04 Sep 07:51
How do you cope emotionally when you have new flare ups?
Please don't include specific medical product brand names or external links.
04 Sep 07:55
Luckily Flaym, i dont get flare up. just gets a bit worse in the winter as its cold lack of vitamin D which is better from the sun,I do take supplements though,I would be near a clear skin if i wasnt in the uk and somewhere warm all year round,i am used to it though :)
04 Sep 08:17
Having a flare up right now. And I was getting so happy with my skin. Disillusioned now and very sad and angry. Just feel like crying. Didn't do anything different. Staying home. Curling up with books and TV. Sticking to diet, not that I feel like eating anything!, water and moisturisers. No not coping very well emotionally...
04 Sep 09:14
It is fair to say I don’t cope that well, I get scared of it and start thinking it will get so bad that I will give up. So far, over some 40 years of dealing with it I have always coped. And I’m still scared each time. Sigh.
04 Sep 10:57
I tell myself I don't care what my skin looks like and usually the condtion stops.
04 Sep 11:10
I accept that I have this condition and that it is unpredictable. I accept that there is no cure, there is only possibly improvement.
If I do not feel comfortable for a day, that's okay. I make sure that I get enough rest. The next day it will be better again.
And if I have a bad mood, I put on good music, sit on a bench in the sun or take a walk.
A bad day is not a bad life. A bad week neither.
04 Sep 13:51
Feels like watching a horror movie that might end well or not... It depends on where it is as well
04 Sep 16:15
I have had flares that take months to calm down but once it is over and I kind of know what to expect I think I can get through just about anything. I never know from day to day what it will be like. Right now I have lots of large red areas on my arms and hands that burn. That is something new. I also have lots of flaking on my hands and scalp and a football size area on my back all of which are with me most of the time. I am so used to it that it really does not affect me much.
04 Sep 16:51
P is like a terminator.....I'll be back and it is so no emotion just coping with smiles and humour
04 Sep 16:56
of on hols soon bring on the sunshine
04 Sep 17:20
I just put my headphones on & listen to my Irish music, & my Pan Pipe tunes. Takes me away into another world.
04 Sep 18:00
i always remeber there is always somone who is suffering more than i am
04 Sep 22:29
Good thing to remember!
04 Sep 22:33
I just put up with it, as it's in my scalp I wear white or beige and hope nobody sees the flakes, there are worse cases than mine so I mustn't complain.
05 Sep 06:50
Truth,I didn't want to be here on this earth,,3 painful flares,? They last mths,Just when I said to dr,(4 drs in a week) I just can't do this anymore,the pain went? I don't mind the all over rash,spots,maps,on body,even the flakes,which fall alot before lemons and coconut oil applied,the 10O needles that I feel in my body and the burn just gets too much,lt lasts for 8 weeks,and disappears ,maybe not p pain as happens like every 3 mths,p I deal,this pain I cannot,today no pain,but p everywhere,I just thank the pple here on flaym for being non judgmental
05 Sep 06:53
Rosey, thanks for sharing your true feelings. Hang in there. You can do it! 💙
05 Sep 11:19
I try to figure out what caused it...Right now, I’m in the beginnings of a flare up...Had steak again...this time, I cooked it at home...The last three flare ups, I had eaten steak out...in a restaurant...so...I stopped eating out...
Got a nice steak and cooked it at home...not organic...I just DO NOT tolerate any chemicals, drugs, pesticides, GMO’s, etc! I don’t know what is being put in the beef, or what the cows are eating, but I guess that was my last steak unless we raise it ourselves...I had been perfectly clear for over a month...now I’m not...Besides trying to figure out the cause of my flare up....emotionally...I am angry...then, I tell myself all the other things in my life that I have to be thankful for, in spite of my immune system issues.......and go out in my garden and pull weeds...or plant a flower...or bake gluten-free brownies...
05 Sep 13:49
no I am angry snappy cry at the least bit thing hardly sleep
05 Sep 14:28
Carol, that sounds like me but as part of the actual flare-up. I get highly strung and feel weird together with the skin bother.
05 Sep 17:30
Hi my Flaym Xxx. How so I cope...well, I try not to think about it, put other happy things before stress I guess. I don't lime stress. Emotional stress is the worst for P I would say, trying to shut it down is difficult but, once you have the right set of mind, you can manage it. We are not perfect and emotional stress can't just be shut down. We have to learn how to handle it. Xx
05 Sep 18:17
Wouldn't it be wonderful if they could tell us what starts this process and why it does what it does to our bodies? Will it ever happen I wonder.
05 Sep 18:26
No it won't my dear Carol. They don't know apart from prescribing medication. That's why we are here. To learn from the best. Once you're interested and accept the advice, you will see, your P will improve xx
06 Sep 07:58
That's great chris61. Very 😊 for you. I hope your skin stays that way.
06 Sep 11:03
Fantastic Chris so happy for you. Enjoy your last few days
06 Sep 12:49
I have been battling for over 30 years...been through some tough times, notwithstanding this I excelled in my work and achieved all my aspirations. I retired at 60 , in 2015.
This month has been worse especially on my legs,below my knee.
