatment I was hoping for ✋🏻 I stopped him in his tracks saying not bad enough I’m 34 yr old woman I shouldn’t have to live like this what do u mean not bad enough I don’t do a lot of things due to having p it’s on my legs back elbows hands on one foot in my ear not that visible but still , it upsets me they don’t live like this they just give out prescriptions n see u in a few weeks/months anyway he sent me for bloods X-rays and now I’m going back April I don’t have confidence because I never see the same doctor they work on my notes 😪
12 Mar 06:29
12 Mar 12:16
Its only a bandaid job.
12 Mar 12:44
I pretty much had the same response this time . It's not bad enough for further treatment even though it's on both legs arms elbows hands both ears and scalp . He also took photos of me standing there in my bra and pants !! I was so humiliated . I understand that the NHS is on its knees but his lack of empathy really upset me . So no I don't have confidence in my consultant and I don't see the same gp everytime plus gp all most always wants to discuss my mental health and skips over my physical health ..
12 Mar 08:46
Yes, I have the great luck that my Derm specializes in P.
He's off to conventions multiple times of year. I trust him.
But the amount of trust I have for my current dermatologist is the amount of mistrust I have for my previous one. That's a quack.
12 Mar 13:20
Docs and derms and too many so called 'specialists' work for the Pharmaceutical companies.
They do not have the training to help us. Unless you are lucky to find a good one that specialises in treating p.
Happy for you Ruben!
12 Mar 11:01
Thank you Jen!
12 Mar 15:35
The things they say you must use is just last for a bit. I'm using my own. Doepa or Epy Derm is the only thing that's helps for me and I'm happy.
12 Mar 17:24
I have confidience in my doctor, but I have lost it with dermatologistist. I have had bad experiences first starting when I was 14. and not feeling he respected my privacy as a young girl. The last time I saw a derm 10 years ago, she seemed uninterested in me when I said I was not interseted in biologics. I have had a lack of interpersonal experiences. Feeling more like a number, rather than a person.
12 Mar 18:13
nope, i have always known they cant help me since a child unless i want medicines or drugs,i was told as a child, this is it, you will flake until you die, not in those words but, you know what i mean :)
12 Mar 14:22
I do have confidence in the abilities of my doctor and derm as medical professionals, in terms of I always get an appointment (even I have to wait) and they always assess my condition. But beyond that the confidence falters when it reaches a matter of priorities... the GP never has any time to discuss anything beyond the 2/3 minute time slot, and never connects the dots between co-existing symptoms or issues. The dermo I see has a priority of thinking that I want to simply "clear the symptoms" by recommending only immunosurpressants, and like Michelle says, being dismissive if I don't want to take the associated risks. So I think my medical team have good abilities to treat the symptoms, but they don't share (or ask about) my priorities as a patient.
12 Mar 14:25
No they don’t seem to listen. Hopefully in time I’ll find the right doctor.
12 Mar 18:32
Confidence eh no not on your life .I have seen the same doctor now for 3 years and shes a rocket 5 times yes 5 she has phoned me to tell me to stop my tablets and then realise she has someone elses results i went to my own doctor about this and he has written to try and get me another doctor .If im off the tablets 2 weeks im back to square one it all comes back i find it hard to tell anyone as im more angry now and the worse i fell the more my skin brakes out x
12 Mar 14:41
Yes they do that to me and left me a year @mags, they don’t care or don’t appear to. When I got upset with the doctor I was told I was being aggressive nice huh!!
12 Mar 14:55
You are entitled to see the same dermatologist over and over, I have seen the same dermatologist and now with new treatment its almost gone all over. Will be going back soon for light treatment and injections and told high success this way. Fingers crossed, oh I've had to stand completely naked in front of 2 female nurses for light treatment
12 Mar 19:07
its annoying @jacquline but stick in im getting rid myself just now havent heard from them in 9 weeks Dave i,ve been going for 5 years now it was great when it was working but now its getting sore i have it under my nails and all over my head yes light treatment does work but when they stop it it comes back ,i have heard the injections work so fingers deffo crossed for you x
12 Mar 15:44
Yes. My dermatologist is a physician at UCSF. If I would’ve consistent with
12 Mar 15:46
Yes. My Dermatoligist is at UCSF. University teaching hospitals are the best and most advanced.
