07 Jun 10:21
Has any ione else been unable to get onto this page !! I have not been able to get on here for weeks have changed my password etc and have asked for my new password but no reponse !!!
Please don't include specific medical product brand names or external links.
07 Jun 14:31
I think the owners of the website have abandoned us. I tryed emailing and messaging but getting nothing back.
07 Jun 14:54
Same problem, but not going to reinstate as have reminders from the past
07 Jun 19:44
I hope I’m wrong but I wonder. This site / forum was set up by one of the drug companies, that’s why we weren’t allowed to mention brand name drugs. I assume their main purpose was to gather information from us as people affected by P. That’s okay with me, a fair trade. However, could it be they have all the data they want and as you say Kay, have simply walked away.
07 Jun 21:49
Its a possibility for sure, bit of a dick move to be honest. Pass the ownership onto someone who would keep the site maintained atleast.
09 Jun 11:58
Yes us people need people that have this condition, no one in my world understands it or has it, so this site is unique and a godsend to us
18 Jul 22:50
I haven’t received mail from Flaym for months. Thought maybe the booted me out.
25 Aug 13:13
I believe we are all in the same boat. Me anyway. Today all kinds of notifications.
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