27 Jul 12:07
Secrets, looks, strangers
Just curious, dont know if this been posted ?
Flaymers here that have had psoriasis for years since childhood, Has your psoriasis improved with age or has got worse with age ? Thank you :)
Please don't include specific medical product brand names or external links.
27 Jul 12:12
Hey John, I have gotten better over the years, but I dont think its age, but more of learning what is best for my skin & figuring out my triggers.
27 Jul 12:13
John, late teens for me and its worse now than its ever been.
27 Jul 12:16
I was 11 when it started. It is worse now. I am not sure that steroid meds and sun ( which was the only option 56 yrs ago) may have caused more harm than good in the long run.
27 Jul 12:18
I have P since I was 17 and it got better over the years and like Michelle, learned what is best for my skin and how to manage my P. :)
27 Jul 12:27
Thank you for your replies, i am sure there will be more replies. I am sorry for you getting it worse with age , James and De thank you
27 Jul 12:37
Hi John, mine started about 2 yrs ago from nowhere when I was 56. X
27 Jul 12:51
Sorry to hear this Kaz, you know what triggered it? thank you
27 Jul 13:07
No John, not a clue! X
27 Jul 13:16
I see thank you,well i am sorry about this, must had been a big impact on you when this happened i am sure as for many here with getting this after been a clear skin, I wouldnt know as i am lifer since birth Kaz,its a part of me and always has been but, it could be worse for me and mines not bad so i am thankful for that thank you
27 Jul 13:25
I’m slowly getting used to it! It’s the embarrassment at work of flaking! People know exactly where I’ve been! Lol. Even the loo! X
27 Jul 13:33
hahaha Kaz, we have all been there and I can feel your embarrassment but hey, look at the bright side, if we have to go missing, somebody will easily find us . ;)
27 Jul 13:44
Hi John, I came into this world with psoriasis. My mother told me my scalp was terrible. As a youngster it was very mild, hardly noticeable. In my late teens and college years when I partied a lot and my diet was terrible guess what? I was totally clear of p. Today, several years later, p is back stronger than ever, even though my diet is good, I have no stress to speak of, and I treat it the best I can. Go figure!
27 Jul 14:02
Same story as Jim's,worse as medical intervention woke up the p,no one was to know the reaction would be this bad,got to deal with it ,good times and bad
27 Jul 14:08
Sounds like an episode i had for couple of years years ago where it was really good and yes like you, i partied hard i drank like a fish near every night,smoked like a steam train,i ate crap ,i was doing recreational drugs, i dont that now and havnt for years,makes your head go screwy, I worked rubbish hours and i girlfriend that was a nightmare ,i cant figure that either that was 12 years ago or more ago, i was in my mid 30s then, 2 years of good skin, though i have never been completely clear but ,not been far off, its a mystery for sure Jim :)
27 Jul 15:58
Worse since I retired 8 years ago, had it since I was 10 and I am now 70.
27 Jul 16:11
Sorry about this Janice,Do you think retirement triggered it to get worse or with all the other problems you have has triggered it or a combination of both ? thanks
27 Jul 18:09
John in regards to your post about P getting worse as you age . I would have to say yes.
27 Jul 18:20
Mine has phases John. Apart from my lower legs I am pretty much clear at the moment. This time next week though? Who knows? I could be raging again. I think it doesn't matter what age you are, once it's triggered it's triggered. Just because you are clear on the outside its still killing you inside.
I was just an elbows, knees and scalp girl until I hit my twenties and then it got worse. It's all about the insides!!!!
27 Jul 18:49
Hello kim, The reason for this post, i know of people who have it bad as a child like i did, and they grow out of it to a degree, i never get it like i did as a child ,i never been back there thankfully for me, My trigger is winter and its always been that way, just the fact its cold and my skin gets worse when i was child i would be covered in it in the winter,Even though i have put here worse as get older or better as get older, i am interested for myself if people have got better as an adult than what they were as child,Well Kim, truth is , we will all die eventually isnt that the truth whether with psoriasis or not , we know the problem is from within,luckily i am not feeling like i am dying yet :), I will never know if things will ever change for me? if they do and things got bad, then i know what to do, We are all different on how it affects us , no 2 people are the same, i know of 3 with psoriasis one of those is flaking in spain, one is my close friend and another is another of my friends girlfriend for whom i been helping for some time, i am the worst flaker out of all of us but, mine is not bad at all,some people here do just flare up, i dont at all ,winter is my time of it being a nuisance for sure but, its still not bad compared to residents that i see in the nursing home where i work,I saw one lady so bad, chunks of skin was falling and she couldnt walk ,her legs were like baloons and her feet, seriously, if i was like that in her position,i shouldnt say this, but , i think i would rather put my light out to be honest, sorry to say that people but thats me , My skin is great and places i thought wouldnt clear have been great at the moment, starting to know what it feels like to be a clear skin to a degree, think its the heatwave thats helped a lot :),thank you Kim :)
27 Jul 18:56
Mine hasn't got a clear trend either way really. It fluctuates so much between horrendous and OK. Like the guttate flare last year... or the pregnancy awfulness. And the teenage helplessness. And moments of relative "relief" in between (aka just normal psoriasis). It really is up and down for me...
