john,Hulk
...feeling okay john,Hulk @chewbacca

Coping, healthcare system, relationships

Hello all, I been through hell last 3 days, I have developed ruematiod arthrits because of this mesh in me, 4 problems to deal with,trying be positive,Maybe more problems when mesh out, My wife is the best in the world, so supportive to me,Thanks :)

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67 responses

Rita
Rita @rita

Sorry to hear that John. Hard to stay healthy during these difficult times. I hope you feel better soon. 🌻


 john,Hulk
john,Hulk @chewbacca

Thank you Rita ,I am feeling better now the arthritis is in my joints, still got foggy head but okay Thanks, I already got psoriatic arthritis which not been a problem, but assume this is rhumatiod on my research with auto immune with mesh,I knew i was feeling rough but temperature was fine, wasnt until thursday it was running through my body, couldnt sleep and was having fever and gradually feeling my joints getting it,I wish i researched into this before they put the mesh in, i was told safe etc, they even knew i had auto immune diseases, still went ahead with it ,I may have to resort to disease modifiying drugs get better then ween off it as i got to work,I dont want use these at all but i dont want anymore pain or destruction in joints Yes i hope i am better soon too thank you


Linda
Linda @justicejones

So sorry to hear that you are going through such a difficult time John! Sometimes we have no choice but to take some drugs, hope they will settle things down and that you feel better quickly!


 john,Hulk
john,Hulk @chewbacca

Tank you Linda, To think 4 days ago i was walking around etc like ususal , i just had to go to corona test and i am beat and pain in my joints thanks to NHS uk lol, I dont see any other choice but take strong stuff, Cant work cant pay bills ,I am sure plenty out there like this ,I just got get on with it, My wife is great understands and there always. 3 days feeling i want to end it , shes a gem , really is thank you :)


Linda
Linda @justicejones

It means everything to have such wonderful support, especially in hard times. Here in Canada the government is saying there will be support for workers, some banks are deferring mortgage payments as well as hydro and phone with helps the stress levels. They are going to start slowly lifting restrictions to help the economy but if there are flare ups wit new numbers coming down with the virus they will ship it it down. Ontario and Quebec are having a tough go of it. B.C. Is doing better.
Lots of stresses in this new normal, hang in there and stay calm and stay safe.


Rita
Rita @rita

Hi Linda. I’m from New Brunswick, Canada. Even though our numbers have been very low here I still feel so stressed about this virus. Not so much for me in particular but for my family and the world as an entity. Hopefully things will get better quickly for everybody.


Rosey
Rosey @sue2023

Hope you feel better soon. Yes I know what your going through, had to give up work just over a year ago. I do hope you find relief someway. Most respond good to the disease modifying drugs, I did not. Its worth a shot. Life is different now. Wishing you better health and solutions soon


Ellen
Ellen @ellen04

Hi John … so sorry you going through this now … hope you get better soon …..and YES MICHELLE is a GEM !!!! Im sure you cant wait for her to get there … hopefully our flight restrictions will lift soon.....


 john,Hulk
john,Hulk @chewbacca

Thank you Rosie and Ellen ,just wanted to rant lol,Well thats thre route i will probably take Rosie,Eventually i will have to go through complications of mesh remova, good trade, a bit of mesh, pain and arthritis , well another added though i dealt with psoriatic, that was good for years now,

Yes i dont know what i do without her?, so caring and Michelle not with me yet, but she did a lot for me when i was in a real mess,This arthritis is nasty, i could feel the toxins moving to my joints so bad, I rang doc as i cant sleep, my joints been burning so he gave me these pills for 4 days, If i dont have corona ,waiting for results then i proceed blood test for rheumatic see what they find, i already had rheumatoid factor in me blood anyway, so i will ask doc, They seen me call them loads of times in desperation toget this gone,Its not as severe symptoms as fridy say, it was that making ing its way and felt like biting in my joints and having a braai or barbie q in them,horendous pain and fever,,

