Jayne
...feeling frustrated Jayne @jaynemaber

Treatment

Well I spent 9 days in hospital with erythrodermic psoriasis - very scary. I put on 13kg due to fluid retention and it still has not gone down completely. Am spending my days covered in liquid paraffin - oh the joys of this horrible condition !!!!

18

Please don't include specific medical product brand names or external links.

18 responses

Michelle
Michelle @michelle1021

Oh Jayne. I am so sorry to hear. It will take time to get rid of the fluid but remember to stay positive okay? Does the liquid parraffin work and what else are you using for the P? I wish you well and I will keep you in my prayers.


Jayne
Jayne @jaynemaber

Thanks Michelle - I am also using a steroid and coal tar mixture once a day and the paraffin every 2 hours - its very messy but does work. I have also started biologics - was worried about injecting myself but it has proved to be no problem. x


Michelle
Michelle @michelle1021

I hope it all works for you Jayne. It can't be easy. I'm going on about 1 extra spot on my shoulder and here you are with so much worse. I'm so sorry. As you know I'm a coal tar fan and it does help me. I've never used paraffin before but I've read that paraffin soothes your skin? I know it will also dry it out but what moisturizer are you using? Or is it moisturizer mixed with coal tar? Good luck Jayne and keep us updated okay? We are here for you xx


Bev
Bev @bev43

So sorry to hear how much you have suffered Jayne and are still suffering. I pray everything you are doing will allow your skin to heal. Stay strong Jayne


James
James @ferns

Not good Jane, but thanks for sharing, I'd never heard of this type of P. I'll now check it out in more detail.


Jayne
Jayne @jaynemaber

Thank you Bev x James - it is apparently pretty rare but horrible ( the nurses in hospital had never seen it before ) my skin came off in sheets and I still have no fingerprints - I could commit a crime but would leave my DNA at the scene lol !
Michelle I am not using any other products at the moment 50/50 paraffin is an emollient in its own right x


 john, Psoriasis terminator
john, Psoriasis terminator @chewbacca

Hello Jayne, sorry about your stay in the hospital and all you been through, i hope things will get better for you , keep us updated please


Michelle
Michelle @michelle1021

at least you still have your sense of humor Jayne! Lol. I hope your P gets better soon and Good luck xx


Ava
Ava @ava1

Sending up thoughts and prayers for easing of pain and a thorough recovery - from across the pond, Jayne!
🌺🌻πŸ₯€πŸŒΉπŸŒ·πŸŒΈπŸ’πŸŽ‰


Sarah
Sarah @sarahuk

Argh Jayne, thinking of you! Really hope your recovery is swift from here on in...


Rhonda
Rhonda @rhonda6

I’m so sorry. Hope you recover quickly.


Michelle
Michelle @mishlyn

I hope you are feeling better Jayne, that is a lot to go through. Wishing you a speedy recovery ❀


Ava
Ava @ava1

Hope you're better today, Jayne!


Jayne
Jayne @jaynemaber

Good morning all - hope you are well ?. The swelling is going down and I now have knees and ankles again. Hopefully going back to work next Monday. Had my 4th biologic on Friday and cannot believe the difference in my skin, have gone from 90% coverage to about 10% = Happy Days !!!!!


Michelle
Michelle @michelle1021

That is wonderful news Jayne and I'm so happy for you. Well done! xx



Ava
Ava @ava1

Jayne, this calls for a celebration!

🌺🌻πŸ₯€πŸŒΉπŸŒ·πŸŒΈπŸ’πŸŽ‰


Bev
Bev @bev43

Wow Jayne that's fantastic. You must be over the moon πŸ€—



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Jayne
Jayne @jaynemaber
Gloucester, United Kingdom

hi I am jayne an have had psoriasis for over 30 years - am now young free and single ( ok forget the young bit lol ) Watch out world - here i come !!!!



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