Ragazza
...feeling relieved Ragazza @ragazza

Healthcare system

My 20 UVB sessions are done now. Went to get an evaluation for the 'specialist'. She isn't pleased with the results and I'm pleased with them. Will have a break for 2 weeks and look what the Pso will do to me in that period.

24

Theme Light Therapy for Psoriasis

Please don't include specific medical product brand names or external links.

24 responses

Chezpeers
Chezpeers @Chezpeers

I had 9 light therapy treatments and I ended up on fire, it burnt all my skin and I ended up with erythrodermic psoriasis :( its eased off now but I'm salmon pink all over haha, glad it's working for you though, fingers crossed for you :)


Ragazza
Ragazza @ragazza

@ Chezpeers. hahaha..ooh yeah. It's like you have been on the beach the whole day without any protection.
I just took 2 x a week, so I had 4 days of 'skin rest'. The spots are pink now and I don't have scales for the moment. All is in 'rest mode'. But the specialist told me to consider to start with the Biologics 2nd generation. I already did 1st generation about 5 years ago. (Didn't help a thing). So in about 2 weeks I have a new appointment and I will decide if it's needed or not. It's my life and my body.... :D

I keep my fingers crossed for you... moisture your 'red lobster'-skin as much as you can. Keep going.... and love yourself a lot..you are worth it !!!!


Chezpeers
Chezpeers @Chezpeers

Haha, yeah, I had 3 a week, an intense course before I came to Germany, I felt like a bloody old woman after 2 hours I felt like the ski had been microwaved, it was bad, I shed sheets of skin, but now I'm just like you said a bloody lobster, and yes I will keep moisturising :) aww you let me know how you get get on in 2 weeks and yes it's your body, your decision :) thank you!! You too!!


Psoriatic4good
Psoriatic4good @psoriatic4good

Did You have the same therapy duration during every session?


Chezpeers
Chezpeers @Chezpeers

@psoraisis4good
I started off on 30 seconds, and went up a few more each time, my longest was 4 mins, I felt like I'd been nuked in a microwave, I now know how a poor chicken feels when you roast it in the oven!! Haha


Chezpeers
Chezpeers @Chezpeers

Sorry, I mean psoriatic4good oops :)


Psoriatic4good
Psoriatic4good @psoriatic4good

Yes I also have the same increase but it wasn't burning me.


Chezpeers
Chezpeers @Chezpeers

It works for some, I'm just one of the awkward ones that if something can go wrong it will, but I I'm not too bad, 2 weeks after being stressed about leaving the UK and my adult kids, I'm not surprised it wouldn't clear up, but it's getting there, and the fact I am not shedding skin everywhere is a big bonus, and it's getting warm here so hopefully it will calm down more now I'm settled and not stressing now, good luck with it guys :)


Jack
Jack @psoriasisblob

Good luck Ragazza!


Ragazza
Ragazza @ragazza

My last sessions were at 9 minutes and 30 seconds and the last session was on Wednesday.
Just came back from some serious shopping in France.
Now I'm going to take some rest for a few days and then back to the dance... a lot of dance and back to the gluten-free stuff!!


Ragazza
Ragazza @ragazza

@ Jack Thanks Jack...luck is all I need this 2 weeks :-))))


Psoriatic4good
Psoriatic4good @psoriatic4good

Wow 9 minutes... That is long!


Ragazza
Ragazza @ragazza

@ Psoriatic4good Yes indeed it's long.. but you really need to laugh with yourself if you are there ...naked with your t-shirt pulled over your face because at evening you don't want to stare in the mirror at a red tomato face. It was worth the burning sensation. It was worth the redness also. Just don't give up.
I don't mind to do the Light therapy because during the rest of the year I don't worship the sun like most healthy people.


 Chris
Chris @Helpful

Back in 1963 psoriasis treatment to get rid of psoriasis was tp have a cream to cover the affected are the you put on a full plastic suit for three days then the suit was discarded and then a coal tar based shampoo dried off and the psoriasis was flat with no scales [......] was applied to clear the psoriasis from the skin the [......]l burnt the skin to clear what was left of the psoriasis which looked like small bruises that was all they had to clear psoriasis but it was only temporary diets were never discussed in those days. Total time for the procedure was one/two weeks I do not know if they still use it.


Psoriatic4good
Psoriatic4good @psoriatic4good

I don't have t-shirt around My head, i just close My eyes :)


 john,Hulk
john,Hulk @chewbacca

no diets mentioned i know when i was child,doctors dissmised it :( i dont know if it would had been any different for me or not if diet was known for it then because of my circamstances of that time :)


George
George @RGS

Hello Ragazza I had found that light therapy was the only thing working for me too but I have since moved to another city and have to start over with getting in to see a new Dermatologist which may take some time so it has started to reoccur My friend had me try an ointment she uses on some issues to do with crohns it is called [......] here in Canada an antifungal cream and has so far cleared up the lighter areas on my face completely Im hoping it will work on my arms and legs also


George
George @RGS

it was my dad who had the Psoriasis I don't know who else in his family had it though such as siblings or my grand parents


Ragazza
Ragazza @ragazza

@ George
Hi George, indeed the Light Therapy is the fasted way to heal the skin. I ended the Light Therapy on the 29th of March and since yesterday (18th of April) it's slowly comig back. So it really gave me a break of 2 weeks. Next week I go back to the Dermatologist to see what WE can do to tame that bastard.


George
George @RGS

Hi Ragazza . Yes I found the same thing it took about a month to come back in a big way but with my work and now new city I wasn't able to continue. I had to go to the local hospital once a week and stand in the light booth for a total of 54 seconds then drive to work or home. It took half an hour to come and go to do this plus parking fee's and once I started different work I had to stop since the only times I could do it was between 8am and 4pm week days. only which sucked


Ragazza
Ragazza @ragazza

@ George, so sad to hear that it's only between 8am and 4 pm for you. I went 2 times a week and ended up with a red skin. It became a nice golden tan but Psoriasis is back. Next week I have my appointment and I will get my Biological 2nd generation. My Psoriasis is so wild that I sometimes hate what I see. I will never accept the pain and itch... :-)) So I'm going in War mode next week and see who of us is the strongest.


George
George @RGS

please let me know who the new treatments go for you I am very interested in finding something new . The doctors here seem to be stuck on only a few certain treatments and I would love to have something else for them to try


Ragazza
Ragazza @ragazza

Hi George... it took me about a year to come back here.
Last year in March I got the Flue...and Bronchitis so I couldn't go to the Lung specialist to get clearance. As the Biologicals 2nd generation can give an outburst of a latent Tuberculoses I kept inside to get better. It took me months!!!!! This year in March I went to the Lung specialist.. he said.. I don't take that responsability... ask the Dermatologist if she gives permission. So I went to her..she said I can't do it because the hospital is like a Factory and I can't follow you up like I should. So I went to another Dermatologist specialised in Biologicals and he saw no problems to ask permission at Health Care. It cost 19.000 euro for a whole year. I'm injecting since 4 months...Psoriasis was totally gone after 2 weeks.


 john,Hulk
john,Hulk @chewbacca

Hello Ragazza, its been a long time since i seen you here , welcome back :) glad your psoriasis is gone , great news :)



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Ragazza
Ragazza @ragazza

I offend some people here because I'm happy. I like it!!!!



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