Well give you a laugh, My boss and work mate thinks that my healthy living has caused arthritis like this yikes, i said that to docs, he said you have rhumatiod, he knows i got psoriatic, arthritis, i will write a strict snotty nose letter to you boss.I said to him, How can eating 12 portions of fresh veg with chicken or fish cause this, Off their heads,oh by the way now i got stop eating the odd cookies sort this arthritis out lol, I am still unwell and i still got a lot more shit go through, I think of michelle being here and hope she dont get fed up with me and all that we will both go through together, This wasnt suppose to happen, all bad timing, and i trusted the mesh surgeon whos messed me up but hay ho off we go Thank you :)


 john,Hulk
john,Hulk @chewbacca

Positive that , meds are helping me,I dont let things get to me if i can help it for too long, My diet is good anyway so i should get on top of it in time, I managed 5 hours sleep last night yay, Trying get back to work tomorrow if i can, Thank you all :)


 john,Hulk
john,Hulk @chewbacca

Oh and i dont have Corona, tests results just came in


Rosey
Rosey @sue2023

It's not about diet, so many told me, as had it since birth like you, be aware it sucks, you have this and you will get through it, Michelle your rock and soon forever together. Am sorry life has not Bern too kind, you really do just got to deal 🌹and believe in yourself.
Dr's bahhh I have no faith lol


 john,Hulk
john,Hulk @chewbacca

I jnow Rosey but i like makes sure i got all the nuitriance i need ,Yes my psoriasi dosnt make any difference, lifestyle does to my joints, well it did with psoriatic arthritis , Thank you Rosey, still rough as hell, i got try to work, will i make it lol, No docs cant help you unless you need meds thats it, never cure you or anything Thanks


 john,Hulk
john,Hulk @chewbacca

Yes i got to stop accepting cookies from websites Rosey :)


Rosey
Rosey @sue2023

Get some good pain Meds John that's the only thing that helped me survive the early days as the dmards did nothing but I had to try
I would have drank petrol at that stage lol if Dr's, said it will help so try anything offered it may be your saving grace. Good luck and I wish you better health soon.


Monuhor
Monuhor @Monzy92

Try enstiller ask for that see how it changes your psoriasis. I'll be honest I was working alot n psoriasis got bad to a point I had joint pains.. I stopped work am using enstiller 2 weeks now best result n am flaking so less it's a good confidence booster try it enstiller


 john,Hulk
john,Hulk @chewbacca

Thank you Monuhor, Luckily i dont get too big issues with the skin, Thank you :)


 john,Hulk
john,Hulk @chewbacca

Thank you Rosey, I go back to work Monday after a week off sick, I dont give up easily, That was hell last week, now i am weak and aching , slight pain in joints,Doc gave me steriods, they do help but make your nervous sysyem go potty, i will try just anti iflammatories for work, not going to be easy though, I proved to my boss i dont have Covid 19 he said good, i said i rather have that be honest than this. My wife is what keeps me going Rosey, If Michelle was not going to be with me, I think i would just taken all those pills i had on the kitchen side board be honest as i was close to it and washed down with carling black label,sorry dont mean sound like this but its true, I am looking forward to my wife to be with me which hopoefully wont be long? I got through crap in the past and i got go through more crap, damage etc thats been done to me but life goes on Thanks :)


Rosey
Rosey @sue2023

John, oh yeah, as long as, I wake I'm here and meant to be here, and that's it I have nothing but still have, a roof. I really know it's hard but somehow it works out??? You are Michelle's world and she is yours. ❤️❤️


Rosey
Rosey @sue2023

Haha enstilar comment, great it worked for you, it doesn't for everyone, and it not psrioasis John's dealing with its joint pain you


