Rosey
...feeling okay Rosey @sue2023

Looks, coping, treatment

Hey pple, Dermatologist rang,sane one that said he can do no more and I need a specialist , specialist ,but cause of. my results his words are ," he wants to eyeball me" guessing he thinks it's all bull that this one thing I finally submitted to

18

Please don't include specific medical product brand names or external links.

18 responses

Rosey
Rosey @sue2023

Has worked,he wants to see fir himself and notes of how to deal in future, I m so clear it's not funny ,all I can think of though is how I was treated by work ,why am I'm not elated? ,cause now I'm good I'm looking back at all the bad ,argh ,the good was the support I have here ,the bad is life treating me like a ton of #$;& cause of way I was ,time will heal


Sid
Sid @sid

This is the problem with psoriasis. What seems to work for one person is not necessarily going to work for others. When they hear of natural remedies, they're always skeptical and want to see for themselves.
In my case, I've been asked to help with DNA mapping as traditional dermatology paths - try-fail-try-fail, etc - are being dropped in favour of mapping treatments that target the correct DNA group. This is apparently more cost effective and better for everyone involved, especially the patient.
Don't look at this as looking back on the negatives - if anything, you are providing useful information on what worked for you so far. If there is a chance this might work for someone else, then it's something worth looking into. It just happens to be a bit horrible for you to have to recall everything but you'll be fine...hopefully he won't have you unpicking any of the stuff you've done to make things worse!


Rosey
Rosey @sue2023

Hi Sid it was a drug I went on ,but did not want to be on that worked,no diet did it for me ,was already dairy free ,meat rarely as am a lifer,I just can't help what I endured at work ,still working and they are so complient niw as they know it's real , I guess it's a case of not being believed that gets my goat. Lots of stress till recently bout office,lucky I love my job and client's are great.


Sid
Sid @sid

Ah, then you're in the same boat as me...I'm also on a drug trial and they're already impressed that things have calmed down so much. I'm happy you're also getting clear...it's awesome! :D


Rosey
Rosey @sue2023

This flaym site helped me get through some dark times,nice pple here , just good to know theres a place where others go through it too


Rosey
Rosey @sue2023

I'm not getting clear ,I am clear ,no flakes from the first time I took drug,no trial , just a drug that worked ,soon I can get back to me, just been brought down so much in the recent past,NXT goal is to do my laps at local pool,a favorite pastime,


Jannie
Jannie @jannie2469

Wow I’m impressed


Linda
Linda @justicejones

So sorry you went through such a tough time Rosey!
Great to hear you have had some success.


Ellen
Ellen @ellen4

Awesome news Rosey ......


Paula
Paula @paula2022

Can I ask what drug this is please? I can’t get anything other than standard creams and at the moment, probably due to stress, they’re not helping at all😥


Rosey
Rosey @sue2023

It's commonly called the cancer drug, sorry not allowed to post names here but used for RA mainly also for severe psorioas


Julie
Julie @jewelgold

My Rheumatoligist said he wouldn’t put me on it as it can cause other problems like with the liver, but he said it would fix the psoriasis up.


Rosey
Rosey @sue2023

Yeah was absolutely terrified to go on it,but had no choice apart from don't go on it and be miserable ,I swear nothing else worked over 4 years , nothing to lose in my case ,and so far so good ,tests weekly for liver ,have a 90 year old client been on it 20 years yep she said early days were bad ,shes my inspiration ,and on a higher dose than me ,go figure


Ellen
Ellen @ellen4

I am also on the cancer meds ...been taking them since 2012.....I did stop for a while & then it came back full force .. I also do blood tests every 3mnths to check my liver , kidneys etc......I am hoping to stop one day soon ....


Julie
Julie @jewelgold

Glad it is helping. I was told to see how I go and if I find things get worse he will put me on it. My inflamitory markers were up a bit last time, so that concerned my Doc. I will see how I go. At the moment I am very tired and sore. Best wishes.


Bev
Bev @bev43

So sorry you are suffering so much Julie I do hope you get better soon.


Michelle
Michelle @michelle1021

Sorry to hear Julie and I hope you get better soon. Eat as much anti-inflammatory food as you can as well. Keep us posted. I can just imagine how you must be feel.


Julie
Julie @jewelgold

Thank you. I am taking turmeric, cinnamon and ginger everyday. I do decaf teas and coffee, plus my dairy and gluten free diet.



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Rosey
Rosey @sue2023
Perth WA,

Had psoriasis forever but weathered the ups and downs.Tomorrows a different story.





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