psomom
...feeling relieved psomom @psomom

Treatment

6 weeks into a bio. 100% clearance. I was afraid to treat it medically before but now I am so glad. It was a great decision for us.

40

Please don't include specific medical product brand names or external links.

40 responses

Bev
Bev @bev43

Oh I'm so happy for you. He must be so happy.


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

Great Psomom, Glad all gone well with that :)


Ellen
Ellen @ellen4

Im so glad for your son ...


Sid
Sid @sid

I'm on bio treatment too and it's been awesome so far.


Peter
Peter @pedro60

What bio are you both on, I’m seriously consider doing this as iv gave up on the topological stuff as it’s not working 😢


Michelle
Michelle @michelle1021

That's great news Psomom and I'm very happy for you and your son as both have struggled so much. He must be extremely happy. Poor boy. For how long does he need to be on the treatment?


Sid
Sid @sid

@Peter, due to the cost of these injections, if you're doing it on the NHS (in the UK), you need to have 'failed' 2 or 3 treatments prior to your specialist being able to apply for funding. If you're on private health insurance, then I'd guess you'd need to speak to a consultant to determine the best way forward for you.
For me, I had been through UVB light treatment, on/off usage of creams with steroids in them and finally two different types of tablets (one dosage being an injectable).
At this point, my specialist put forward his application for funding - initially only for 3 doses! - and I am now on a new (to UK) drug for which I'm also having to participate in trial-like information gathering as I've been told that the way for matching patients to the correct type of treatment is now changing.
It is an absolute godsend. Admittedly there is a downside with a suppressed immune system, but I'm willing to go through a period of this if I'm able to achieve clear skin.
Unfortunately, I believe the forum rules prevent us from naming the drug directly, but I guess I can answer your question in a private message. This drug, however, is openly advertised on TV in the States which is where I became aware of it.


Sid
Sid @sid

@psomom, I'm glad your son is doing well on bio treatment too.


Michelle
Michelle @michelle1021

Hi Sid, by saying there is a downside with a suppressed immune system, does that mean your body can only mount a diminished level of immunity in response to invading organisms? Meaning it can make you more susceptible to cancer, diabetes and eventually when you stop it, worsens our autoimmune disease? Or do I have it wrong? I'm sorry I don't really know much about the different types of drugs we get for our disease. :)


Michelle
Michelle @michelle1021

I apologize if I'm scaring some people with my questions but these are the things i'm sure all of us need to know. We all want relief and hoping we can get something that is long term without affecting our health. No use in being dead with a clear skin.


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

I do know it shuts of the immune system meaning you are more susceptible to illnesses from others with like flu etc, Liver damage aswell as other problems that may arise, Though i do know it can change a persons life, I been offered pills in the past and said no because of the risks for which i will not take, I am glad this is working for you Sid, Glad your life has got better for you :)


Michelle
Michelle @michelle1021

But over all else, I'm happy it has worked for many of you. When we have P, we have one focus and that is to have a clear skin. :)


Peter
Peter @pedro60

Hi sid... can you PM me with the name?


Fran
Fran @narf

That is fantastic news! Congratulations!


Sid
Sid @sid

@Michelle - most systemic treatment for psoriasis (tablet or injection) work by reducing the immune system as it is known that the condition is caused by an overactive immune system. The lower tier stuff, especially the one beginning with M, are cross-platform drugs which mean they are also used for treating cancer or can potentially cause damage to organs like the liver. This is why they take so many regular bloods from you - to monitor and confirm that there are no long term effects from taking these drugs. These lower tier drugs are not for everyone and their effectiveness will depend on the severity of the condition and what state the immune system is in.
When you move into bio-land, these drugs are known to clear psoriasis to a higher extent, in some cases completely clearing it. There are a couple of drugs used for this - an established one has a longer period to run in whereas the newer one requires fewer doses and 'guarantees' a higher percentage of clear skin.
As far as I know, it doesn't shut off the immune system, but reduces the effectiveness of your immune system. You do have to take more care when dealing with people who have colds, coughs and flu so you are legible, in the UK at least, to receive free flu and chest infection jabs as a consequence of this.
It's perhaps something that could be discussed in a thread where we can name the various drugs....is that going to be allowed? Rather than highjacking psomom's deserved joy at something that is working for her son...


Michelle
Michelle @michelle1021

Yes True Sid. I'm being rude. Sorry Psomom!
Thank you for the info Sid.


 john,Flakes to beam up
john,Flakes to beam up @chewbacca

There always seem to be a dark side to most medications it seems ,Yes Sid , reduces the effectiveness of the immune System, i
I can see if nothing else works, I know many that go down this route with biologics,Though my magic cream is a dream, i did a week and stopped it , all seems fine at the moment , though i know steroids are bad for us thanks :)


Susan
Susan @godcares

psomom it's your life and if it works, and you are happy with the results, then it was the right decision FOR YOU! I'm really happy for you!


psomom
psomom @psomom

Thank you everyone and no worries Michelle. We are well aware of the risks and did a lot of research and consulting before deciding the benefits outweighed the risks. Psoriasis was effecting every aspect of my sons life and was severely effecting his mental health and ability to live a normal life. I only wish we had done it sooner.


psomom
psomom @psomom

Also Michelle, as far as ‘no use being dead with clear skin’. I’d rather my son be dead with clear skin having lived a good life, than kill himself because he is so distraught and depressed as a result of having scabs covering his face and body.


