john, Psoriasis Terminator
...feeling okay john, Psoriasis Terminator @chewbacca

Secrets, looks, strangers

Just curious, dont know if this been posted ?

Flaymers here that have had psoriasis for years since childhood, Has your psoriasis improved with age or has got worse with age ? Thank you :)

38

Please don't include specific medical product brand names or external links.

38 responses

Michelle
Michelle @mishlyn

Hey John, I have gotten better over the years, but I dont think its age, but more of learning what is best for my skin & figuring out my triggers.


James
James @ferns

John, late teens for me and its worse now than its ever been.


De
De @de

I was 11 when it started. It is worse now. I am not sure that steroid meds and sun ( which was the only option 56 yrs ago) may have caused more harm than good in the long run.


Michelle
Michelle @michelle1021

I have P since I was 17 and it got better over the years and like Michelle, learned what is best for my skin and how to manage my P. :)


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Thank you for your replies, i am sure there will be more replies. I am sorry for you getting it worse with age , James and De thank you


Kaz2504
Kaz2504 @kaz2504

Hi John, mine started about 2 yrs ago from nowhere when I was 56. X


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Sorry to hear this Kaz, you know what triggered it? thank you


Kaz2504
Kaz2504 @kaz2504

No John, not a clue! X


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

I see thank you,well i am sorry about this, must had been a big impact on you when this happened i am sure as for many here with getting this after been a clear skin, I wouldnt know as i am lifer since birth Kaz,its a part of me and always has been but, it could be worse for me and mines not bad so i am thankful for that thank you


Kaz2504
Kaz2504 @kaz2504

I’m slowly getting used to it! It’s the embarrassment at work of flaking! People know exactly where I’ve been! Lol. Even the loo! X


Michelle
Michelle @michelle1021

hahaha Kaz, we have all been there and I can feel your embarrassment but hey, look at the bright side, if we have to go missing, somebody will easily find us . ;)


Jim
Jim @jim1235

Hi John, I came into this world with psoriasis. My mother told me my scalp was terrible. As a youngster it was very mild, hardly noticeable. In my late teens and college years when I partied a lot and my diet was terrible guess what? I was totally clear of p. Today, several years later, p is back stronger than ever, even though my diet is good, I have no stress to speak of, and I treat it the best I can. Go figure!


Rosey
Rosey @sue2023

Same story as Jim's,worse as medical intervention woke up the p,no one was to know the reaction would be this bad,got to deal with it ,good times and bad


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Sounds like an episode i had for couple of years years ago where it was really good and yes like you, i partied hard i drank like a fish near every night,smoked like a steam train,i ate crap ,i was doing recreational drugs, i dont that now and havnt for years,makes your head go screwy, I worked rubbish hours and i girlfriend that was a nightmare ,i cant figure that either that was 12 years ago or more ago, i was in my mid 30s then, 2 years of good skin, though i have never been completely clear but ,not been far off, its a mystery for sure Jim :)


Janice
Janice @Immy

Worse since I retired 8 years ago, had it since I was 10 and I am now 70.


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Sorry about this Janice,Do you think retirement triggered it to get worse or with all the other problems you have has triggered it or a combination of both ? thanks


Debbie
Debbie @DD77

John in regards to your post about P getting worse as you age . I would have to say yes.


Kim
Kim @Foody

Mine has phases John. Apart from my lower legs I am pretty much clear at the moment. This time next week though? Who knows? I could be raging again. I think it doesn't matter what age you are, once it's triggered it's triggered. Just because you are clear on the outside its still killing you inside.
I was just an elbows, knees and scalp girl until I hit my twenties and then it got worse. It's all about the insides!!!!


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Hello kim, The reason for this post, i know of people who have it bad as a child like i did, and they grow out of it to a degree, i never get it like i did as a child ,i never been back there thankfully for me, My trigger is winter and its always been that way, just the fact its cold and my skin gets worse when i was child i would be covered in it in the winter,Even though i have put here worse as get older or better as get older, i am interested for myself if people have got better as an adult than what they were as child,Well Kim, truth is , we will all die eventually isnt that the truth whether with psoriasis or not , we know the problem is from within,luckily i am not feeling like i am dying yet :), I will never know if things will ever change for me? if they do and things got bad, then i know what to do, We are all different on how it affects us , no 2 people are the same, i know of 3 with psoriasis one of those is flaking in spain, one is my close friend and another is another of my friends girlfriend for whom i been helping for some time, i am the worst flaker out of all of us but, mine is not bad at all,some people here do just flare up, i dont at all ,winter is my time of it being a nuisance for sure but, its still not bad compared to residents that i see in the nursing home where i work,I saw one lady so bad, chunks of skin was falling and she couldnt walk ,her legs were like baloons and her feet, seriously, if i was like that in her position,i shouldnt say this, but , i think i would rather put my light out to be honest, sorry to say that people but thats me , My skin is great and places i thought wouldnt clear have been great at the moment, starting to know what it feels like to be a clear skin to a degree, think its the heatwave thats helped a lot :),thank you Kim :)


Sarah
Sarah @sarahuk

Mine hasn't got a clear trend either way really. It fluctuates so much between horrendous and OK. Like the guttate flare last year... or the pregnancy awfulness. And the teenage helplessness. And moments of relative "relief" in between (aka just normal psoriasis). It really is up and down for me...