Rosey
Rosey @sue2023

Monuhor was who that comment was for


 john,Hulk
john,Hulk @chewbacca

Yes true , Maybe that stuff he or she has works for goin abdomin mesh pain too Rosey? lol :),I hope all works out anyway Rosey in time Thanks


Rosey
Rosey @sue2023

Keep it together John, pain sucks, enstilar is for skin, it sucked for me lol, so that's it, done. Psrioasis is not so bad even all over, till you deal with with oa, /psrioasis /psrioatic arthritis, it's, a, diff life and you want to die, but you don't so you are here. That's how I deal, cheers and you will find a way


 john,Hulk
john,Hulk @chewbacca

Thank you Rosey, Well ihad psoriatic arthritis since 2003 but never had an onset like it was this time,My diet/lifestyle kept it near none existant for over 3 years and then just went nuts, I had been feeling fluey for sometime so it was working up to it, Once that mesh really sinking into my inners and pain started in places that wasnt there then that was it,Believe me though , if you stick to eating mainly veg .chicken and fish , steer clear of dairy , sugar eat fruit or have rarely then withing 5 months your be ammazed how much you may reduce symptoms or clear it to near gone,I have evidence of inflammation that was left behind, nodules on my wrist and thumb, didnt have any problems until now,It does take effort and my skin is got mind of its own but , If you leave these things you end up more pain and nodules,Its all a choice though i know and not easy, like you my skin dosnt make a difference but i rather have dodgy skin than painful crippled joints given the choice,My symptoms have calmed down as now i am to stage 2, Fever and it getting in joints last week now its going start try and destroy my joints , I am eating well and hope i can get this back as it was to nothing but maybe difficult because of this mesh that caused me get like this . I wish you well Rosey :)


Rita
Rita @rita

It sounds like you try so hard to be healthy John. It must be frustrating. For me my physical and mental health depends a lot on the sun. Even when it’s not very hot, I try to stay outside in the sun as often as possible. With all the stress these days, the best times of the day is when I’m outside gardening. I truly wish you renewed good health.


Rita
Rita @rita

For psoriatic arthritis, maybe ginger pills could help? I used to have regular arthritis and ginger was very beneficial. I take 1200 mg per day.


 john,Hulk
john,Hulk @chewbacca

Hello Rita , Thank you , Well because of this mesh thats been in me for 2 and half years decided to give me an immune respose, its annoying say least but i am trying to get this sorted as soon as possible , I eat healthy anyway so i can only do what i have always done, Skin is not bad ,I am being positive as i can , This does effect you mentally too because of brain fog, I got that slightly and feel weak because of the inflammation in the joints muscles but i keep going, My wife helped me a lot even though she is not with me.I will keep plugging be determined , just while this mesh is in me it may keep the inflammation going so i may be fighting a losing battle? i dont know,and its so riskyremoving this mesh out of me so i will have to do many appointments, scans etc , this and that , pain management ? long process lol but i got keep going , I am okay Thanks :)


 john,Hulk
john,Hulk @chewbacca

yes ieat fresh ginger as usual, garlic, turmeric as usual so i am doing the usual, Thanks Rita , eating 12 portions of veggies a day , May take time because igot hit hard near over night, not like years ago where it was gradual and had 3 years pretty bad but it subsided to a degree for years but still caused little damage , I dont give up, I am just ranting lol :) thank you :)


 john,Hulk
john,Hulk @chewbacca

Okay someone thinks its funny lol with the emotion , Well it could you in my situation lol :) :).I am a survivor from birth ,I got this far lol :)