Ellen
Ellen @ellen4

HI Sid ... I have been taking the dreaded M for my psoriasis for the past 2years .. I do go for bloods every 6mnths ... I also take a Multi Vitamin to boost my immune system.. If I do get a cold its very mild...everytime I want to stop taking these meds I flare...its like a psychological affair now..


Michelle
Michelle @michelle1021

Yes true psomom. I apologize if what I said was wrong and insensitive. I did not mean it that way. I don't know much about biologics which is why I ask questions. The reason for my questions is because maybe I might need it sometime in my life. My view might be different from yours and some others because of my lifestyle change. I was covered in Psoriasis for many years and I know what it feels like so yes I do understand very well. I was mentally unstable because of that. I forced myself to change my diet and eventually I became a clear skin for years until something happened to my daughter. Then, I got all covered again. I don't think there was anything else that made me more happy than to be a clear skin. I do wish your son a wonderful clear skin life. I would've felt the same if one of my daughters had P. :)


Clint

psomom
psomom @psomom

Sorry if I was reactive Michelle. I am sensitive to drug shaming. I understand avoiding them as I always have also. It was a tough decision to make putting a 14 yr old on a bio. I do think that my son’s P stems from the extreme stress and anxiety he has always had. I refused to medicate him and thought it would work it self out with time, love (and some therapy) but I see now how badly he has needed help beyond what I could give him.


Michelle
Michelle @michelle1021

You have nothing to apologize for psomom. I truly understand :). I'm sure I would've done the same. This will give both of you some peace too as you've been through a lot. Good luck and keep us posted :)


Rosey
Rosey @sue2023

Good one psomom,Doing the drug route too as prefer to lead a short normal life than a life like this .
Wishing you and your son all the best on this journey and wow 6 weeks and clear now he can live without the stress that this condition causes. Well done, your a fantastic mum.


Elaine
Elaine @elaine2018

Oh my gosh!!!! So happy for you, psomom!! What did you do? What does "bio." mean? I'm now on a Vitamin D oitment and Steroid ointment. I don't like using a steroid, but desperate times call for desperate measures..........


psomom
psomom @psomom

Elaine bio’s are biologic drugs. Injections. Sid, in this post and in an other just before this one does a great job of explaining. I believe there are sections on this site that talk about them more througoughly. There is only one aprouved for children under 18. My son is 14.


Stuey
Stuey @stuey

I'm in UK and been using Bio for 5+ years and been steady on one in particular for 3+ years, Its been absolutely amazing, Had an infusion every 6 weeks, within 2 days I feel the benefit, then I got 4 weeks of complete relief from PSA and PS absolutely amazing, BUT ! gotta admit by the time my next infusion is due the effects have totally worn off and I generally in terrible joint pain across my whole body and skin in a mess.... BUT due to a heart condition they have stopped my treatment, I'm at week 3 just now and the effects of the drug will begin to wear off in the next week or so, with no treatment I'm gonna be back in a really bad mess, My consultant is not going to prescribe anything so its back to relying on my GP who at best is gonna give me MST which works but I really really don't want ....


psomom
psomom @psomom

Sorry to hear that Stuey.


Michelle
Michelle @michelle1021

Study, chin up everything will work out for you. I'm sorry about your heart condition and your P but stay hopeful and positive. You will be okay. I wish you well :)



 john,Flakes to beam up

Fran
Fran @narf

I have been following a series that examines the use of stem cells for curing a number of human ailments. I would think these would be classified as “bios” and from what I have heard, this would be an easy treatment to follow, if it works it’s a miracle, if it doesn’t, no harm has been given.


Stuey
Stuey @stuey

It was Inflixmab that I was using, truly was a like miracle the way it works for me, haven't got a clue what'll happen now...


Erica
Erica @Eri

All I can say after a year of injections every two weeks is that my blood pressure that was very low when I started normalized, it was the first winter in years that I did not even catch a cold or a sniff. Never got ill except for a few aces and pains all over (normal for my activities and age). I was told the meds I received targets a specific protein. Not an immuno suppressant, not targeting your whole system like e.g. chemo. As it is a drug on trial I don't know much more about it however.


Bev
Bev @bev43

Wow that's fantastic Erica


Vickie
Vickie @vickie25

So happy for you. I did the same 5 months ago nd had the same results. If only I could get rid of the pain I would be so happy


psomom
psomom @psomom

Sorry to hear about the pain. Is it from psoriatic arthritis? Could there be a different bio that helps them both?


Vickie
Vickie @vickie25

Dr. s putting me on a new one hopefully that one will do the trick. Just have to wait for the insurance company to approve the new meds. Thanks for asking



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psomom
psomom @psomom
Vancouver, BC, Canada

I don’t have P but my 13 yr old son does. I’m so grateful to have found this site in my quest to help him!



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