12 Mar 19:58
Have yet to find a doctor that helped me! And they only have day hours I work and cannot take time off to go! It’s stressful! One doctor had me wait for 3 hours for appt! Yeah stress makes my psoriasis worse- stressing out patients before they see you is a great idea.
12 Mar 20:11
I havnt wasted my time with doctors for psoriasis since 1985 and thats when i was going to uv treatment that didnt do anything and i had to take time off work,when you got rent to pay, that had to go out the window, went for many uv treatments as a child,that was it , never seen a doc for my psoriasis as nothing worked , it got better as i got older then 33 psoriatic arthritis came with all the other problems added,luckily mines not bad though i had a rough 3 years with it and now, no one would know thanks to changing my diet, truth of it is unless you want drugs which is a choice, only one can help themselves is ourselves, theres no cure and not likely to ever be one while i am alive i am sure of that, born flaking and die flaking, i have had to accept that, i get on with life though and i have made improvements to myself, its ok, cant complain :)
12 Mar 20:30
I have been given numerous creams over the years to no avail. Was told at one time to apply the cream then wrap my leg so i couldn't scratch it during the night. I didn't do that as it would have made worse
12 Mar 17:13
This is not a death or life disease, therefore very little research goes into helping/curing. Dermatologists can provide us with no more assistance than 30 or more years ago - without introducing toxins that is.
12 Mar 21:27
I do and for anyone living in the UK I would suggest a referral to St John's School of Dermatology at Guy's Hospital in London - the team there are simply fab!
12 Mar 21:51
Nope. I had asked about diet and none said Yes, eat this and not that. I have changed my diet and I've seen a massive improvement. It may have improved on its own but I doubt that.
12 Mar 21:57
Yes! I trust my Naturopathic Doctor explicitly! And my chiropractor, also...They have changed me from a sickly old (77) lady to practically normal...
12 Mar 19:42
I have confidence in my derms abilities but I sometimes think that once you have a diagnosis the doctor visits are just for script renewals and nothing really changes. I am actually in the process of changing derms right now. My present derm is older and I have had several different derms over the years. I am 74 and would like to have a derm who is closer to my home and who will hopefully be with me until the end. Appt with new derm is in June so hope she will be a good fit.
13 Mar 00:10
I do have confidence in my dermatologist. I can't do the shots because I have RA and the ones that crossover for both didn't help my RA. The topicals weren't working, she tried UV light therapy which is clearing the psoriasis up nicely. This is my 4th derm. The first 3 were bad. The 3rd one actually said, well, we will just call it eczema for now. Try this cream and come back in 3 months. It was so bad on the bottom of my feet I couldn't walk.
13 Mar 02:57
I saw two dermatologist - both recommended ONLY a $40k pharmaceutical and neither mentioned diet - absolutely worthless! American doctors are incentivized by drug companies. Holistic practices are where I spend my money now! Don’t get me wrong, I believe there is a time and place for pharmaceuticals but for me... they are a last resort.
13 Mar 05:28
I have had a Dermatologist for about 3 years. I do have other autoimmune problems. I had not seen her in some time and called to make an appointment and I got left a message that I was no longer her patient and gave me the names of two other Dermatologists that I could try and get. I did not know you could do that but it has happening before.
13 Mar 06:15
Reading all your responses I am so lucky to have a specialist derm nurse that I have seen every 3 months for the last 6 years - she listens and is supportive about diet and lifestyle changes. I wish they were all like her.
13 Mar 06:55
My doctor says it is all stress as he blames just about anything I go in for!!!!!!
13 Mar 07:22
If you tell a derm you want to try a diet - it's not that they don't believe in it - it's just not their field. You would go to see a nutritionist/dietitian or do it on your own like so many of us here and derm loses you and your $$.
