13 Jun 12:29
Did you have to give up something in your life after you have been diagnosed with psoriasis?
Please don't include specific medical product brand names or external links.
13 Jun 12:53
Hi Flaym. No, not really. Apart from certain food (which isn't healthy) and certain clothing (which is too revealing by the way), I haven't given up something that meant a lot to me. I think I have actually gained something instead of losing it. My health is excellent and I love the clothes I wear. I've become more positive, innovative and I've gained more empathy towards people. My outlook on life is different. I might not be able to control my life, but I can control myself. Yip, I definitely gained a lot :)
13 Jun 13:50
Yes, exercise because of psoriatic arthritis though i have had psoriasis since birth, psoriatic arthritis came 30 odd years later , i was diagnosed a flaker from birth :)I gave up a lot of foods a year and half ago,i flake upwards and onwards :)
13 Jun 13:51
I LOVE LOVE LOVE YOUR CONFIDENCE MICHELLE....I didn't really give up much but instead lost a bit of self confidence ..the embarrassment of the flakes on my shoulders , my ugly nails .... you tend to be so aware of not letting the public see it which does put you under duress.....
But with time & the positivity in this group I do feel a bit more confident & certainly LOVED !!!!!!
13 Jun 14:06
Thank you Ellen. It took ages to gain back my confidence and there are times when I don't feel confident at all, but like I said before, forget about the people, we are the people and because of that, I feel special. This group is awesome and I love each and everyone. I have learned so much from my fellow Flakers. Our problem is that we keep on seeing the 'ugly' instead of the beauty. You are a fighter Ellen and being through so much already has made you stronger. Once you show people that it doesn't matter what you look like, they will forget what you have and see you for the person you really are. YOU ARE LOVED! xx
13 Jun 14:27
I agree , Michelle, one needs to be nice to their flakes, hopefully they will give a good turn back and acknowledge ones kindness and heal nicely :)
13 Jun 14:30
We need to whisper to them . lol. Shouting won't help.
13 Jun 14:54
I like all the positivity here! I have had the flake syndrome since I was young, but it had been at bay for decades unless I became highly stressed. It returned a couple of years ago as the norm for me. The only thing I had to give up was mascara as I have it on my eyelids. No biggie, as it was the only make up I wore anyway, so now I don't have to worry about any. I just try to keep it under control, especially on my face. It is just a way of life now.
13 Jun 15:10
Yes,,a life. this has taken up to much time out of my life. and irritability.
13 Jun 15:40
13 Jun 16:17
Well I have to cover up my elbows, wear only long sleeved clothing way too embarrassed😔
13 Jun 18:44
I'm not sure if I have given anything up! I have definitely hidden under clothes for many years, and have perhaps possibly subconsciously set some ambitions lower than I might have in life otherwise, feeling a sense of being "damaged" or imperfect at times. This is earlier in my life. I really don't know how things would have been without psoriasis though, so it is hard to imagine.
13 Jun 19:41
my hubby gave up swimming because his back was so bad. It's much better now so we will see if he swims next summer
13 Jun 20:08
Psoriasis drags you down to with an inch of the ground makes you feel great about being anti-social forces you to dress like its winter even on the nicest summer days keeps you from sleeping sometimes makes you justify giving every extra dollar the the doctor or pharmacist, people who you thought were friends back away .
Then you have your own epiphany and wake up figure out what's important, like eating right getting Sun ☀ going in the ocean then you shed you fears and move on searching for what helps you break down these barriers. These positive changes and the discovery of the benefits of a simple Lemon 🍋 has healed me. I am not looking back I. Refuse to look down and I. Continue to only make steps only in a positive direction. All of us can get where were going be blessed.
Don't look back.
14 Jun 03:21
For many years I gave up swimming, which was always one of my favourite things to do. It was when my boys were small, I conquered that fear. I wasn't going to allow them to miss out on something so great and fun because I wasn't comfortable. The past 7 years I have been swimming every summer and that first dive in and every dive after, felt amazing, cleansing, healing and empowering.. just the best feelings!
