Wow that's long I'm always scared of taking it for so long. Are you in on and off or you've been taking it non stop? I just stop now because I can't buy new more haha but I'm applying some ointment hope it will help me.
I'm new to methotrexate. My mom has rheumatoid arthritis and has taken it (changing dosage slightly) for almost 30 years. I don't notice anything different other than heightened concern about my suppressed immune system during a global pandemic.
Hi Mark; so does the the big M keep your P under control? My Derm has been pushing me towards this for a few years now. My other go-to's are failing. I've been avoiding this for about 8 years now. Since the very beginning of my first outbreak. My first Derm said under no circumstances take that. I don't have him anymore because I had to go to treatment as an emergency and my Dr changed. I've been told I have to have a liver biopsy every 3 months if I take it.... don't like the idea of that....
Hi Mark , sorry for the late response , in SA the cheapest treatment is m , been on it for 4 years now , but it is altering my quality of life poorly , any advice please ?
Hi Clive ...you must take folic acid every day if you on Metho ….since the pandemic I stopped taking Metho due to it lowering my immune system but I still take my folic acid …. well my flaring is bad but Im going to stick it out a bit longer before starting on Metho again …...
@Clive, mine was called into the pharmacy as a prescription. Is only 1 mg tablet a day. I am shocked your doctor doesn't already have you taking it with methotrexate.....I assumed that was an automatic for everyone prescribed methotrexate. Definitely ask your pharmacist and if you don't get anywhere with that then definitely ask your doctor.
Hi Deborah …. Ive been on Metho since 2012 …. I just do bloods every 3 to 6 months …. theres no need for a liver biopsy unless you have underlying issues......
Hi Ellen , i have been on the same meds for 3 years now , but my dr never said a word about bloods, are you effected with terribly lack of energy and get up and go has just gone weekly ??? I want to see if it is just me ? Thank you
Hi Mark , i have been on the same for nearly 4 years , unfortunately my dr never mentioned bloods , none the less , is this medicine really ok for 25 years ?? wow i have weekly side effects , but you say you have been ok this long ?
Hi Clive … I suppose the side effects also depend on your dosage... when I first started Metho all I had was a headache but now I have no side affects except hair loss...
Thank you for letting me know, it helps me to decide if i am going to continue using it , or try a new therapy of some sort ! Glad to hear that by and large it had no side effects for you.
14 responses
Jane @janehoney
Wow that's long I'm always scared of taking it for so long. Are you in on and off or you've been taking it non stop? I just stop now because I can't buy new more haha but I'm applying some ointment hope it will help me.
Claire @mamaclaire
I'm new to methotrexate. My mom has rheumatoid arthritis and has taken it (changing dosage slightly) for almost 30 years. I don't notice anything different other than heightened concern about my suppressed immune system during a global pandemic.
deborah @deborah4
Hi Mark; so does the the big M keep your P under control? My Derm has been pushing me towards this for a few years now. My other go-to's are failing. I've been avoiding this for about 8 years now. Since the very beginning of my first outbreak. My first Derm said under no circumstances take that. I don't have him anymore because I had to go to treatment as an emergency and my Dr changed. I've been told I have to have a liver biopsy every 3 months if I take it.... don't like the idea of that....
Clive @clive1
Hi Mark , sorry for the late response , in SA the cheapest treatment is m , been on it for 4 years now , but it is altering my quality of life poorly , any advice please ?
Lynn @lynnb366
@Clive do you take folic acid as well? It’s supposed to help with the side effects from the methotrexate!
Clive @clive1
i have not been , should i ? and what do i ask for at the pharmacy just folic acid - or does it come as a combination of ingredients ?
Ellen @ellen04
Hi Clive ...you must take folic acid every day if you on Metho ….since the pandemic I stopped taking Metho due to it lowering my immune system but I still take my folic acid …. well my flaring is bad but Im going to stick it out a bit longer before starting on Metho again …...
Lynn @lynnb366
@Clive, mine was called into the pharmacy as a prescription. Is only 1 mg tablet a day. I am shocked your doctor doesn't already have you taking it with methotrexate.....I assumed that was an automatic for everyone prescribed methotrexate. Definitely ask your pharmacist and if you don't get anywhere with that then definitely ask your doctor.
Jane @janehoney
I'm on M right now also taking folic acid and I am also using herbal cream that was recommended by my mother's friend so far so good.
Ellen @ellen04
Hi Deborah …. Ive been on Metho since 2012 …. I just do bloods every 3 to 6 months …. theres no need for a liver biopsy unless you have underlying issues......
Clive @clive1
Hi Ellen , i have been on the same meds for 3 years now , but my dr never said a word about bloods, are you effected with terribly lack of energy and get up and go has just gone weekly ??? I want to see if it is just me ? Thank you
Clive @clive1
Hi Mark , i have been on the same for nearly 4 years , unfortunately my dr never mentioned bloods , none the less , is this medicine really ok for 25 years ?? wow i have weekly side effects , but you say you have been ok this long ?
Ellen @ellen04
Hi Clive … I suppose the side effects also depend on your dosage... when I first started Metho all I had was a headache but now I have no side affects except hair loss...
Clive @clive1
Thank you for letting me know, it helps me to decide if i am going to continue using it , or try a new therapy of some sort ! Glad to hear that by and large it had no side effects for you.
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