13 Mar 12:55
They only treat the symptoms of internal problem, unless you go to holistic Dr. One of the largest issues for the skin is a leaky gut. You must clear the diet of inflammatory foods such as gluten, milk, all night shades and processed foods. It took over a year to see significant results after removing gluten, but the results were huge. Have patience, I have suffered for 35 years and have learned much from listening to my body and its reaction to what I ingest. Also has much to do with emotional stress, so ban negativity as much as you can. Lastly Sun and Ocean salt water. YAY
13 Mar 14:32
I feel that this disease requires a specialist to diagnose and if your local doctors surgery’s has one your lucky, as there various types of psoriasis,you need someone who can give the correct diagnosis for the type you have
14 Mar 01:10
Judy I agree with you. I am doing gluten free and night shade elimination however milk is more difficult to get rid of. I do agree that eliminating stress helps as well.
14 Mar 01:12
Not much! They seem a little indifferent. They barely remember me or what medications they have prescribed. No empathy!
14 Mar 03:39
@Judy55 - I changed my diet - same as you - psoriasis improved 90% - psoriatic arthritis joint pain 100% gone! You are correct about leaky gut - it’s all the chemicals - herbicides, pesticides, hormones, artificial colors and flavors, preservatives and additives - in particular the herbicide (Roundup) its sprayed on everything and destroys gut health - I changed to an all organic diet and eliminated all of the items you mentioned and saw great improvement within 30 days - I also added supplements - my motivation was to avoid pharmaceuticals - people don’t realize their diet is poisoned - they will eventually!!!
14 Mar 07:24
So true shawn, if i win lottery, i buy my own farm and have my own organic veg,:)
14 Mar 07:28
Lol John. Yeah I just don't get it. Organic, gluten free, and all the foods that are better for us are so much more expensive then the junk and packaged food. We need to go back to basics.
14 Mar 16:20
yes well jen, its all to do with profit it seems,in bulgaria they grow their own veg a lot of them and eat and sell it, the produce is huge and tasty, all organic, they live quite old and healthy out there because of what they eat,unfortunately though farming is starting to become a thing of the past, i saw a few farmers out there but they are living poor doing this job, you dont see cattle out there or sheep, its the cost it seems to look after animals,agreed back to basics when it comes to foods,the youngsters of today have so much health issues to look foward to and more psoriasis cases maybe ?
15 Mar 10:35
Can't wait for my allotment to grow and harvest this season. So excited for all the fresh veg that I know is totally fresh and natural! 😍😍😍
15 Mar 13:06
15 Mar 16:46
I used to grow all sorts of veggies I haven't bothered since I moved as my garden is north facing . I still go all my own herbs though . Gardening is a real stress buster for me I love it . I have major plans for my front garden this year .
16 Mar 13:48
I don't use a dermatologist or any specialist for that matter anymore. Had to get healing by being my own guinea pig. I don't even think it's their fault. They teach what they were taught. Unless they are progressive they will continue that way. My nephew graduated as a doctor and is continuing to learn on his own to grow in his own practice. He's young and progressive for sure. I was only given medication for years, especially steroid creams and pain meds. I was not told the long term side effects. Not even sure if they knew either. That was years ago so... In answer to your question, I guess I trusted them all or I would not have taken their advice. Now, I wouldn't even see one until I tried a more natural way first. That's me though.
16 Mar 14:00
Shawn I'm with you. There is a place for pharmaceuticals. Heck, I had psoriasis at 7 and eventually ended up with so many other autoimmune diseases. Drugs and creams galor. I did change my diet for sure! I did not go organic mostly due to cost and the fact that there are still pesticides. My friends are organic farmers and their words "Great marketing term" being organic. My diet did change though dramatically though. I often post that I kind of eat like the cavemen did. LOL. I only take Moringa as my supplement and make my own Kombucha. I know if I had not taken my health into my own hands I would most definitely be in extreme pain like I was, still drugged and creamed, and quite possibly unable to work. My only doctor is my GP. He's great! But I also did alot of things like changing my thoughts, not stressing, walking/exercise, meditation, got rid of negative people, live in the present. It's a very different life and if people get flares I would suggest diet first plus "How is stressing beneficial". Just a waste of precious and a beautiful life. If you knew my last week I just had I could have been stressed to the max but I have a very strong Faith in God and just said "You take it"... This all seems to work for me.