14 Jun 03:52
Michelle the conquer nice story
14 Jun 05:16
Clothing anything that didn’t cover my arms from the elbow up or from my knees up. I work in the fashion industry and it’s tough to dress on trend and cover my psoriasis at the same time. I am a very confident person, have no problem speaking in front of a crowd of strangers, but gotta cover my self up, have never been able to over come it.
14 Jun 05:24
@Sarah. I'm there with you. I don't really know what it is to be without Psoriasis. Living a life without it. I can only imagine but what I'm imagining is basically the same as what I'm doing now. Apart from jumping into a pool with a bikini on or wear very revealing clothes, and what I mean by 'revealing' I mean "basically naked". Now that will never happen. 😳. You used the perfect word "imperfect" because that is what I felt like for many years. I am now, imperfectly perfect and it is perfecting my life. Thank you Sarah.
@ Clint: "I am not looking back. I Refuse to look down and I Continue to only make steps only in a positive direction. All of us can get where were going be blessed.
Don't look back." - Very confident words and one feels like a native warrior, holding up the spear, ready to fight Psoriasis. I'm ready to go to war now 😁
@Michelle: Children changes us. They change us for the best. If it wasn't for them, you might have never gotten into a pool again. They are amazing just like their mommy. Like Clint said, you are the conquer.
14 Jun 09:11
Love these responses. Yes Michelle! Swimming is empowering! Yes Clint, we are better when we don't look down! Maybe look out of our eyes at the world, instead of out of our eyes down at our skin. Michelle, glad you are ready to fight, me too. Take that, psoriasis! Pow!
14 Jun 15:34
Yes I gave up things I love to eat-meat and dairy. I miss cheese so every now & then when I have a craving and give in to a pizza or a toasted cheese, I just know my P will flare up 😕
14 Jun 15:59
I do not wear short clothes when they sprout a lot and I do not drink alcohol ... that's my resignation
14 Jun 16:14
Wow great thanks Michelle
14 Jun 16:49
I've suffered with ps for over 20 years and only now getting it cleared thanks to phototherapy (almost gone). I've never let it stop me with my life, if someone stares at it I explain what it is. You'd be surprised how many people don't know anything about it.
14 Jun 18:21
Yes, smoking - no washing powder - no synthetic clothes - no tomatoes or ketchup. Read Healing Psoriasis the natural alternative by John Pagano
14 Jun 18:23
No more cigarettes
14 Jun 19:11
As I have them on my lower legs I stopped wearing skirts and usually have them covered. It is also very hard for me to walk and exercise the Arthritis is a bummer have to take Alleve 2x a day but everything else has me positive and working on my health.
14 Jun 19:53
When got diagnosed I didn't change anything during next 14 years-continied smoking, alcohol, any kind of food incl junk food, night disco etc. If only I knew that time what I will end up with-it grew from innocent small easy to remove spots to 80% of skin. Took me 14 yrs to realise that monk life style is the only way to chain p.
14 Jun 21:51
My pride; plaque psoriasis is quite visible and everyone comments on it. It’s limited my options when seeking employment. Food industry is especially reluctant to hire people with psoriasis.
15 Jun 00:23
Yes, my hair. But I gained a lot of wigs!
15 Jun 02:42
i'm still trying find good treatment for my scalp I had injection denied by the insurance well im not sure anything well help my p scalp itchy all the time so im not sure I took off drinking regular soda coke zero now so im not sure what my derm will do next
15 Jun 02:45
I would like to have more clothing choices and it would be nice if my hands worked better but I probably would have traveled more. I was always worried that I would have a flare away from home and not be able to find the help I needed. I still don't stay overnight with friends or relatives because I am a mess to have around. Yah I guess my life would have been a little different without the flakes but I am old now and don't care much.
15 Jun 04:53
Bleach and most Dairy products, Red Wine and negativity.
Good responses 🌹
15 Jun 05:34
I've learned that, the only person that can pull you down, is yourself and you can not let yourself pull you down anymore. Get up. Fight back. Our bodies are our gardens and we are the gardener. When looking at the flower, will you pic it because it's beautiful or will you care for it to live longer? Remember, life loses its meaning when we get stuck up in our comfort zone.
