Mabel
...feeling sad Mabel @mabel

Coping, healthcare system

Hi I'm new to the forum.
I've had P since age 6 w varying degrees of severity, but my skin is good atm.
What's worrying is my joint pain - not yet diag with PsA but getting tests and it seems likely.
Having an awful joint flare atm, any hints?

10

Theme Psoriatic Arthritis

Please don't include specific medical product brand names or external links.

10 responses

Michelle
Michelle @michelle1021

Hi Mabel. I have PsA but I haven't had any pain in my thumbs for a few months already. I drink turmeric for inflammation. 2 Months ago I got Hawaiian black salt (for cooking). To my amazement my Psa got less and I do not get any pain in my thumbs anymore. I'm not sure if it is because of the salt and turmeric together. I try to keep my diet organic which is not a problem for me as I love veggies and salad. Go through the topic section and see what others have shared with Flaym. :)


Mishlyn
Mishlyn @mishlyn

Hi Mabel, Welcome to Flaym! Sorry to hear about your joint pain. I was tested a couple of months ago for psa, I was sure it would come back positive too, it was negative. Thankfully, I hope yours can come back neg. too. As Michelle mentions, turmeric is helpful for many people and joint pain. Trying to keep away from inflammatory foods and sticking with anti-inflammatory foods as much as you can such as, Salmon, Tuna, Berries, avocado, spinach, almonds, Kale and sardines, to name a few :) Good Luck with your tests!


Sarah
Sarah @sarahuk

Welcome Mabel! Glad you've found us here at Flaym. Very pleased your skin is in a good cycle! I don't have psa but know that there is lots of good advice on here. Check out the themes section under "psoriatic arthritis" and you'll find lots of collected posts there.


 john,Hulk
john,Hulk @chewbacca

Hello Mabel, i do diet/lifestyle changes, it will improve the joints within a short time,inflammation is from within, welcome to flaym :)


Rehana
Rehana @rehana

I also suspected I had PsA but thankfully tests were negative. But still having joint pains, and a horrible flare up at the moment. The dry winter air in South Africa has really taken a toll on my skin. Skin on my face literally peeling off. The P on my elbow is worsening with each day - frustrated🙁


 john,Hulk
john,Hulk @chewbacca

Hello Rehana, tests can be negative dosnt mean you dont have psoriatic arthritis i am sorry to say,rheumatoid factor didnt show up in my blood until around 8 years later, sorry about your situation


Mabel
Mabel @mabel

Hey everyone, thanks for your responses.
I'm vegan and have been for nearly 8 years. So I dont eat any inflammatory red meat, dairy, etc. I'll definitely try eating more berries and such, and adding turmeric too :)

In regards to bloods - Ive had them taken before, but as John mentioned - rheumatoid factor has always been negative. Which, from my research, often is negative in people with PsA.
I am wondering though, seeing as there's no specific tests that can screen for PsA, and it's an elimination based diagnosis - what medical evidence will actually show if I have it or not?
I'm guessing that I'll need to have my joints scanned - haven't had them checked since 2012 and even then at age 18 they were showing damage.

Thanks again for your advice, everyone. I really appreciate it.


Mishlyn
Mishlyn @mishlyn

Oh wow, I had no idea that Rheumatoid factor could be negative and still have psa.. wow! Thanks for that info John and Mabel. I would also love to know how they diagnose and measure? .. wild!


 john,Hulk
john,Hulk @chewbacca

Your welcome Mabel, I know with me Michelle, i just kept going for xrays in the early days on my hands and feet though i have it in other joints , they couldnt find anything even though i could feel it,they said they need to see damage to confirm it,i had blood tests at that time nothing, wasnt until i saw damage on my thumb, i decided to have another blood test over 8 years later for this ,rheumatoid factor did show up on my blood test,most of the time ,docs just go by your symptoms to confirm it


Michelle
Michelle @michelle1021

I'm learning something new every day. This is very interesting John & Mabel and thank you for sharing.
@Rehana, I agree with you. The dry winter air is not good for my P either. My P is actually a bit inflamed because of it (or it might still be symptoms from the lamb stew which won't surprise me), I know my P is going to get worse. It always do in winter. Good luck and keep your P moisturize and warm.



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Mabel
Mabel @mabel
Adelaide SA, Australia

Witchy, plant loving queer 💚




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