Joni
...feeling proud Joni @joni

Coping, treatment

What are some of the most off-the-wall treatments y'all have tried or heard about? I'll admit to trying the infamous breast milk self treatment and got no results!

25

Please don't include specific medical product brand names or external links.

25 responses

Eftychia
Eftychia @eftychia

I have never done a treatment off-the-wall!! Altough if I knew that something would dramatically help if it wasn't very rare, I would try it!!


Claire
Claire @mamaclaire

Breast milk didn't help me either 😔


Psoriatic4good
Psoriatic4good @psoriatic4good

Breast milk?!?

WTF?!

Ok, I would try it as a some kind of foreplay :)

Very wierd forplay :)


Shane Sal
Shane Sal @shanesal

Ayurvedic treatment in India helped me. My P is super controlled and has only one tiny mark on my leg and some slight issue with Scalp. Also I heard there is a nafthlan oil treatment in Azerbaijan which helped immensely for my Girlfriends cousin.. She is supposedly mark free now!!


Suzie
Suzie @Ratgirl

Tried most herbal stuff...ended up smelling devine but psorasis stayed the same.
P4G....Breast milk as foreplay ....trust me after feeding a baby for a year there is NOTHING sexy about it. Messy & sticky yes ...passion enhancing ...heck no.
P4G ...I am going to have to give you some tips on foreplay


Janice
Janice @Immy

About 25 years ago I tried aqua puncture. It was given to me by a Consultant from Peterborough District Hospital privately, I would lay almost naked and he stuck pins in all over my body, after spending £300 that I couldn't really afford as we had a young child and I worked nights as a carer not a good wage, I gave it up and my psoriasis was still the same, not to be recommended.


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

yes, some people are a good out there making money out of peoples misery, they like the young and vulnerable to part with their cash and say, THIS WILL CURE YOU,dont know how some sleep at night ,probably very well after they got your money, i was like that very vulnerable,i went to a healer ? quite lot years ago for a few weeks,forget it . i had to accept it and thats it :)


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

janice as you know i work in a care home in maintenance,the money carers get paid is a joke for what they have to do,i admire them,its not easy job, :)


Ragazza
Ragazza @ragazza

I did the horse milk treatment... drinking it every day... expensive stuff that didn't help a bit


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

hello ragazza, you been hiding a bit,i hope you are well :)


Jack
Jack @psoriasisblob

I wouldn't even know where to start haha. I spent like £300 on a fish tank and 15 garra rufa fish once. The so-called Dr Fish that eat dead skin. Quite a novel way of treating psoriasis and my skin was so smooth after, but not a cure. I have another, way more embarrassing thing I've tried, but that's for another time!


Ragazza
Ragazza @ragazza

@ John Hi John, yes I'm hiding a bit from the internet. Was gone for a few days. Went to France ...shopping...clothes.. a lot of clothes... :-)))) So I finished the UVB treatment and I wrote already that I need to go back in about 2 weeks. Well I was wrong..just saw that she wants to see me at the 24th of April. So now I really need prove that the Curcuma Longa and the gluten-free stuff is working.. will check on Wednesday...1 week after ending UVB


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

bonjour ragazza,sounds like you been busy with shopping in france ooh nice, hope you got some nice outfits :)i hope all gos well with your appointment on the 24th :). yes i been doing a lot of diet, i manage find away as you said, get the turmeric under the food :),gluten free now ,eating lots veg and salads too,skin still fading joints feel crap hay ho,hope its sorted soon :) goodto hear from you :) :)


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

the sun was out today so stripped me top off and did painting on my sheds, nice and hidden so. no one can see me,just for an hour and after 3pm so wasnt too hot. :)


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

i hope they are happy with your results ragazza with your skin :)


Ragazza
Ragazza @ragazza

@ John yes yes I bought enough clothes hahaha...(for the moment).
And got the confirmation for the Northern Soul Event in Münich
to go DJ-ing in September.
Well specialist wasn't very pleased with the results of my skin after that Light treatment... but I was pleased... for the moment... all pink...no scales...no hurt...no itch... and just found the hospital's invoice in my mailbox... 00,00 euro to pay, so that's also nice. So on the 24th I will start a Q & A moment with my specialist about the Biologics 2nd generation.


Jack
Jack @psoriasisblob

Why wasn't the specialist pleased? Sound like good results to me..


Ragazza
Ragazza @ragazza

@ John

Well done John, you are doing all those weird things you never tought you would do..hahaha.
If it can take away some itch and inflammation then you must cherish what you are doing. Maybe raise the dose you put under your food??? Have a nice night John :-)))))


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

things sound like its looking up ragazza,so pleased :)


Ragazza
Ragazza @ragazza

@ Jack I think that normally after 20 sessions of UVB everything must be vanished (????). I had several treatments of PUVA before (25-30 sessions) before everything was gone. Now with those UVB sessions it's still not vanished. I'm glad with the result for the moment.. that specialist wants more... pushing me into the Biologics without waiting for a reaction of my skin. So I told her that I first want to see what my skin will do now. IT'S MY SKIN!!!!!! hahaha..so she has to wait until I come to report to her... if I'm still pleased with my skin or not..


Psoriatic4good
Psoriatic4good @psoriatic4good

Don't do biologics if You don't know the background of them ;)


Ragazza
Ragazza @ragazza

@ Psoriatic4good I did those Biologics 1st generation 2 times. It costed Health Care about 8.000 euros and in total 8 months of suffering for me. I know people who are Psoriasis-free with them. And yes I know that the side-effects will come later on. It's up to the users to accept what is worst for them; to have the Psoriasis or to be Psoriasis-free with side-effects. Dilemma...dilemma


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

side effects ,i think i will keep my scales :) its a choice though :)



Ingrid
Ingrid @Lana

My off-the-wall treatment is Cannabis. No need to try another, it works.



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Joni
Joni @joni
Princeton Junction, NJ

Spotty since 1998. Writing about spots since 2012. I write about my psoriasis journey at justagirlwithspots.com




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