I use dovobet mixed with aqueous cream, which helps with keeping the infection away.
I cover up and still remain positive.
Yoga and Kriya (breathing Techniques) 2 days a week, also calms the mind. (Art of Living)
06 Sep 12:59
Brian am a lifer but been bad as last 2 years,now Clint on here recommend lemons,try it,davovet bad for skin,yep I use it rarely,dont the tabs etc,argh we keep them in money,John will tell you , diet and his right ,no cure,you will learn a lot here,its the best place for support,and I've learned more here than any dr or dermatologist ,so much information and most is the support when no one else understands
06 Sep 18:55
So true, Rosie.
06 Sep 22:00
Thank you Rosey, Yes been there wasting money on so called cures ,as i said there isnt one but , one can do things to make improvements,I am trying something now on a recommendation but ,wont be revealed unless i see improvement,I give it a week and let you know,no improvement with the turmeric,calcium,K2 tablets but i dont have it bad anyway and i do have turmeric regularly in my diet, i take those pills sometimes ,got to be careful i dont over dose myself on supplements, I have just been taking B12 now as i been suffering from anemia, not bad thankfully but was putting me to sleep at work lol,had a blood test last week,something to take into account, lack of iron, it wasnt enough in my multi vitamin as the body can absorb iron pretty easily, We seem to need more of it as we get older, couldnt explain my tiredness, i should get over it after taking supplement of this for quite a few days now :)Derms and Docs cant help you unless you want drugs with potential bad side effects ,too risky for me,i rather put up with problematic places for which this experiment hopefully will help,a bit of a guinea pig if you will,will shall see?,Lemons work for some but made me flake more so i stopped it ,It is trial and error with us flakers sorry sufferers,though i dont consider myself as a sufferer ,psoriasis is more of an annoyance for me these days,as a child was a nightmare ,i thank myself lucky these days,could be worse :)
06 Sep 22:48
07 Sep 05:57
Your welcome Lou :) :)
07 Sep 06:38
My response used to be alot worse - but now, two years, I'm starting to accept things...and I'm seeing a great homeopath who's really helping me. Last year at this time in the winter things were really bad - red angry patches all over my arms and legs. Now my skin is much better, though my ankles are completely red. I can see this condition more realistically now. I know the flares will eventually settle down. Sometimes now it's within a day. But I also look at the clear skin on my arms and know that potentially it's only a minute away from an itch and a flare. So I take all the pills and the herbal remedy (which tastes horrible!) and try to get enough sleep and exercise and stay away from dairy...
07 Sep 12:09
Told you Mr John ,you can't live on 6 hrs of sleep! Least your trying with supplements,most are a waste of time ,got to eat right,m ust admit ,I don't eat vegetables every day and we need 5 serves ,yet to get ginsing,will try eventually,trial and error,and got to stick with it for least a few mths can become tedious,pills and supplements and creams,not enough hours in the day to be totally committed when tired all the time, we all will get there one way or another😉
07 Sep 12:14
haha i do get 6 hours lol thats it,i would start falling asleep at work but didnt actually go to sleep lol though i did once :) I eat around 12 portions of different veggies a day or more ,i cook it all up and take from it everyday :),yes i am okay dropping pills lol,B12 is helping, i am getting my mojo back thanks Rosey :)
07 Sep 12:20
Haha John,u still need more sleep per night ,just saying
07 Sep 12:57
Cant do it, Doc said if its normal for you thats fine , i gave up red meat over a year ago so, why its caught p with me with lack of iron :)
07 Sep 13:04
caught up with me , lack of iron, remember that, B12, we need it ,i go out tonight get drunk and eat crap,so that will help, been 2 weeks since i last drank like a fish,think i be one drunk fish tonight lol :)
07 Sep 13:19
Haha John,get drunk Mr,whats going on with you?
07 Sep 14:20
Tommorrow a bbq,but you can get iron from other sources,Red meat here prob once a week,
07 Sep 19:55
Very sad. But after a whol lot of years I have decided that I really don’t care. This summer I wore shorts and short sleeved tops. If people don’t like it they don’t have to look.
I’m eating well but still a problem that doesn’t want to go into remission.
07 Sep 22:04
I usually cope ok but this time ive got it all over my face and its been really upsetting i feel so ugly. Been indulging myself with chocolate this week. Sugar is bad i know
But it was a real help as i dont drink or smoke 😅 How do u cope hun?
08 Sep 07:37
Sugar is also my coping mechanism wgen I'm down Kathryn which of course makes P i
09 Sep 18:57
For low Iron I've been told to take Flintstone with iron.
10 Sep 05:27
Thanks Lou, I am getting better now since taking supplement of iron :) sometimes 2 tabs a day just makes sure,anemia i horrible, been putting up with it for months and its something easily sorted, thanks :)
10 Sep 10:32
I am good if I follow Alkaline food plan and take som suppl. Turmerc and ginger, avoid selen and omega 6. I take no medicine if I do this. I would love som more info if you have for natural healing.
06 Aug 01:42
I don’t think I can cope emotionally. It’s draining and it makes me cry and angry.
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