Lindakay1948
...feeling relieved Lindakay1948 @lindakay1948

Secrets

Seems to me everytime I go through the Gauntlet of Full on P I curl up like a wounded dog and retreat...anything becomes painfilled even thinking clouds my skin with pain...right now I don't feel utterly encompassed by judging myself

8

Please don't include specific medical product brand names or external links.

8 responses

carol
carol @carol1943

Wow sorry to hear that and wish there was something I could say to help. Have you considered the biologics? They have truly saved my life but many people have deep concerns about the long term effects. Hope you can find some help.


Lindakay1948
Lindakay1948 @lindakay1948

I went on a Cancer treatment believe it or not for P and they figured out that I will never..sadly be some one who can use biologics..so when I flare up its pretty much one oral med I can take and sadly it doesn't hold back any flares I also use steroids occasionally that's it baby cakes...so no biologics are out


Michelle
Michelle @michelle1021

We get depressed. We get miserable and the only thing we want to do is cry and cry and cry. Nothing anybody can say will make us feel better.

"why don't they just go away and leave me in peace. I just want to be left alone and try to die in peace" Yip, that is what I used to think when I was covered in Psoriasis. I was the most miserable "B" in the world and because of that, I made everybody's life hell. If I can't be happy, neither can they. Pathetic right? It's not easy for us Lindakay. To go through the pain every day is hell. Of course you will curl up like a wounded dog and 'retreat'but hey, think of it this way, you don't stay curled up. You get up and you move on. You're a strong lady and I admire your strength. What you have gone through and where you are now, has shown me what a great inspiration you are to us. You've come a long way. We all need that someone to turn to, to feel encouraged and strong that not even wonder woman will be able to beat us. Do not judge yourself. Go and look at yourself in the mirror. Look past the P, look at YOU. Don't let your Psoriasis blind you to the wonderful life you can have. As with many life-altering events, Psoriasis is almost guaranteed to cause you to re-evaluate your priorities and what is your priority? YOU. Everybody has to deal with tough times but it depends on us on how we are going to deal with it. No one is immune to the trials and tribulations of life but we can be immune to negativity in our daily lives. You're a wonderful lady and I know this is a bad day for you but remember we are all here to support you. You are very much loved on this group and don't forget that okay?


Rosey
Rosey @sue2023

Lindakay your not alone in retreating when painful and bad it's hard to get through the tough times .That's why this site is great as we all know what p does to us,the ups and downs and no one judges when one struggling with the severity and pain.


Rosey
Rosey @sue2023

And about to embark on the cancer drug ,I'm hoping it helps me but the dose seems high and there goes my hair again ,you are strong and a ll are here to help and listen,really hope you get through this soon.


Lindakay1948
Lindakay1948 @lindakay1948

Love you too Rosey Good Luck with your treatments they just made me sicker honey and now not able to opt in on any biologics sad actually a guinie pig for medicine again hahahaha


Bev
Bev @bev43

Good Luck with your treatments Rosey. Stay strong 🤗


Rosey
Rosey @sue2023

Have the script but not going to start until end of mth when I'm off on leave as know they prob make me sick or worse,but they might not,wait and see I guess.



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Lindakay1948
Lindakay1948 @lindakay1948
Dayton, NV, USA

Psoriasis is horrible in old age..wondering what Pharmaceutical company will ever help me buy the meds that would help me attain some form of quality of life??



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