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Coping

To what extent do you feel you understand psoriasis and it's “behaviour”?

61

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61 responses

 john,AQUA MAN
john,AQUA MAN @chewbacca

Being a lifer , i know it gets worse in the winter and better in the summer though i cant complain Flaym,Diet/lifestyle helps with no inflammation with joints and my finger nails etc thank you :)


Michelle
Michelle @michelle1021

Hi Flaym. Like John, mine gets worse in winter and most, goes away in summer. By understanding Psoriasis, I see it as an inflammatory long term condition, involving comorbidities and an unhealthy lifestyle which we need to change. It is up to ourselves to change the angry behaviour of Psoriasis by trying to keep it calm. It is associated with high levels of physical and psychological disability. By changing our lifestyle habits we will be able to manage our P. :)


Chris
Chris @Chris70

Same as above winter can be harsh atm everyone asks where I have on holiday and its at its best for years , once for a lot of us you realise its there to stay you start trying g different cremes,diet,excercise,lemons and try to see the positive side that we are unique but we have a big and supportive community world wide .


Patricia
Patricia @patricia1978

I find if I get stressed it’s a while after my Psoriasis gets worse ,the hot weather also makes it worse.


James
James @ferns

I understand what it is, it's behaviour however often seems random and mysterious


David
David @david41166

Learning more about the conditions and possible topical treatments which could be used. For instance, corn starch is used a lot for inverse P, some say. Would corn starch and an API be a good mix?


Ava
Ava @ava1

👆 Yes, all of the above!


Ava
Ava @ava1

David, as long as one doesn't also suffer from candida albicans, corn starch may be useful.


Rosey
Rosey @sue2023

Summer don't help,winter I love but more prominent,going old school now,coal tar,chemist made it up for me today,strong,used shampoo other night didn't do anything so trying chemist compound,specialist cancelled today so cause had day off went to chemists,we see how this goes


Michelle
Michelle @michelle1021

Hi Sue. Good luck with your mixture and I hope you get results!


Rosey
Rosey @sue2023

Got to do something,stupid bum causes me to much grief and back of legs,kindda over it all,the cost the p ain at times and driving,but will go on ,


Michelle
Michelle @michelle1021

Oh Sue. I feel your pain. I rub lemon on my P before I put my coal tar on and I drink my turmeric every morning. Due to our winter and the stress I have at work, my P is getting that burning sensation and I don't like it one bit. So I'm going to double up on my turmeric and, eating like a rabbit for another 2 weeks and not having a glass of wine. We will get through this. :)


Millionways
Millionways @millionways

I understand its unpredictable.
The right lifestyle can help. (Food, rest, sunshine, sports, relax)
And using special lotions/bath products.
But it still can surprise you getting worse or better on a moment you didnt expact.


deborah
deborah @deborah4

To what extent I understand psoriases and its behaviour... psoriases is a bully and attention seeker. It sneaks in whenever our defences are down. It tries to keep us always thinking about itself. It eases away for a bit and then BAM!! Hehe... I'm still here, Johnny's home!


Michelle
Michelle @michelle1021

Lol. Deborah! That was excellent said! Love it and so true. Little bugger of a P.


Linda
Linda @justicejones

Not much st all but learning about great strategies here!


Susan
Susan @godcares

Flaym I think I know it quite well, but after being on this site I can see that what worked for healing for me, may not work for another. I actually just think of psoriasis as an autoimmune condition. Basically dis-ease in my body. Once I started from the inside then all my other autoimmune conditions got better and some went away completely. I chose not to think of it as something "incurable" or even a "disease"... I look at it as my very smart body telling me something is awry... That's me though and kind of a God thing.


Ava
Ava @ava1

Heartily agree with the above, Susan@godcares!


Lorna Penner
Lorna Penner @lornapenner

I understand psoriasis as annoying..Its full of surprises,,comes and goes. I like the sun

vitamin D is good.