 john,Hulk
john,Hulk @chewbacca

Its my fault in some way for researching into mesh hurnia repairs but is it? NOOOO not really as i was told its safe and i knew people no problems with mesh implants , Not until things go wrong then you do research like i did , though for over 2 years i thought it was something else and docs never said a word to me about this,. I have ranted at Docs about it but they like to dismiss the mesh even though there thousands in the uk whom have problems, I weould had rather left it as it was tiny and not painful at all unless i coughed but otherwise it was okay,Thought best get fixed while its small,surgeon didnt say i could have a host of problems and docs never picked up on it .One doc just said, your not the only one lol, What a thing to say? unbelievable really. Now its going to cost more money for them and some from me to try help me like thousands of others, so they shouldnt be using mesh, Woman can get destroyed too with mesh, Someways i think we are in the dark ages to be happy to gamble and put a lot of people through torture. I spoke to many people whom had Auto immune response from mesh , basically rejection, I have accepted what is as i have to. Luckily i can still walk at the moment and i hope i still can ,People out there in worse situation than me Thanks :)


Rita
Rita @rita

I don’t have too much confidence in doctors. I learned a long time ago that most of them are pretty useless. I remember going to a dermatologist for my psoriasis and telling him some of the natural things I was doing that were really helping; he had zero interest. They’re only good for writing prescriptions, and pills for the most part only camouflage a symptom and don’t solve the problem. You’ll get better John. You’re determined.


 john,Hulk
john,Hulk @chewbacca

Yes thats true, Docs are in a dark area for me and always have been . I dont do meds for my skin since years now as i know its bad, If one want to improve their situation changes only way to help, not a miracle but will reduce symptoms in time, I am basically warning otheres here to not get mesh put in , there are alternative like natural skin tissue repair as i dont want anyone else to go through this Rita, There still will be thousands going through it with problems but if people take note of my post hopefully some people can be saved from this, i have warned some on youtube aswell aswell as talking to my next door neighbor the other day,so ifi save a few from this, I am delighted Thank you Rita :)


Linda
Linda @justicejones

John I can relate to your experience with a mesh. I had incontinence and my doctor said a procedure was 98% successful. So I went ahead have had problems since and further surgery. Got blood clots both legs which is suppose to be unusual and nerve damage in both legs. Now the surgeon said any further operations would have less than favourable outcomes. I am in a class action law suite.


 john,Hulk
john,Hulk @chewbacca

Hello linda , Thank you for letting us all know here as i have done because this can impact the immune like it has with myself and you , Problem is once damage done its cant be reversed, I dont know if i have trapped nerves aswell as damage, I can say that as time going by i feel more aches or pain from sites, I take it your from the States Linda, I wont get anywhere here unless i find out what mesh was put in me though i cant afford take a big company to court and its the stress which i am sure your going through, I just wish i never had it done in this way if i knew, I am sorry about all your going through with this Linda , Yes the more they play with or trying to fix can make things worse, Surgery they will avoid because of the damage they could do to me , I spoke to many that are very bitter after getting mesh removed as they have no life as before and relationships have been broken, They tell me to put up with or chances i be in a worst state? I hope you get what you entitled but you cant put a price on health, i rather be as i was before than be a millionare Thank you Linda for sharng :)#


Linda
Linda @justicejones

I doubt we will get much of anything as so many are in the class action. The mesh eroded the urethra so had that fixed which they said would make incontinence worse but hey don’t worry we will do a follow up sergers to fix that. But because of the problems then they said you have suffered enough. The mesh calcified into tissue. It is frustrating when they do not fully inform patients what is the down side to a operation. The urologist smirked whenI was describing my pain, I rarely blow up but did at this! I said yo do t care about your patients then he got mad and said and implied that was a liable statement so I said well You don’t care about me as your patient!
I have heard of so many having problems with mesh.


 john,Hulk
john,Hulk @chewbacca

So Sorry Linda :( ,


Rosey
Rosey @sue2023

Mine brought on from iron infusion(full on psrioasis that's proven from hospital). I've been near surfer free for years, did keto 4 months too. Some, are just meant to suffer. So when Psa hit hard I was also diagnosed with ostio, the psrioatic arthritis very manageable but the mid foot severity of ostio and Psa combined was beyond.
I love my cod liver oil etc, I really think that because I was on mtx which was for psrioasis was the cause of psa and ostio, 3 mths of mtx (did nothing for psrioasis by the way) and that's, when I couldn't walk. Dr's deny mtx was the cause.
The very med I was on is used as a preventative for damage I belive it was the cause of my damage haha, not my fault, its great for most people but stupid me kept taking it as was so bad, and caused Dr's, said it will help. I got worse. I give up.


