29 Apr 12:09
Looks, healthcare system, friends & family
My friend has psoriasis as some may know as i have said but not like me,His son is 14 months old and when he lifted him up, could see large looking patches on legs , first thing that came to mind,psoriasis,his doc said eczema?i said i am dubious :(
Please don't include specific medical product brand names or external links.
29 Apr 12:16
My mate wasnt happy when i noticed it i its going up his legs to his bottom he said to me ,i am not going to put him on a diet plan, i know i said hes too young etc,i am suspecting psoriasis by the looks of it, think i pissed my mate off, they do feed him on a lot of packet foods etc i had noticed that, my mate said well when you got a baby screaming all the time,i know i said i get it, he said you just want to shut him up etc, i feel a bit bad for mentioning it, wish i didnt see it, it looked sore,My mate is putting steroids on his own skin, i keep saying that stuff is bad, i can see thats what his baby will be getting i expect, my mate dont want to listen to me, i said i can do more for you than a doctor can, i am his mate and not a doctor so,what can i do?feel so sorry if his baby oscar got this shit to deal with,
29 Apr 12:23
Oh John I do pray it's not P for the babies sake.
29 Apr 12:32
Your trying your best to give advice Jon,I would appreciate it for mine 👍
29 Apr 12:36
Thanks Bev,i did say whats that all over his legs, my mate said,dont you say psoriasis,my mate said he has had it in the back of his mind, i have aswell but i said nothing and now and this happens, lovely little boy, makes me sad to be honest for him,dont think mate is going to listen to me to be honest as he depends on docs and he will be the same for his son i am sure, i told him, i think nothing of docs when it comes to psoriasis, he wont listen, i am expecting the worst Bev to be honest, i know how crap it was when i was young up until my early 20s it improved but, i think because i had no big worries financially which helped me a lot i think, we know stress can make things worse and one of the reasons when i was young my psoriasis was bad, bullying, not great diet as thats what i was given,generally not happy at all,i can only hope things dont get worse for his son?
29 Apr 12:37
Oh John that must be so hard for you to see. If people don't want to take advice there is not much you can do unfortunately...
29 Apr 12:38
Thanks chris,well i took advice here over a year ago,i know improvements can happen, its all you can do with this , thank you Chris and Bev
29 Apr 12:40
Anytime fella,we all see and go through this as one. If I could advise I would without thinking
29 Apr 12:44
So true Jen,My mate isnt going to listen to me i know that, he thinks his doctor is the bees knees now he has changed doctors by giving him steroids, i do use use them but not very often, he sprays this stuff on himself like deoderent , he dont get psoriasis like me so, i dont know why he uses it, i consider mine as mild, his is nothing, a tiny flake here and there, thank you
29 Apr 14:15
So hard seeing children starting with psoriasis... I have seen it on my own boy and just like in this instance you're describing my doctor said it was eczema but I 99% know it was infant psoriasis. For my son, he started with it around 3 months, and had it until about 18 months, plaques on his top of his head, wrists and upper arms. Exactly like psoriasis. He did also have rashes on his cheeks which could well have been eczema as that didn't look like psoriasis to me either, and cleared up separately. I think good for you trying to help, we would do anything to help a child with this condition I'm sure...
29 Apr 15:53
That’s a shame but sometimes the worst thing you can do is try to help people no matter how much you want to if they don’t want to listen , you don’t want to risk ruining your friendship but it’s so hard to not say anything either sometimes .. very frustrating!! I watch my kids skin for signs all the time as my dad was covered and now I have it , I never give my kids packet stuff I make everything for scratch only thing I make an exception with is the dolmio stir in pasta sauce but they only get it every once in awhile ... poor baby
29 Apr 15:55
I also understand some parents don’t have time to cook and prep everything fresh I didn’t mean to sound condescending or anything there
29 Apr 18:52
It the worst when you see someone you care about with any illness or condition and they won't help themselves ...I see it in one of my closest friends . Unfortunately they have to walk on there own path until they learn there are other options out there . When/ if they do we can be there for them . 😊
30 Apr 07:11
Mine started on eczema... Hope everything clears up.
