22 Mar 15:09
Looks, coping, treatment
Hey pple, Dermatologist rang,sane one that said he can do no more and I need a specialist , specialist ,but cause of. my results his words are ," he wants to eyeball me" guessing he thinks it's all bull that this one thing I finally submitted to
Please don't include specific medical product brand names or external links.
22 Mar 15:14
Has worked,he wants to see fir himself and notes of how to deal in future, I m so clear it's not funny ,all I can think of though is how I was treated by work ,why am I'm not elated? ,cause now I'm good I'm looking back at all the bad ,argh ,the good was the support I have here ,the bad is life treating me like a ton of #$;& cause of way I was ,time will heal
22 Mar 15:25
This is the problem with psoriasis. What seems to work for one person is not necessarily going to work for others. When they hear of natural remedies, they're always skeptical and want to see for themselves.
In my case, I've been asked to help with DNA mapping as traditional dermatology paths - try-fail-try-fail, etc - are being dropped in favour of mapping treatments that target the correct DNA group. This is apparently more cost effective and better for everyone involved, especially the patient.
Don't look at this as looking back on the negatives - if anything, you are providing useful information on what worked for you so far. If there is a chance this might work for someone else, then it's something worth looking into. It just happens to be a bit horrible for you to have to recall everything but you'll be fine...hopefully he won't have you unpicking any of the stuff you've done to make things worse!
22 Mar 15:34
Hi Sid it was a drug I went on ,but did not want to be on that worked,no diet did it for me ,was already dairy free ,meat rarely as am a lifer,I just can't help what I endured at work ,still working and they are so complient niw as they know it's real , I guess it's a case of not being believed that gets my goat. Lots of stress till recently bout office,lucky I love my job and client's are great.
22 Mar 15:58
Ah, then you're in the same boat as me...I'm also on a drug trial and they're already impressed that things have calmed down so much. I'm happy you're also getting clear...it's awesome! :D
22 Mar 16:01
This flaym site helped me get through some dark times,nice pple here , just good to know theres a place where others go through it too
22 Mar 16:09
I'm not getting clear ,I am clear ,no flakes from the first time I took drug,no trial , just a drug that worked ,soon I can get back to me, just been brought down so much in the recent past,NXT goal is to do my laps at local pool,a favorite pastime,
22 Mar 18:16
Wow I’m impressed
23 Mar 01:01
So sorry you went through such a tough time Rosey!
Great to hear you have had some success.
25 Mar 08:25
Awesome news Rosey ......
25 Mar 18:43
Can I ask what drug this is please? I can’t get anything other than standard creams and at the moment, probably due to stress, they’re not helping at all😥
26 Mar 00:43
It's commonly called the cancer drug, sorry not allowed to post names here but used for RA mainly also for severe psorioas
26 Mar 05:16
My Rheumatoligist said he wouldn’t put me on it as it can cause other problems like with the liver, but he said it would fix the psoriasis up.
26 Mar 10:20
Yeah was absolutely terrified to go on it,but had no choice apart from don't go on it and be miserable ,I swear nothing else worked over 4 years , nothing to lose in my case ,and so far so good ,tests weekly for liver ,have a 90 year old client been on it 20 years yep she said early days were bad ,shes my inspiration ,and on a higher dose than me ,go figure
26 Mar 13:22
I am also on the cancer meds ...been taking them since 2012.....I did stop for a while & then it came back full force .. I also do blood tests every 3mnths to check my liver , kidneys etc......I am hoping to stop one day soon ....
26 Mar 23:45
Glad it is helping. I was told to see how I go and if I find things get worse he will put me on it. My inflamitory markers were up a bit last time, so that concerned my Doc. I will see how I go. At the moment I am very tired and sore. Best wishes.
27 Mar 10:05
So sorry you are suffering so much Julie I do hope you get better soon.
27 Mar 11:27
Sorry to hear Julie and I hope you get better soon. Eat as much anti-inflammatory food as you can as well. Keep us posted. I can just imagine how you must be feel.
28 Mar 00:19
Thank you. I am taking turmeric, cinnamon and ginger everyday. I do decaf teas and coffee, plus my dairy and gluten free diet.
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