Linda
Linda @justicejones

I hope you will get some help for the mesh problem John! Sure does not help the stress levels along with job concerns and corvid worries!
Hang in there buddy!


 john,Hulk
john,Hulk @chewbacca

Thank you Linda, I been so focused on my joints and dont notice the mesh problem as much, Good thing bad thing i dont know lol, Yes well covid and all bad timing to get really sick, I am not a sick person but getting all these things too much , i taken antiinflammatories and got steriod pills if things get bad as i am at work, back feels bad and feet but i got go on,You know i am starting to see it , if i got 10 years left of my life as long as i am happy with my wife then thats all to keep me happy,Shes all i focus on swell as finishingmy millennium falcon build lol and cant wait for here to be here with me , Shes very understanding, I am not lazy when it comes to work but i got to do best i can , if i suffer then i be classified as disabled, hopefully it wont come to that as i got 16 years until retirement, I am trying to be positive though Linda so not all doom and gloom,This is the best place to let it all out, I was so positive before mesh and its made a big impact, luckily i am not in agony but it has cause autoimmune respones my arthritis and aches from mesh site and other places , We all got to do best we can Thank you :)


 john,Hulk
john,Hulk @chewbacca

Hello Rosey, Yes medications can set things off with arthritis for us P people, Alcohol set mine off 2003 anddidnt know what was going on, nails coming off was first, severe dry eyes and then the joints all in stages, very much same what happended now though this time over night , my nails dont look too bad at moment, Yes these chemicals in meds can trigger an auto immunne response like my mesh , I had arthtitid 17years and was great for over 3 years wirh eating better and now, I am eating well as usual and seems its helping my joints, hopefully it will get better,We all just want to be normal pain free. Most of what you do can help make symptoms better with determination, try a different mind set Rosey, Doom and gloom wont change anything, I am lucky compared to some out there way i see it , I am sorry about this impact on your life Rosey i really am, Your be amazed that if you make positive steps your pain will reduce intime, no cure no i get that ,Mind i got see how i am today lol, could be hell but not thinking that, I had to take meds, bloody hate taking meds but it pays the bills then so be it, I wish you well :)


Linda
Linda @justicejones

You know what they say when you are going through hell!
Keep going!! 😁 thank you for your posts it explains a lot more of what my symptoms are from.


 john,Hulk
john,Hulk @chewbacca

Lol So true yes keep going , Yes i am as battered as a sausage,i was falling asleep at tea break at work but kept going . Yes i am giving awareness as i dont want others going through this and you are in a lottery with mesh but they still keep putting it in people saying its okay, I have warned many on youtube, I hope they read what i have written, I even had a go at a Doc online too, How can you say this is okay? Of course he wont answer but at least hes saying there could be problems in his videos but why carry on hurting people? , Keep to old method of shouldice and not mesh,Luckily i am not in agony but what will future hold and will my Psoriatic Arthrits go into remission? while this is in me is it going to be hard to fight off inflammation? I dont know ?I will try my best in what ever i can do Linda ,How wonderful the NHS is everyone says? , yes i think so too lol, Its okay i am not going get angry as it solves nothing,NHS messed me up in a few ways but i keep going as i do, I said to my co worker, I really should not be going through this , he said i know , but hay ho , Sorry more rant lol :) Thank You :)


Rosey
Rosey @sue2023

I meant to say I give up on medical interference unless absolutely necessary. Going back to vitamins b12 for energy, zinc cause its good for repair, Vitc, cod liver oil, yummy lol. Am already feeling the benefits. And think the car is finally going to get seen to yayyy will have wheels again but pitty it's a huge car and costs alot to run. You can't have it all lol. I do laugh at the wonders of life.


