Nikki
...feeling sad Nikki @niksam

Secrets, coping, treatment

I’m really sorry this is for the female flaymers!
I’ve been suffering with genital P -splits and sores in some very intimate areas. I’m new to P and haven’t found anything that helps. How do you cope with your period? What sanitary items are best?

12

Theme Genital Psoriasis

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12 responses

Sarah
Sarah @sarahuk

Good to see your post Nikki! Yes yeowwwch sore. I had genital p in my teens but didn't know it was that at the time, I didn't even know it existed back then. Never put 2 and 2 together. You can use olive oil on the down belows. I never used other medicated stuff, too fiddly to put on I guess! Though if you can manage it, that might help too. It was my midwife who recommended the olive oil! I never really did anything different with periods... Others may have advice there for you!


natalie
natalie @nataliemc

u cud try having a bath with oatmeal in it. its very soothing


Michelle
Michelle @mishlyn

Ohh Nikki, that does sound so sore indeed. I have had it in the pubic area in the past and used coconut oil to help sooth it. Oatmeal baths have been very soothing for me in the past as well. I found tampons worked best for me keeping the area cleanest. I hope relief is on its way to you!


Nikki
Nikki @niksam

I really don’t want to go into detail and upset anyone 😔 My VERY intimate areas are split and using tampons causes even deeper internal splits and sores. But using towels just inflames the sores I already have.
I’m sorry this is an awful subject...and I don’t want to offend or upset anyone...I’m absolutely desperate.
I’m mostly bed bound because of my disability. Laying/sitting in bed was the only thing that was comfortable, but with genital and my bum (again very intimate) I don’t have a comfortable place at all.
Having a bath isn’t an option. I can only shower using a seat and in order to do that I have to take extra morphine.
I’ve just recently started immunosuppressants, which terrify me, but creams, ointments and lotions are impossible when you live in bed and showering everyday isn’t possible. Social services wouldn’t pay anyone to help me shower everyday. The best I can get is a wash and a shower twice a week. My Mums been helping me everyday, but it’s not ideal to rely on my Parents for EVERYTHING. I’m really depressed and struggling to accept it all.
Sorry for the long, upsetting post, I just don’t know where to turn anymore.


natalie
natalie @nataliemc

my heart really goes out to u. im sorry i dont no what advice to give you just try and stay strong. i wonder could you maybe go to a and e. just tell them you literraly cant cope with it.


Michelle
Michelle @mishlyn

Nikki, that is what we are here for, to support each other. All questions are welcomed. I am so sorry you are going through this right now. I really hope your tablet gives you some relief. A lot of people find relief with them. Have you ever looking into biologics? They seem to really help others who have been severe. Take a look at the themes section for them to get a better idea. I believe it was Damien who shared that he puts dead sea salts in a spray bottle with water. I wonder if that type of spritz spray could be helpful. Try and have hope that your tablets will help. I know its hard..but try and reach for even a little bit of hope.
Please dont apologize for your post. I am happy you have reached out. I hope things can get better soon! ❤ xx


Sarah
Sarah @sarahuk

Nikki, you aren't upsetting me that's for sure! I'm really glad you can post about this here and talk to others about it because it is so isolating. Hmm a bit of olive oil isn't going to help those deep sores and tears! When I gave birth to my son, I had tears and was given ice packs to use on them to ease the soreness and swelling. Could some shaped ice packs be of help? You can wrap them in some fabric to keep them from sticking to the skin. Sending out massive thoughts to you and really hoping you'll find something to help you break the cycle.


Nikki
Nikki @niksam

Thank you Sarah. I genuinely don’t know where to turn, so having this forum is helping so much.
I run a nerve pain group on FB which is very successful and incredibly supportive, but this is a little off topic!! I share health stuff in there, but being the group creator, I feel it’s not the place to talk about my lady bits 🙄
I’m glad, now that I’ve been a bit more descriptive, that I didn’t try the olive oil that my Mum got for me today. My instinct was that for the most intimate areas, it wasn’t the best thing, but I was planning to try it!
Before I knew this was P, I honestly thought I had a serious case of thrush and really awful haemorrhoids! I was using the appropriate over the counter creams and my skin was literally burning. During that time I was sat on a donut cushion with these gel ice packs wrapped in some very soft fabric. Maybe now that I know it’s P and am no longer using those specific creams, the gel packs might actually be soothing! At that stage, before Christmas, I had no idea that you could get P in either of those places.
Thank you so much for your advice and support, it really does help x


Nikki
Nikki @niksam

Michelle,
I had looked at biologics on here and while it sounds like one of them would be better suited to me, sadly I have to try whatever I’m offered. I feel lucky that the Derm didn’t just give me more lotions and creams and actually recognised that my other health problems are affecting my ability to treat my skin. I just hope the immunosuppressant works. I’ve had to stop 2 of my medications that I take for my pain, to be able to try it and I really don’t like the list of possible side effects 😳 I spoke with my Drs practice who have their own resident pharmacist and he did raise some concerns over the medications I take and the new one. They’re extra problems that I need to look out for. I’m wondering if I’d have even more possible problems with biologics.
I have tried sea salt spray, but anything I seem to use just contributes, rather than helps. Im stunned at how my once healthy skin has turned on me and now reacts even to newborn baby creams etc.
I’m really grateful for your input and advice. I’d be lost without you all x


Michelle
Michelle @mishlyn

My fingers are crossed for you Nikki, that the immunosuppressant's work their magic! What do you wash your clothing and bedding in? I wonder if it has a strong scent or more natural based/fragrance free? My skin cannot handle anything that has a fragrance to it. Sending healing thoughts your way!


Paul
Paul @paul116

Don't apologise every subject should be talked about openly and honestly, It's a very valid question,Stay strong Nikki


Helen
Helen @helen191993

Sorry to hear what you’re going through. I also have genital p although my case is mild. Initially it was wrongly diagnosed as thrush and haemorrhoids and the prescribed creams made it worse. I currently use a prescribed mild steroid which helps with the itching, however the skin cracks and bleeds still. Keep us posted as to how you’re doing xx



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Nikki
Nikki @niksam
Leicester, UK

Psoriasis since Oct 2017. Learning fast! Also have Trigeminal and Occipital Neuralgia and severe nerve damage in my leg. Mostly bed bound and only leave the house for hospital appointments. My partner and my Son keep me going.





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