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Hello Sarah, , we are all different , no 2 people are the same i have found when i first came here,i thought my life is great,i am worrying about a few flakes here and there and others here are covered in it and it has a huge impact on their lives,Do i feel lucky, yes i do,I have had relationships throughout my life and its never bothered anyone ,only time was my last girlfriend didnt like it and i joined here at that time over a year and half ago to look for some answers and do what i can to get it better, it was my worst winter in years, whether it was a build up of all my stresses from the 2 years of crap, i do not know though i wasnt affected in the 2 years i had all this crap i had to deal with,though i dont think stress triggers me off.I know of some that nibble on a tomatoe say and next day they itch and scratch and skin goes up in a flare,dont seem to happen to me,maybe a few tiny spots i dont really notice i dont know,we are all different for sure thanks Sarah :)


Kim
Kim @Foody

If it was a skin complaint John then being clear would be the aim but we are all the same as in we have an auto immune condition that is fighting us. I agree we are all at different levels of flaking but we still have that pesky condition regardless of how flakey we are.
When I was diagnosed with high blood pressure it was mentioned that I've had Psoriasis for 50 years and I should more or less accept that it's part and parcel of it.
Absolutely we are all going to die one day but we are already at a disadvantage!!! We can only hope that a lot more research is put into this for future generations.


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

True kim i agree with you,,i suppose we go by what we see on the outside than the inside of us,yes its true it all happens from inside no doubt about that at all kim,Why i believe in diet changes to hopefully reduce my symptoms, ,i know i wont be a clear skin, i remember you said to me, dont look for that, i did get down about it but, some good came out of it,i lost weight and my joints got better and are still good as long as i dont drink too many vodkas :) We do hope that things will be better in the future, maybe when i am long gone who knows, i know i am not looking for that, i had all this in my mind as a child and it can destroy oneself waiting for it to happen, one day hopefully Kim who knows,, :)


Kim
Kim @Foody

Yes, I hear what you are saying. If we go down the bad route we let it control us. One thing is for sure... We ain't normal... and you can never drink enough Vodka!! Or Bacardi in my case!!!! 🍷🍷🍷🍷🍷🍷🍷


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Haha, we aint normal, :) I will remember, if i have blood test say ,a Doctor may say to me , nothing wrong, you are normal John, I will say,no i am not haha :)


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Sorry about this Debbie, just seen what you wrote,Seems quite a few get worse as they get older :( , Sorry for you on this and others here


Lou
Lou @lou60

Mine has gotten better with age everything else is bad..


Lindakay1948
Lindakay1948 @lindakay1948

Some small scaling patches began in my Teens and then they took a Hiatus for 40 years..then reappeared in my early sixties .Mine started in Full On Flare Mode and stayed there while I grieved the Death of both my Baby Sister Sue Anna and My Mother..and then I lost my job oh not as a result of it as I was a highly paid Nurse..but as the P took over my mind went a tad bizerk as well, I became deeply depressed,grieving,unemployed really truly unable to walk as both feet and hands had giant fissures,bleeding and crusts all over them tops,bottoms up my arms,down my back..and so much pain...so much pain..the Flakes were almost unbearable..I looked worse than my oncology patients...it lasted two years. I have had the extreme pleasure of being here and have learned many coping skills,went back to work in Home Care...I have also begun to crack the Books..they don't really teach much about skin..but through the Voices of People who suffer ,happily with Flakes,weather the days and nights on a wing and a prayer I am no longer alone and am able to thrive once again doing what I love most dearly Patient care,my animals and my small ranch..I wear Better shoes too :>) and I get to tease John once in awhile..God Bless you all Flaymers ,a great Dermatologists who respects me..and you my loving,caring friends...Flakes the same..maybe worse some days but happier woman here


Heather
Heather @heather270496

Definitely has gotten worse with age, started in my early 20's with a small spot on the back of my arm, mid 30's elbows, knees, ankles. Got pregnant and it all went away, funny because I had already had 2 pregnancies and it didn't change. Move into my 50's and it is just getting worse still on knees, elbows, and ankles has spread to my wrists, backs of by heals, upper legs, backs of my hands and several spots on my back. I find summer is worse than winter, very humid and wearing sandals seem to make it worse on my feet. In the winter it is very cold and dry and it seems to clear up slightly.


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

Thank you Lindakay and Heather ,Lindakay,what a story, thank you for sharing and Heather too :)


Glenn
Glenn @glenn

Mine has either got better through age or because I spend more of my working life outdoors, baring as much skin as humanly possible, without showing too much 😂
Below the knees, its now clear my Torso is about 85% clear and arms about the same


ellen
ellen @elle

About the same really


lesleyjane1
lesleyjane1 @lesleyjane1

Hi John, mine was getting progressively worse, over 80 per cent coverage at times, been taking a new tablet twice a day for the past 18 months and it has completely cleared up, still got the arthritis but have just worn shorts for the first time in twenty years. The tablets are very expensive though about £500 monthly so don't know if it's a "postcode lottery" for the prescription.


denise
denise @denise85

Worse with age, unfortunately. What started as a few spots on my elbows is now psoriatic arthritis, fibromyalgia and costochondritis.


JODI
JODI @jodi

definitely worse with age. The flare ups' become so much worse, which I feel could be due to certain medications used.


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

I thank you for your replies, i am sorry about your hassles with this :)


Jennifer
Jennifer @Jenw5

Definitely worse w age.


 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca

You sound very positive C, that does help for sure, yes i drink beer now and again,makes no difference to my P,i know we are all different , I choose a healthy lifestyle because of my joints mainly, works very well thanks C :)



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 john, Psoriasis Terminator
john, Psoriasis Terminator @chewbacca
Salisbury, Wiltshire, United Kingdom

psoriasis terminator, you been targeted for termination, dont come back :) i am a maintenance operative in my job, i am a plumber by trade.I have had psoriasis all my life since birth 49yrs, psoriatic arthritis 15 years.





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