Debbie
...feeling excited Debbie @debbie9

Coping, treatment, strangers

I've had psoriasis since 2005. I had it bad, all over my body. I'm on Trymfya now, I'm clear of all psoriasis.

13

Please don't include specific medical product brand names or external links.

13 responses

Sid
Sid @sid

Using the same stuff...it’s bloody awesome, right?


Janet
Janet @rara

Im going to ask my doctor for them
.


Michelle
Michelle @michelle1021

Hi Debbie, what is Trymfya?


Michelle
Michelle @michelle1021

I've just read up on Trymfya. Problem is that it weakens your immune system and which can lead to infection more easily. Which means you have to always make sure you keep your immune system strong and try not to get ill. It sounds great though but I'll pass this one. After the strep throat my immune system was so weak that I got bronghitis straight after and I struggled for 3 weeks to get rid of it. I got spots where I never had before. Debbie and Sid, how do you keep your immune system up while taking this product? and how does your skin react when you stop using it?


Sid
Sid @sid

@Michelle, luckily in the UK, I now qualify for a free flu jab and for a vaccination for coughs and chest infections due to taking Trymfya so I'm due to go to the GP to get those administered. In terms of keeping the immune system topped up, I've been lucky enough that it is fairly robust anyway but have caught colds more easily over the last year but no more frequently than normal - which tends to be once a year. It does depend on how active I've been and how run down I might be but, touch wood, I've been healthy so far. I drink natural juices - beets, celery, etc mixed with apple and/or orange and a dash of cider vinegar on a weekly basis.
So far, I'm still on the medication road so I have to take the injections every 2 months so I've not been in the position to take note of how my skin reacts if I stop using it. I've varied the time I've taken the injection by about a week or so later as I have the injection delivered to my parents who set up strict reminders for me to make sure I don't forget but so far so good.
So, in short, yes it does weaken the immune system. You should be provided with some decent support if you're recommended to go this way in order to support that weakening. You also don't have to do so many regular bloodtests - once a month or so is the norm now. In fact, my next blood test will be in March next year when I go back to the consultant for the next follow up. The effect on the skin is, to me, nothing short of miraculous. To go from vividly redmarked and flaky skin to 90% clear (just the brown mottling on the skin is left) but smooth skin within the first couple of injections, theoretically, should be enough to convince you that you should consider trying it. It doesn't reduce your immune system to the same extent as the multi-purpose tablets did but I do understand your concerns as it was one of my main concerns as well.


Michelle
Michelle @michelle1021

Hi Sid. Thank you for that. I'm glad you're happy with the biologics and that it helps you. I'm still very weary but also its understandable from my side. You are keeping healthy and that's good. no need to check what will happen once you stop drinking the organic juice. It helps and thats it. :) May I ask why you go for so many blood tests if you know you have P? how does it help? I'm sure you're happy to have smooth skin Sid, that's basically the only thing we wish for right? we don't care about beauty or riches, more about having a clear skin. no money can buy you that. well, my opinion of course ;). My P is not severe at all and I can't say I'm suffering but it will be nice to have clear skin. :)


Sid
Sid @sid

@Michelle, the blood tests were required when I was on the tablets. Those were also cancer-treating drugs and known to affect the kidneys and liver so there were more frequent blood tests required. Now, it's just when I go to a follow-up appointment which was once every 3 months and has now moved to 6 months. Again, because the biologic is fairly new to the UK market - I believe I was in a batch of about 10 people who were 'among the first in the UK to try it' so they're being cautious more than anything. But yes, clear skin is all everyone wants...I'm happy with that in any case! :D
I understand your caution as well...having had so many different treatments with less than stellar results can have an effect on how far forward you go with anything but I'm glad your condition is not so severe. :)


Michelle
Michelle @michelle1021

Thank you Sid. Ah I see about the blood tests and tablets. Not good I'd say. So you were one of the first guinea pigs in the UK lol. I hope you don't mind me saying that. Not meaning anything bad by it. You had guts to do that Sid and I take my hat off for you. I don't think I would've done that to be honest. Thanks to you and others, many can use it even though there are side effects. I guess one will try whatever you can to get better right? I'm glad you're happy. you sound positive and that's a good thing. :)


Sid
Sid @sid

Definitely the best thing I could have done, especially as I hadn't realised exactly how down I was about the condition until after it started to disappear. It's incredible how depressed you can get without realising as such! Guinea pig, test pilot, I've been all of them at some point in my life and not just for medication! haha!


Michelle
Michelle @michelle1021

hahaha Sid. well I'm glad it works for you and for other too. I've never had it so bad to consider all these things but it's good to know the ins and outs. Thank you. :)


Sarah
Sarah @sarahld

Wow congratulations on having such a fab result with it how long have you been on them for before you started to notice the psoriais disappeared xx



Michelle
Michelle @michelle1021

Hi Debbie. How is the meds going? I wish you all the best.:)



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