Claire
...feeling hopeful Claire @mamaclaire

Coping, treatment, healthcare system

I'm writing from the middle of California where Covid-19 is blooming. My family has immune issues so we've been home for 84 days. I officially have psoriatic arthritis. I've started on methotrexate. How have any of you found that to work?

12

Theme Psoriatic Arthritis

Please don't include specific medical product brand names or external links.

12 responses

dave
dave @daveh

Hi Claire hope your well , I have had psoriatic psoriasis for about ten years and have been in methotrexate all of that time starting on tablets 15mg a week then reducing down to 10mg , I found the tablets quite upsetting on my stomach so about 5 years ago switched to injection which I do once a week, you just have this injection pen and stick it in your thigh , it’s quite painless and easily done but above all no horrible stomach upsets , I still get the usual headaches and tiredness for the first 48 hours . I have been in work so have not been locked down here , I think the trick is for me using a sun bed with medical grade tubes in UVB this has been a life saver for me when I get a breakout on my skin , just jump on the bed three times a week for about two weeks plus use dobervet ointment about half hour before the bed. This really really helps and sorts me out... take care there in USA... Dave x


Claire
Claire @mamaclaire

Thanks for writing Dave. I'm glad you've found what works for you. So far I'm not having any stomach issues with this medication and I anticipate it will stay that way. Continue to be safe.


Sid
Sid @sid

I had a course of this before I ended up on my current medication. It worked but not well enough and certainly not fast enough. It's pretty potent stuff, especially on the immune system and the stuff hanging off it, so expect to have close monitoring on your bloods. Hope it works out for you, but make sure you drink loads of fluid to keep your kidneys clean too!


Claire
Claire @mamaclaire

Thanks Sid. I appreciate your input.


Alexander Bruce
Alexander Bruce @bruce

never tried it had plenty of light treatment which works for a while xx


Claire
Claire @mamaclaire

Alexander- I've never tried light treatment. I tanned as a young person but have been avoiding the sun for the last 30+ years to try and keep my youthful appearance! These days I'm mostly staying at home so no option for a light treatment in the near future. I'm glad it has worked for you.


Alexander Bruce
Alexander Bruce @bruce

I love the sun I try to get out to Turkey every year I usually get a decent tan in about 4days I love swimming in the sea I'm not overly concerned about my appearance or how old I look it's about how I feel x


Claire
Claire @mamaclaire

You are right, how we feel is much more important than how we look, but I do enjoy looking as good as possible. I would love a few days at the beach - my skin is always happy after spending time in the ocean.


Alexander Bruce
Alexander Bruce @bruce

I don't worry to much about how others feel or think about me as I see so much nastiness between people who are supposed friends loyalties don't seem exist anymore, so I make a point of being nice even to those who I know talk behind my back and simply smile lol xx


Claire
Claire @mamaclaire

I think you are very wise.


Sid
Sid @sid

Definitely agree. Whilst I was afflicted, I tried to keep an open mind about how it looked to people but it was always hard to keep a positive mental attitude on it. I didn't realise how much it sucked out of me until my skin cleared on my current medication. Now I'm back to my normal grumpy self except I can show off my arms or go swimming in the sea (on those rare occasions I'm at a beach) or wander around naked if I wanted to...! (I wouldn't cos it's not a great sight! hahaha!)


Alexander Bruce
Alexander Bruce @bruce

What I believe is that it is very important that we do not depend on others for our happiness but that we ourselves decide, ie every day When I get out of bed I know I'm going to have a good day, about A week ago I put my car into the garage for a service etc the bill came to just under £600 and I thought wow didn't expect that but then I remembered you know when I'm on the motorway travelling at 70mph I am dependent on my brakes etc to keep me and other road users safe, what price our safety after all it is only money no point in hoarding it. X



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Claire
Claire @mamaclaire
Fresno, CA, USA

Single mama directing my little California circus with a bit o' psoriasis thrown in for levity.





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