01 Apr 09:10
Out of curiosity, when you finish a successful course of treatment, how long does the fear factor last, the fear that now it’s finished, the P is coming straight back, or maybe you had no fear factor. Right now I’m bricking it.
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01 Apr 09:13
Sorry James, I try to enjoy the moments i have with better skin, try not to look ahead, I am not in a bad way so, its good,sorry about yourfear though
01 Apr 10:35
Hi James, I remember when I first started the cortisone and my skin started to improve I was the happiest girl alive, but when it came to that last bit of ointment, I started panicking. I used it for months so when I've decided to stop it, my P got worse. I just left it. I knew it wasn't good to keep on using the steroid and two weeks later (my legs and hands were covered with P) I was introduced to the coal tar. As you know I'm still using it but I will use it for a month, let my skin breath for a week without it and then start with the process again. That's to make sure my P does not get too used of the tar. Now, I'm not scared to stop using the tar as I know I can manage it. Don't worry, you will be okay. :)
01 Apr 12:24
James ,yep it's a weird sense of perception we have,Im clear but is it temporary? Can't help but think that especially us bad cases lol ,hard to enjoy and worry at same time,but for me it's so cool to wear shorts sleeves again and a clear face,it's hard because we have lived it a long time .
01 Apr 14:02
James, I live life one day at a time. No stress that way. Enjoy this wonderful blessing!
02 Apr 06:17
Yes i cant imagine being a clear skin, i mean totallyclear, Theres always a flake somewhere and turn up anywhere,I have been good in the past to the point just been small spots, I used to go raving years ago and i remember going dancing topless as thats what a lot of people did,I have not been that clear since, That was around 13 years ago i think,It was a good couple of years it was good,I dont get it, as i was smoking like a chimney and eating anything, figure that out?I also had a lot of stress to with this and that, seems all the bad things helped lol :)
02 Apr 07:14
John you have achieved so much,at the end of the day only us can help us , you have and do give even though you go though this tourment of p ,an inspiration to us all , keep on top ,that's the key
02 Apr 21:31
I’m trying not to think about it but it catches me occasionally. I’m not actually fully clear, I have a tiny bit behind my ears and very small amount that was covered by the trainer sock.
03 Apr 06:28
Thank you Rosey, Its all been trial and error throughout the 2 years or more now,I know i will never get rid of it completely but i think the vitabiotics are helping me now i got it in control, so the steroid did help me to get kick started while on these vitabiotics,The only place thats annoying is my bum crack, I been trying not to rub there as it can feel nice when i do, i put cream on it and i am sure i can see smoke coming from my behind from the heat of all the rubbing i have done :), I am trying not use cream and just let it dry out, thats when it starts itching , I did try steroids there but as soon as it starts healing it starts itching ,i cant win lol, but its getting better as long as i leave it alone when i shower as thats the time it itches , Apart from that, i am looking like a clear skin with white patches ,Well everyone is an inspiration Rosey as we seem to have ways of getting this better and share what we know :),Thank you all and thank you Rosey for the compliment :)
03 Apr 11:37
Mm yes had bad memories of p all over and in bum , painful hope you get that sorted soon think I used Vaseline to stop the cracking ( no pun intended) actually think I tried everything and anything ,coal bath was good though
03 Apr 13:03
James, the improvement on your P is tremendous and I hope the last bit will disappear as well. You've come far so stay positive and like Susan said, enjoy this blessing :) Well done .
07 Apr 06:47
Michelle miss your pic ,you are so sincere and wise in helping people on here and like John ,you have made so much difference in my life and everyone that you touch,ohhhh I know what I mean
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