15 Jun 14:31
Flaym psoriasis was the beginning of many autoimmune diseases for me. By my lat 20's I was riddled with psoriatic arthritis and, thankfully, the elimination diet rebooted my body. At that time I had to give up all activities due to pain. Really sucked. The skin issues never stopped me from doing anything or going out in public either. I am and was pretty determined. Nobody could or did rob my joy in living to the fullest. I did have to give up sugar, cheese, pasta, dairy. That's ok though. I can have whatever I want now but only once in a while.
15 Jun 22:22
16 Jun 10:03
Same as Heather
17 Jun 04:33
My life has changed after i have been diagnosed with P. I became single when i believed my ex-husband would stay because i needed him the most. I became tough to fight alone with P and heartaches that causes stress. Its hard only at the beginning but one day when i give up the only two things that flared me up. First, açceptance. We must embrace P. Its in our bloodline. Lastly, ĺove our self, dont mind other people because we are what we are, its not our problem if they wont accept us.
To all flaymers that in worst conditons, i feel sorry and so sad about you guys, i just really want to share that i have never been from any doctors since long years ago, as a P warrior my only shield is , i always avoid things that can make me stress.
17 Jun 10:35
Maria that is so sad to have to give up a marriage because of p-----but sometimes if its stressful then it might be best but we love you here on flaym--this is your family,,and lots of good advice here.
17 Jun 17:31
My childhood. I was always the scabby girl afterwards or trying to hide it from others.
17 Jun 21:18
At first walking was a problem as my worst patches are on the instep/arch/bottoms of both feet. When not flaring walking happens. Luckily the meds and ointments keep them fairly clear,
18 Jun 21:01
Yes clothes I would love to wear swimming saunas sunbathing even though they reckon it's good for p makeup and most of all self confidence is at an all time low I have no social skills and feel out of place in a crowd don't feel like I belong any where it's so draining
19 Jun 03:51
go invest in a blonde look pay to have your eyebrows and do a makeup job to go. Next get a stylist to put some clothes together for you. Now look at places that give dance lessons in groups and then they dance after...join a Yoga club or a gym. find a single group in the church..Join a group of knitters or whatever your interested in...you will meet so many people...let me know how that goes..
19 Jun 03:55
Join a choir, do some volunteer at hospitals...do many things out there and you don't have to open your trap. Just smile, look lovely and people will come to talk to you I promise with my advice you will have plenty of things to do and places to go. Good Luck
19 Jun 13:10
I’m reading some pretty sad things here. Soooo sorry for all of you that have lost someone because of psoriasis. Very sad. Lots of sadness on this planet. I’d like to encourage you to step out, be brave, move toward not caring. Spend less focus on your skin and more on your heart. Those that see you for your heart are part of your tribe. Those that don’t are part of another tribe. Never think that they too have self esteem issues. They do. Everyone does at different levels. Embrace your beautiful self and live to the fullest and experience as much as you can without shame. Shine your lights!!
20 Jun 00:43
yes, my career, ....
20 Jun 11:19
I use to think to lose a husband was the worst thing that could happen but it was the best as today I have my children, good friends, and God. He remarried to a younger woman had a heart attack and lives a very painful existence calls me all the time to vent poor thing.
20 Jun 11:30
You know Robin, I used to be a contract engineer for an engineering company but due to the chemicals I could not work there anymore. I am a PA now, office based and I hate my job. I loved my previous job and the traveling but I had to choose. One thing I can say is that I still have my health. I'm as healthy as a horse apart from the P and I'm not looking back at 'what could've been' but to ' I will make this work'. We lost a lot because of P but it's nothing comparing to losing one's health.
20 Jun 17:34
Thank you so much Michelle your email was very helpful and will try to reach them this week.
23 Jun 16:51
Yes I never learned to swim at school. and felt so different I still remember 40yrs later and still have P never been without it.
11 Jul 01:08
I'm sorry you're suffering for so long, Patricia. What treatments have you tried? Have you eliminated any foods?
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