Michelle
Michelle @michelle1021

True Lorna. Being in SA I get a lot of vitamin D and I think that is also the reason why I can control my P apart from my lifestyle changes of course


jim
jim @jim1966

hello, flakes and scales on head ears elbows and legs ,tried all that doc prescribed , still the same , ive beentold its for life


Michelle
Michelle @michelle1021

Hi Jim. Yes unfortunately it is for life but we can try to control it with the right diet. Check out our theme section and see what advice our wonderful Flaymers are giving. :)


jim
jim @jim1966

hello michelle, thank you for your reply, I got a tip from a lady friend , mash up two or three asperins into a paste with water and I applied it to my legs , one leg cleared up but it made no difference to other leg


omer

 john,AQUA MAN
john,AQUA MAN @chewbacca

Hello Omer, Why are you so sad? we are here to help and listen to you thanks


Michelle
Michelle @michelle1021

Hi Jim. Aspirins and it cleared one leg but not the other? Please tell us more. Did you use something else with the aspirins?


Michelle
Michelle @michelle1021

Hi Omer. What's wrong? We are here to give you advice and what we have on Flaym is support. Don't feel alone okay?


Judi
Judi @judi5

I don’t understand it at all! Every time I eat out at a restaurant, I break out again... and I am gluten and dairy, sugar, GMO free and organic...no chemicals and no drugs...


 john,AQUA MAN
john,AQUA MAN @chewbacca

Hello Judi, why i wouldnt trust eating out if i had that problem though i dont, You never know whats added in that may not be detected by you ?, its safer to do all from home i know,one does like to eat out now and again and i am sorry about you breaking out after a night out


Meryl
Meryl @meryl1

I identify with most of the above but since being formally diagnosed with psoriatic arthritis I feel like I am starting again . At the moment Winter and a huge amount of personal stress is not helping but both are unavoidable. My body is certainly telling me it knows what’s going on !


Barbara
Barbara @barbara4057

I never will understand this curse


Mary
Mary @mary1932

Just when I think I have figured psorisis out,EVERYTHIng changes. Back to square one.


Elaine
Elaine @elaine2018

I am informed, but am continually learning from others on here!


Michelle
Michelle @mishlyn

I understand it more now than I ever have before. For 20 years I never looked at what triggers I may possibly have. I think if we can become our own best detective and find what works or doesn't work.. we can do our best to stand in front of P.


Nancy
Nancy @mskittytoo2

Going on 20 years now... Losing nails, gross in the ears and nasty joint pain. Add Fibromyalgia, Diabetes and other things... My body is 20 years older than I am!!!


Lynn
Lynn @lynn6858

I don't really understand why/how it happened to me....the P I mean. I have tried lemons, lotions, etc.
I don't know if some of you remember me stating a couple of weeks ago, that I was trying CBD Oil. Well I am still taking it, and my P has gone from looking like raw meat on my legs to a much deeper red/burgundy color. So I am hoping it is starting to clear.....definetely going to give it another month or more to see what happens next! :)


Psoriatic4good
Psoriatic4good @psoriatic4good

Everybody who doesn't have arthritis just be thankfull for that.

Luckily I don't have it, just the skin, but it's a pain just to listen to people who has it.


Glam
Glam @glam1

It feels strange to me that my P only started when I was in my sixties. I've only had it for 3 years. So I'm always chasing a solution. The GP doesn't seem to know of how to deal with it other than using creams and make me feel that its down to me. I'm not stressed. But I don't want this in my halcyon days


Michelle
Michelle @michelle1021

Hi Glam. I know this might be frustrating to you especially when getting older. None of us want to look like a scaly lizard when we're old but we can try to manage it. We all need to take a whole health approach. When you think about psoriasis and your health, you might focus only on your skin. But you need to take a broader look at your health as you age. Eating right and exercising regularly can help you stay healthy as you get older. They also can help with inflammation and keeping your weight in check. A healthy lifestyle also lowers your chances of psoriasis-related health problems like heart disease. It's not easy being a P sufferer Glam, but we sure can try and manage our condition.


jim
jim @jim1966

hello michelle , I tooh two or three aspirins and mashed them up with a very small amount of water and spread it on both legs , I have no flakes on one leg just red skin never made a bit of difference on other leg but more flakes on ears and elbows .


Michelle
Michelle @michelle1021

Hey Jim. Hope you are well. I remember you mentioned it to us. Aspirin is a non-steroidal anti-inflammatory drug . I wonder if the salicylate could have anything to do with the improvement of your P? It is a type of salt which an be found in plants such as willow trees. Please keep us updated on your improvement! This is very interesting thank you for sharing Jim.


Gloria
Gloria @gloriaca

Just deal with it. Have flares that come and go...