27 Jul 19:04
Hello Sarah, , we are all different , no 2 people are the same i have found when i first came here,i thought my life is great,i am worrying about a few flakes here and there and others here are covered in it and it has a huge impact on their lives,Do i feel lucky, yes i do,I have had relationships throughout my life and its never bothered anyone ,only time was my last girlfriend didnt like it and i joined here at that time over a year and half ago to look for some answers and do what i can to get it better, it was my worst winter in years, whether it was a build up of all my stresses from the 2 years of crap, i do not know though i wasnt affected in the 2 years i had all this crap i had to deal with,though i dont think stress triggers me off.I know of some that nibble on a tomatoe say and next day they itch and scratch and skin goes up in a flare,dont seem to happen to me,maybe a few tiny spots i dont really notice i dont know,we are all different for sure thanks Sarah :)
27 Jul 19:25
If it was a skin complaint John then being clear would be the aim but we are all the same as in we have an auto immune condition that is fighting us. I agree we are all at different levels of flaking but we still have that pesky condition regardless of how flakey we are.
When I was diagnosed with high blood pressure it was mentioned that I've had Psoriasis for 50 years and I should more or less accept that it's part and parcel of it.
Absolutely we are all going to die one day but we are already at a disadvantage!!! We can only hope that a lot more research is put into this for future generations.
27 Jul 19:34
True kim i agree with you,,i suppose we go by what we see on the outside than the inside of us,yes its true it all happens from inside no doubt about that at all kim,Why i believe in diet changes to hopefully reduce my symptoms, ,i know i wont be a clear skin, i remember you said to me, dont look for that, i did get down about it but, some good came out of it,i lost weight and my joints got better and are still good as long as i dont drink too many vodkas :) We do hope that things will be better in the future, maybe when i am long gone who knows, i know i am not looking for that, i had all this in my mind as a child and it can destroy oneself waiting for it to happen, one day hopefully Kim who knows,, :)
27 Jul 19:44
Yes, I hear what you are saying. If we go down the bad route we let it control us. One thing is for sure... We ain't normal... and you can never drink enough Vodka!! Or Bacardi in my case!!!! 🍷🍷🍷🍷🍷🍷🍷
27 Jul 20:16
Haha, we aint normal, :) I will remember, if i have blood test say ,a Doctor may say to me , nothing wrong, you are normal John, I will say,no i am not haha :)
27 Jul 21:15
Sorry about this Debbie, just seen what you wrote,Seems quite a few get worse as they get older :( , Sorry for you on this and others here
27 Jul 23:21
Mine has gotten better with age everything else is bad..
28 Jul 03:42
Some small scaling patches began in my Teens and then they took a Hiatus for 40 years..then reappeared in my early sixties .Mine started in Full On Flare Mode and stayed there while I grieved the Death of both my Baby Sister Sue Anna and My Mother..and then I lost my job oh not as a result of it as I was a highly paid Nurse..but as the P took over my mind went a tad bizerk as well, I became deeply depressed,grieving,unemployed really truly unable to walk as both feet and hands had giant fissures,bleeding and crusts all over them tops,bottoms up my arms,down my back..and so much pain...so much pain..the Flakes were almost unbearable..I looked worse than my oncology patients...it lasted two years. I have had the extreme pleasure of being here and have learned many coping skills,went back to work in Home Care...I have also begun to crack the Books..they don't really teach much about skin..but through the Voices of People who suffer ,happily with Flakes,weather the days and nights on a wing and a prayer I am no longer alone and am able to thrive once again doing what I love most dearly Patient care,my animals and my small ranch..I wear Better shoes too :>) and I get to tease John once in awhile..God Bless you all Flaymers ,a great Dermatologists who respects me..and you my loving,caring friends...Flakes the same..maybe worse some days but happier woman here
28 Jul 04:23
Definitely has gotten worse with age, started in my early 20's with a small spot on the back of my arm, mid 30's elbows, knees, ankles. Got pregnant and it all went away, funny because I had already had 2 pregnancies and it didn't change. Move into my 50's and it is just getting worse still on knees, elbows, and ankles has spread to my wrists, backs of by heals, upper legs, backs of my hands and several spots on my back. I find summer is worse than winter, very humid and wearing sandals seem to make it worse on my feet. In the winter it is very cold and dry and it seems to clear up slightly.
28 Jul 04:59
Thank you Lindakay and Heather ,Lindakay,what a story, thank you for sharing and Heather too :)
28 Jul 09:37
Mine has either got better through age or because I spend more of my working life outdoors, baring as much skin as humanly possible, without showing too much 😂
Below the knees, its now clear my Torso is about 85% clear and arms about the same
29 Jul 18:56
About the same really
31 Jul 17:20
Hi John, mine was getting progressively worse, over 80 per cent coverage at times, been taking a new tablet twice a day for the past 18 months and it has completely cleared up, still got the arthritis but have just worn shorts for the first time in twenty years. The tablets are very expensive though about £500 monthly so don't know if it's a "postcode lottery" for the prescription.
03 Aug 09:31
Worse with age, unfortunately. What started as a few spots on my elbows is now psoriatic arthritis, fibromyalgia and costochondritis.
10 Aug 09:15
definitely worse with age. The flare ups' become so much worse, which I feel could be due to certain medications used.
11 Aug 08:32
I thank you for your replies, i am sorry about your hassles with this :)
16 Aug 06:25
Definitely worse w age.
25 Aug 11:40
You sound very positive C, that does help for sure, yes i drink beer now and again,makes no difference to my P,i know we are all different , I choose a healthy lifestyle because of my joints mainly, works very well thanks C :)
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MY FLAKES ARE ILLOGICAL CAPTAIN :), I am a maintenance operative in my job, i am a plumber by trade.I have had psoriasis all my life since birth 49yrs, psoriatic arthritis 15 years.
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