 john,Hulk
john,Hulk @chewbacca

Sounds great Rosey, All these vitamins will help improve the immune system for sure


Rosey
Rosey @sue2023

I haven't read all of these posts but Enstilar is a steroid cream for severe psrioasis it didn't work for me so no more steroid foams creams for me
Have a better quality of life even if pain hit and skin no diff it's deffiently not for mesh implants lol. Hope you can be with Michelle soon are there no special circumstances that she can fly over? I know there's planes still bringing Aussies home from all over the globe still.
Michellr with you in personwould make it a bit easier for you to cope. Hang in there I'm glad you have her to keep you going and rant all you like as a problem shared is a problem halved.


 john,Hulk
john,Hulk @chewbacca

Thank you Rosey, We are still waiting for the visa, maybe another 2 months yet,been a while, dosnt help withcorona maybe then when she does get here Michelle need be quarratined for 2 weeks, Yes its good to rant for sure though wish i didnt have to as i was okay 3 years ago and didnt rant about anything, Steriods okay short term but not long term, I could clear my skin up totally with steriods but i know they are bad so i put up with a few flakes, Thank you Rosey :)


Claire
Claire @mamaclaire

I'm sorry to read this. I practice a daily wellness meditation (regardless of my actual wellness) and that makes me feel better emotionally and mentally.


Linda
Linda @justicejones

Humour is good medicine as well


 john,Hulk
john,Hulk @chewbacca

Thank you Claire and Linda :) Well i just started on probiotics and took 2 yesterday as i am trying to build my immune syetem up, I dont get defeated easily, Yesterday wasnt to bad, I didnt fall asleep at work, i did take the steroid pill but think i wont today,makes your body go nuts lol , i just take the anti iflammatory and in time i will ween off them as they are not good for the body really , Sense ofhumour is good Linda for sure , I am trying to get thst back but may take sometime lol Thank you :)


Linda
Linda @justicejones

Yeah when I get overwhelmed I cry first, think of what to do next and do what I can and put the rest aside.
Even watching funny videos etc help


Mishlyn
Mishlyn @mishlyn

I hope you are feeling better now John!


 john,Hulk
john,Hulk @chewbacca

Hello Mishlyn.I am trying all i can thank you , My eyesight is going down hill at the moment, i notice that more now with inflammation to eyes, I think my hearing suffering a little too?The fatigue is the worst,I feel weak all the time hard work lol,my joints are aching and crunching and hurt but not too bad, was bad yesterday moring with my wrist and back ache,elbow hurts this moring , i am effected both sides it seems though my left side is the worst as it was in the past,The only option is to get this Mesh out though it poses a lot of risks but the immune will calm down when its out, seems no choice but to risk my life and more complications but i cant live like this and when my wife is here i dont want to put all this on her,shes gets all from me now lol, shes wonderful, i wouldnt be here without her , yes the fatigue / headfog is the worst with weakness, i dread going to work and trying to last out the day , but i got tryget through it, I am taking steriods though i cant stay on these and naproxen for inflammation at the moments, dosing on probiotics and turmeric pills which i dont think doing anything but i got to try, I am ordering vitamin b12 and hope that can relieve some of the fatigue,sooner i get this mesh out sooner my health will improve with arthritis , I am trying my best tofeel betterat leastthough this mesh is stopping me lol, They shouldnt had put this in me simple with autoimmune disease as i could of had gone elesewhere and had shouldice tecnique, Shows the UK Nhs can destroy lives. Just think i didnt have any arthritis symptoms for nearly 4 years and now , unbelievable, i dont think diet/lifestyle makes any difference with this lol, Mesh anddocs deny it yet i done my research its mesh, its an invader in my body Thankyou :)