30 Apr 12:53
Oohh I hope it is not p on this wee one John. You are a good friend, looking out for them. Sometimes people are just really closed minded and dont think anything can work that is not prescribed by a dr. Wishing all the best for his little one.❤
30 Apr 15:48
Thank you Michelle and all for your comments, they just have to get on with it and thats it i know,just hope i dont see a mirror of my childhood in this little one in time as he is growing up, good he has great parents who love him to bits, that does help :)
01 May 15:13
Love and support sure do make a big difference John. I had no support growing up with P. Was given a wack of tar creams and was left to it. I couldnt even reach all the places I needed to. I think thats why I turned to alcohol at such a young age, frustration and it took me away from p for a while.
01 May 15:17
Poor little thing john. I bet he was a bit pissed off but that's ok. You planted a seed. Packaged food is just rubbish! Many people do things like that to keep a baby quiet but it's the long term that is what daddy needs to be concerned about, in my opinion. Hope he heeds your advice and I'm glad you said something.
02 May 07:38
Thank you Susan, i wont say anymore unless my friend asks my advice otherwise i will leave them to it,i dont want to lose a friend over it as he will be stressed enough if baby oscar has got this for the long run, well life ? i do care and thats it , thank you Susan and all
02 May 19:00
I watched a programme on channel 4 last night (on catch up) where a doctor was reporting on a study he did on his own son's gut microbiome. He got his son to eat only fast food for 10 days, no freshly prepared food. After 3 days the lad felt unwell. After 5 days he wanted to stop. His doctor Dad told him to carry on to day 10 and he did. The results showed his microbiome got very damaged from just 10 days of no fresh homemade food. And 4 years later his gut flora was still only half of what is was prior to the study. The doctor regretted using his son for the study I think. He wasn't prepared for how long term the results would be.
03 May 09:11
That's unbelievable wow No wonder so many people end up with gut problems
03 May 09:26
How can anyone do that to their child let alone a doctor....
03 May 09:57
That man needs to be jailed.
Documentary: "Super Size Me"
19 May 09:44
UPDATE, near had an argument last night between 3 of us friends as one friend was asking about diet changes again ,my close friend has psoriasis,my other friends girlfriend has psoriasis on scalp only but has psoriatic arthritis in the knee,baby oscar is my close friends son with eczema doctor has said?, they are both on steroid creams ,,my close friend swears by it okay they work i understand that, because they work for him, his baby boy oscar is getting smothered in steroid creams as he said its cleared it up, when winter comes this his what his son will be getting in big doses i am sure :(,he keeps saying , i cant put oscar on a diet plan and smother him with a lemon, okay i understand that, my other friend says i need to talk again to his girlfriend about her steroid injections and changing her diet, i said been through this she dosnt listen,well keep trying he said, you remember i said, i had this conversation and she was eating full cooked breakfasts and eating junk, i asked what she eats now,he told me, i said this stuff causes inflammation ie her knee joint,yes but the steroids do well on her knee okay i said but, you think this is good in the long term?i dont know he said, i wouldnt think so?so no one wants to listen to me,i give up, they want to flake and ache nothing i can do, it was a very flakey conversation too many flakes to talk about and get nowhere,i tried and it s because i care silly me :)
20 May 19:34
Ah John, so frustrating. I think it takes me back to when I though genuinely that I had no diet triggers as I couldn't pinpoint anything specific. Now I know that it was general levels of those things in my body that was aggravating everything, but not one specific thing. Those people may not be ready to hear what you are saying. But that doesn't mean you can't say it anyway! It's hard as you don't want to cheese off your friends, but you are telling it how your experience is. Tough times!
28 May 15:25
john I see it too all the time... I happen to like the term "you can lead a horse to water, but you can't make him drink"... Dealing with any autoimmune dis-ease can obviously get better with prescription drugs some times. Anything that is a quick fix for psoriasis on our skin is a great idea. We all need that. However, if it keeps coming back when you stop whatever your quick fix is, then maybe it might be needing to be dealt with from the inside. That's my thought though and yes, it takes longer, but it's soooo worth it and very empowering too. I do have to say though, that personally, I did the drug route and steroid creams as well up till my mid 20's... At that point a light bulb went on and I just knew there had to be a different way and it really took alot of years to get to this happy place. Not just food either... It was my messed up mind of who I was told to be, what society said was acceptable, what church implanted in me. It was my journey to see myself as a child of God without any mistakes and eventually learn to accept me in all my brokenness and my PERFECT imperfections... You can only tell people your experience, but like you say, it's a choice, a choice for everyone. You rock john!
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I am full of white scars :), I am a maintenance operative in my job, i am a plumber by trade.I have had psoriasis all my life since birth 50 yrs, psoriatic arthritis 16 years.
Psoriasis doesn’t define you.
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