Patricia
Patricia @patricia1978

I feel that going to the GP I am wasting his time ,he just says I have tried everything so I have just given up,I do not think he thinks it’s a big problem considering other illnesses .


Michelle
Michelle @michelle1021

Which is why I don't go to a GP/Derm Patricia. I've changed my lifestyle and my P is good. I did get a burning sensation on my ankles (where I have P) the other night but it's gone now. I just check what I eat, use some lemon and getting some sun.


Caroline
Caroline @car43

The sun and heat seems to make mine worse. Suffering at the moment.


Michelle
Michelle @michelle1021

Hi Caroline. Humidity is a trigger for my Psoriasis. Could it be that you are in a humid area?


claudia
claudia @claudia103

Mine is clearing through eliminating certain foods


 john,AQUA MAN
john,AQUA MAN @chewbacca

Great Claudia, what foods did you eliminate ? well done :)


claudia
claudia @claudia103

First getting the gut in order, fasting is good. Loads of info on the internet. Mainly Sugars, dairy milk, processed foods, red meats...not too much caffeine but the main culprit is sugar, it feed the psoriasis. Smoking. But u got to be patient and consistent to see results


Jane
Jane @jane2445

Five years in I’m still trying to figure out it’s behaviour..stress seems to be strongly involved.


Carolyn
Carolyn @carolyn950

I am still trying to grasp what inflames my breakout.


Barbara
Barbara @barbara4057

I cut down on sugars and junk.
More proteins.
These dermatologist don't treat the whole problem.
Topical creams don't work. It's internal
A lot of stuff I get burns bad. Hydrogel they have me using works somewhat but stings. Delicate area


 john,AQUA MAN
john,AQUA MAN @chewbacca

Well done to you Barbara :) hopefully you will see some changes in time , just need patience ,best things come to those that wait :)


Jasmine
Jasmine @jasmine4

I have been told and I also understand it is an auto immune “disease” which I completely get because I find that whenever I get the tiniest hint of my immune system going down the drain my psoriasis just explodes without the tiniest hint that it’ll happen. So in order to keep it at bay I have to make sure my immune system is in full gear and ready to takclle whatever bug wants to knock me on my ass


jim
jim @jim1966

hello, I don't know what brought it on to me but ive been told stress

causes it , I dident think I suffered any stress so only other thing I can think of is I was prescribed statins by doc for colestoral and they don't agree with me .


Barbara
Barbara @barbara4057

It is an autoimmune disease like my rhuematoid arthritis


 john,AQUA MAN
john,AQUA MAN @chewbacca

Hello Barbara, is it rhuematoid arthritis you have ? rhuematoid arthritis is near the same as psoriatic arthritis, it has the same characteristics, some Docs can get it wrong as its very similar, you have psoriasis and arthritis ,they are link together if psoriatic arthritis?, thank you :)


Barbara
Barbara @barbara4057

Could be stress.
I don't drink alcohol much.
Few years ago, I was big on Mountain Dew.
Red, Orange are my favorites but tons of sugars. I cut down on donuts, candy, etc. I think sugar is a trigger.
I eat better, more protein, probiotics.
Stress, I have a long way to go. I work so much to make ends meet. I do it all myself


 john,AQUA MAN
john,AQUA MAN @chewbacca

Hello barbara, sugar is pretty evil stuff, usually is a trigger for most aswell as gluten/wheat,citrus fruits, junk foods fast foods, fried foods,fizzy drinks,sweets .cakes etc any sauces of any kind,dairy, caffeine, i could go, slow elimination in bad foods is key to success :)sounds like you are doing well though, stress can reduce in time with making changes, i wish you well Barbara :)


Sarah
Sarah @sarahuk

More than I did a year ago, but still not much... I understand it as a part of human variation! But not in it's individual bizarre unpredicatableness... and its causation.


Michelle
Michelle @michelle1021

Hi Barbara. I can't add anything to what John has advised. The elimination diet works great for us P sufferers and many has seen improvement by that. Try it and see if it works for you but please keep us updated okay? We are here should you need more advice.
Hi Jim. Psoriasis and high cholesterol are linked which could be the reason why your P was triggered? A healthy active lifestyle will improve your condition. Eat a healthy, balanced diet and don't stress. We are here should you need more advice. Good luck! :)



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