 john,Hulk
john,Hulk @chewbacca

If i get Covid 19, I think i am done for,I dont think my immune will take it, My risks of getting it is high as i work in a nursing home with staff bringing it in and giving it to residents, I have to go in some of these rooms with it, Not good , So if i do get it, I think i will meet our maker, Trying my best though not to get it :)


 john,Hulk
john,Hulk @chewbacca

Well i am trying to think positive lol :) ,At least the flakes seem pretty much the same anyway , not worse by that much ,:)


 john,Hulk
john,Hulk @chewbacca

Thanks Rita, I live :).Well i got blood test next thursday to check the inflammation level markers, Then i be sent to rhuematology and i expect i be put on biologics as i cant cope well with fatigue that this is giving me is the worst , resting i am fine but work noooo, I never agree with biologics but i think theres no choice as i cant work like this , not easily anyway , Skin . arthritis i can deal as i am tough cookie :), fatigue no its worth that the arthritis but i have some time put up with and i got deal with work etc, Luckily my wife is great , shame she is not with me but in time she will be Thank you :)


 john,Hulk
john,Hulk @chewbacca

Sorry fatigue is worse than the arthritis ,


 john,Hulk
john,Hulk @chewbacca

HELLO LINIE, YOU CARE TO COMMENT INSTEAD OF BEING CHILDISH thank you for your emotions :)


Rita
Rita @rita

I can understand John how you wouldn’t want to be on biologics but maybe you need them just for a bit to get over this rough patch. Hopefully once the mesh is removed you’ll feel better. When will Michelle be able to finally be with you?


 john,Hulk
john,Hulk @chewbacca

Hello Rita , Yes ihave to do blood test thursday to check for inflammation, then once they find that then rheumatologists at some point and probably be put on bilologics as i need to work ne normalalish lol, I really wish i didnt have to go through all this ah well,Well i dont know how things will turn out with mesh removed as i dont here anything good about it accept one case thats it ,I get one thing sorted ie arthritis but could end up with lots of problems from mesh removal,I know igot get it taken out or i go blind too aswell as all other problems with arthritis ,If things go badly then i decided i am not going to stay here , it could effect a lot of things Rita, All this because of mesh,I am trying to be positive though but dont expect too much,i dont give up easily. Michelle maybe herein 2 months time ? Still awaiting visa Thank you Rita :)


 john,Hulk
john,Hulk @chewbacca

I am angry Rita about this because i been put through this and its not my fault,I am not alone going through this with mesh , I will stop ranting as this is upsetting ,Poor Michelle be putting up with all this, Thank you


Rosey
Rosey @sue2023

OK Mr John, I know the consequences maybe bad if taken out, my opinion get it out of you!! I had a coil and omg body rejected it, OK they had to knock me out to remove, day surgery, but I woke up and how better was I, I'm wondering now if psrioasis people that have inserts etc are they worse? You are needed to all of us, you are, so full of great information to help inflammation.
Sometimes we need help hey, I did and you and Michelle were my saviours. There's so much more I want to say. My feet failed, yep devo, but am ok now, thanks to you and Michelle for being there to listen.
I will always be here for you and Michelle we cannot always be tough 🤗


 john,Hulk
john,Hulk @chewbacca

Thanks Rosey, Yes i have no choice but get it out, Yes we psoriasis people tend to refect anything thats put in the body, i wish i knew before i had it done, its not simple, they could damage my intestines, blood vessels and nerves which is more likely possible or kill me lol, Like i have said to people its not like taking out a kidney stone,They could do more damage to me but i know i got to take chances or suffer arthritis bad all my life, Well i did a lot of research on mesh and implants etc,If you already have auto immune problems these can manefest themselves worse as seeing the object as an invader which is what has happened,Well you think my arthritis was great for over 3 years , none existant,all with eating well no inflammation, skin is different though though not bad as some,I cant help my
self with my lifestyle though with this in me,would it be worse than it is now ifi didnt eatwell?that i dont know? My feet are playing up too, wrist and thumbs aswell as everywhere else especially my back and neck, Why i got get meds in or i cant work and i have too, luckily my job is not hard and i can wonder off sometimes at the moment ,.

