11 Jul 07:23
Coping, relationships, friends & family
Does your Psoriasis negatively impacts your family/friends' quality of life?
Please don't include specific medical product brand names or external links.
11 Jul 07:31
It used to have a negative impact on my family and friends as I did not know how to cope with my Psoriasis. I did not accept my condition and I made life very difficult for everyone else. Whenever we would go on holiday, they had to avoid activities such as outdoor sports, social gatherings as I wasn't interested and they were very considerate towards me and my P. I was very selfish then. Luckily I woke up and realized how selfish I was.
11 Jul 07:33
Only person it effected was myself no one else really notices or is bothered by it .
11 Jul 07:48
That's good Chris. By having P we might become selfish if we don't accept our condition.
11 Jul 09:40
Yes it did impact them as I chose not to be part of any outdoor activities ... I missed a couple of family photo shoots & functions as well, as my hair had to oiled & I was never going to be seen like that..I am now comfortable with going out & a the people that see me are so astonished by my short hair as I always wore my hair long ... I am now confidently telling them about my Psoriasis.... Oh how I have GROWN in my old age !!!!
11 Jul 09:55
True Ellen. It amazes me by how I have grown as well and still can't believe I was this insecure scared little girl before.
11 Jul 10:22
To my family and me its only the P off positive.
I know they love me just way I am. Even my kids think its okay if I walk in short clothes. I don’t need aprovle of anyone, but its great when your family supports you. When I ask my kids, teenagers, if it botheres them if I wear a short dress or something to a place like their school, they tell my: “why not, that is a silly question”.
My husband always keeps his eyes and ears open to find a remedy. That’s so sweet.
There aren’t things I do not do because of the P. I might be ill sometimes because of the inflamation in my ears or tired because of the artritis. But thats just the way life is, me or my family are not bothered by that.
11 Jul 10:36
Awww Million, you have a sweet husband indeed and your kids sounds adorable. I'm so happy your family support you with this condition and as long as they accept you then nothing else matters.
11 Jul 10:51
You sure are Blessed Million.............
11 Jul 11:04
Thank you Elllen and Michelle and yes, nothing else matters. My family is a big part of my happiness.
11 Jul 11:33
I normally only have on my head, so no, unless I scratch a lot, but I try not to. I have had a flareup these past few weeks, as I lost my mother 1 week before her 100th birthday which would have been June 28th. I am suffering a lot from her death and my whole body seems to be in rebellion. I now have a small flareup on my chest and front of shoulders. so I wear clothes that hide it.
11 Jul 12:06
I'm sorry for your loss, Carole. No matter how old we or our parents are, it's always too early to give them up! Be kind to yourself! 🦋
11 Jul 12:19
Carole, There is a piece from your heart. I hope you can take time to be sad. So you will feel a little bit better soon and makes you able to remind the good memories. Wishing you the best ❤️
11 Jul 12:42
Carole, the loss of a mother is a great loss. Moms are special people. (and dad's too) There’s a special place in all of our hearts for our mothers, just like there’s a special place in every mother’s heart for her children. You must continue to carry her memory in that special place in your heart. I am sincerely sorry for the loss of your mother. Take care of yourself and remember we are here for you xx
11 Jul 13:52
thank you all for your responses - I'm an only child, so mom and I were even closer than the usual mother and daughter. Her loss has affected me so much, to the point of some days feeling a paralysis of mind and body that won't allow me to do anything but cry. She was a wonderful human being, a wonderful mother, my model and my hero all rolled into one. I will always miss her. I am blessed to have had her for my 73 years on this earth and have wonderful memories to carry me through. I love her and will always carry her in my mind and more importantly in my heart.
11 Jul 14:00
Oh Carol. You and your mom had a special bond and I envy that. To have a mother as wonderful as yours is a privilege and it warms my heart to see how much you loved her. I hope my daughters will remember me like that one day. You are blessed and the memories of your mom will always be with you. Stay strong xx
11 Jul 21:41
I am so sorry for the loss of your much loved mother Carol. It's so hard when you are very close. I was very close to my mother and totally devastated when I lost her even after 13 years I still miss her. Your mother will always be in your heart and remember the good times you shared through your life together. If you feel down talk to her. It may be tough now but remember while she is in your heart she will always be with you to give you strength to see you through the pain
. It may be tough now but just remember she will always be with you in your heart
Your mother will be in your heart forever
12 Jul 02:35
Beautifully said Mavis <3 Sorry for your loss Carol. I love how Mavis says to talk to her when you feel down & she will always be with you to give you strength to see you through the pain. I do that with my grandmother who I lost 28yrs ago and always makes me feel better. I know she has been my guardian angel and has helped me through many hard times. When I am worried, or have something on my mind, I find dimes in the wildest places. I feel like they are sent from her, as a message that I am on the right path or that everything is going to be okay. I have saved everyone that I have found over the years.. I have quite the collection! Lol. Every time I have told someone my dimes story.. they start finding them in strange places too :) its pretty neat.. I love it!
12 Jul 03:07
It doesn't Michelle. When I became a mom I came to the realization that I am here to enjoy life, savor each moment and teach my children to grow up kind and confident. My husband helped me grow immensely too. Before them I was not in a good place in regards to my skin. My friends were always supportive but never truly understood the depths of p.
12 Jul 09:43
No Michelle,I try not to be negative about it and i keep a lot of it to myself if i do get down, Well i do tell on here though its rarely i have given a negative post, if i have that is ? :)
12 Jul 10:00
I have never seen a negative post from you John. If that day has to come then all of us will know something big is going on in your life. It doesn't help to be negative as you're getting nowhere with it anyway. Sit in a corner and cry is not going to resolve the problem. You're a positive person John and always giving us great advice. Thank you :)
12 Jul 10:06
Aw thank you Michelle, , yes i have been there in a dark place many times throughout my life ,I hope i never go back there, i do try to give good advice michelle :) and thank you :)
12 Jul 10:18
You know John, whenever my kids having difficulties at school and work, I used to tell them, to tell themselves, "I am Deliberate, and I am afraid of Nothing" which comes down to, its a reminder that if you want to be successful, you’ll need to work like your life(style) depends on it and don't be afraid to achieve your goals. This is not only about work and school but for our everyday life (personal issues). My mom used to inspire me with that quote. You will not go back there John as you have grown wiser and stronger and you know how to handle a situation. :)
12 Jul 10:36
You are inspiring, Michelle. What reminds me of my fathers quote:
Even how hard life can be
We have to master it
Who doesnt master it
Will always be treated as a pupil
(Might be a lousy translation, but I think you know what I mean)
Keep up the positive you all!
12 Jul 10:47
So true, Michelle you are inspiring for sure ,a lovely person too :)
12 Jul 10:49
Thank you Million.
I love your dad's quote and it is so inspiring. We need to master the difficulties in life. I remember reading something that goes - "The future has several names. For the weak, it is the impossible. For the fainthearted, it is the unknown. For the thoughtful and valiant, it is the ideal." Do you know how many times I have read that over and over again to only realize that my future's name is "impossible"? That was a slap in my face from myself. With attitude change comes ideal. And so we all grow wiser. It's only up to us to choose the right future right?
12 Jul 10:50
Thank you Michelle, I dont know about being wiser,? i will let you know about that in time haha :)
12 Jul 11:14
Thanks, I will keep that one in my mind!
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