John you and I have been diagnosed at very young ages, you younger than me at birth. We needed to take our health into our own hands or we would be on the specialist rollercoaster still. I have now got a life free from appointments, except getting beautified at the hair salon. LOL.
16 Mar 18:44
Doctorsdon`t know enough about
17 Mar 02:53
Susan I was only diagnosed at age 35 - psoriasis started at age 33 or 34 - I’m 44 now so I’ve only been dealing with it for a decade - it got progressively worse each year - noticed psoriatic arthritis within 2 years of recognizing I had psoriasis - am thankful that I haven’t had it lifelong - I can’t imagine!!!! And you are correct, certified organic produce and foods may have pesticides and herbicides however in the states they have to be on an approved list - most importantly Roundup is not on the list - I have done so much research regarding Roundup and it has been proven to kill “good gut microbes” and favor “bad gut bacteria” - it has been directly linked to ciliac disease and is really the reason everyone is now gluten intolerant - it’s not the gluten it the roundup sprayed on the wheat 3 times before it’s harvested!!! I wish the entire world would ban Monsanto chemicals - many countries have - Hell even Russia recently banned roundup - for a list of the countries that have banned this poison google “Where is glyphosate banned?” —- I think you might be surprised!!! According to the International Agency for Research on Cancer, the cancers most associated with glyphosate exposure were found to be non-Hodgkin lymphoma and other hematopoietic cancers. The report further concluded that glyphosate exposure caused DNA and chromosomal damage in human cells, as well as genotoxic, hormonal and enzymatic effects in mammals. Other glyphosate studies have linked the chemical to a number of health issues, including, but not limited to ADHD, Alzheimer’s Disease, Autism, Birth Defects, various forms of cancer, Celiac Disease, Colitis, Heart Disease, Inflammatory Bowel Syndrome, Kidney Disease, Liver Disease, and Parkinson’s Disease. —- I promise I’m not trying to be an alarmist it’s just that this carcinogenic poison is sprayed on the ingredients of most food products that make up the American diet - And so that I don’t get sued by this very powerful company let me say - “allegedly” Roundup is the cause of many people’s auto immune disease!!!!
17 Mar 03:13
Shawn I agree. Maybe not the only cause but a big one. Not even sure if we can buy roundup anymore. I'm sure it's out there. The good news is there is an awareness going on. 25 years ago our Farmers Market was pretty small. Now it's huge! Not just produce but handmade shampoo, creams, honey, hand crafts, lotions. All natural and very creative. The mass of people is astonishing that support the vendors. It's also the time when the supermarkets have sales. Hah. I'm also not a fan of vaccines with all I know now. Unfortunately both my kids were vaccinated. I just did what I was told. Silly. My son didnt have them all though. My daughter did and she is on the Autism spectrum. Many are aware of Monsanto but it all takes time. Having had it when I was so young our seeds were not GMO but passed down by generations and the fertilizer was cow manure. I'm the only one that developed autoimmune dis-eases. Weird. We didnt even spray any of our fruit trees. Now, if you have a fruit tree you have to spray it or the city will just come chop it down. Have times ever changed.
18 Mar 18:38
I love my Rheumatologist. He retired and I had to see another one for a year, then he came back part-time and I got to stay on his caseload. He understands me,
18 Mar 22:39
Just like John,darts vader I agree the Dermatologist can’t help us. So the next thing is to eat healthy and keep trying new things to keep your P in control because like life we will have are good days and bad. and life is to short to stress about P! So enjoy everyday and be happy in your skin👍👍
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