Thank you Rosey for saying nice things , i hope you get well too, This is the only place i talk about this aswell as warning others of mesh on youtube :), I have saved a few people from mesh lol. Thank you ,Well we all need help dont we even to listen or say read lol Thank you :)


Michelle
Michelle @michelle1021

Ah my lief, you have the best advice from our lovely Flaymers. They are awesome. I wish I could meet each and everyone of them. Just a wish. xxx


 john,Hulk
john,Hulk @chewbacca

True my lief your right, Does help to rant it out here on flaym :) , part what its for then take advice if one wants it? ,I just wish my healthy eating would help now lol but with your advice on drinking turmeric and i did get black pepper but corns, nice and chewy whole lol and some cumin put in there in my foods yummy , it did help, i been dosing on pills too try build my self up and zap thoughs invaders in me, bloody buggers, I teach them when i get my Immune suppressing drugs, Take that and this you nasty cells my gorgeous lief xxx :)


 john,Hulk
john,Hulk @chewbacca

Just thought to let you know that , I have cured my irritable bowels, thats was rough. I havnt had an inflammatory attack in over 2 weeks now, I am trying different things to help my self, bilberry pills, Flax seed oil and of course my lifestyle which helps anyway , I do feel discomfort of course but managing sleep better, uveitis is annoying and makes me tired, brain fog is slight, joints feeling a bit better, I am waiting rheumotologist as i think i still need a biologic?i stopped anti inflammatories, anti depressant, anxiety drugs a while ago though i will take naproxen anti inflammatory if i need to but seems i can cope more now, groin disconfort is still there from mesh but not huge pain so i can last the day with rest at times at work, my employer said rest as much as you can.I could be waiting some timesget mesh out as there is a back log of people, I am scared as it could cause me a lot of pain and possible damage get this out, it all needs to come out or its pointless as my immune will never be calm none existant as it was before mesh though my immune abrupted recently within 2 months, i do have control touch wood , knocking my head with my hand not too hard lol, Its very scary but i am in catch 22 , leave mesh possible more problems with immune and what ever else? take it out more pain and problems, possible death? I am not the same since day one of surgery and has time has passed more problems thats arisen but hay ho
Thank you


Rita
Rita @rita

Hi John, Glad to hear that you’re feeling a bit better. You seem to be doing everything you can to be healthier. I hope you’re able to regain better health as time goes by.


 john,Hulk
john,Hulk @chewbacca

Thank yu Rita, I still feelrubbish but better rubbish lol, mainly because of eye strain vision problems from all this toxic mesh but ,i am better Thank you ,It has taken some of my life away and some i will never regain it back as a part of it is near lost and will more than likely be fully lost after removal, I have to think positive though i know,I have had many tears over this for a while and wish i knew how dangerous this operation is was for woman and for men too, I should had never trusted the NHS to do this but i knew no different like everyone, Most meshes are used for repair but can lead to concequences especially with an auto immune and a lot of mesh victims end up with auto immune problems that werent there before and can be life threatening , dangerous, I will have to wait a long time to get this removed from me, maybe a year i dont know with back logs and covid stuff its worrying? , I just wish i knew, ,90 % of hurnias are repaired with mesh so theres a lot of people suffering like myself, Thank you Rita



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 john,Hulk
john,Hulk @chewbacca
Salisbury, Wiltshire, United Kingdom

DONT MAKE ME ANGRY, YOU WONT LIKE ME WHEN I AM ANGY, I TURN VERY FLAKEY I am a maintenance operative in my job, i am a plumber by trade.I have had psoriasis all my life since birth 50 yrs, psoriatic arthritis 16 years.





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